At a social event this evening, I met a 69-year-old guy who said he had been treated 3 years ago for prostate cancer. He said he had DaVinci surgery at Rush-Presbyterian in Chicago, and that it was very successful. I asked him if he's still having follow-on PSA tests, and he said yes, his latest was .1
Then....and this is the confusing part...he said his doc has him on Lupron (he said Lupon), and some other drug whose name he couldn't remember, but he thought it started with "buc." He said his doctor told him these drugs were a kind of insurance to make sure the cancer doesn't return.
This man is a well known educator in our area. He's been a school superintendent and a science teacher. He has a reputation as a very bright guy. But, I found his comments worrisome. It sounds to me as if something's happening in the way of a recurrence, and yet he seems to think all is well and the HT is normal follow-on protocol.
He also said that the only side effect of all this is that he can no longer father children. Maybe he meant complete impotence? I asked about hot flashes, and he admitted he occasionally has them.
I'm thinking if my doc had me on Lupron, or any type of androgen deprivaton therapy, I'd want to know a lot more about what's going on than this man seems to know.
Has anyone found this lack of understanding....lack of curiosity....lack of awareness to be common in PCa survivors? Is his lack of awareness putting him in any kind of danger?