a second AMS800 anyone?

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Wilman
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/4/2011 2:03 PM (GMT -6)   
Hi guys,

I had my radical prost. in May 2004. It went well and I have been cancer free since. ( I turned 75 in December)
I had my AMS800 implanted in March 2007. It has always leaked a little bit.

about 8-9 months ago I had to go to a heavier pad during the day.
For about 2 weeks now, I am using 2 Always maxi (brand) long-super size (on the pkg. picture the second from the left of 4 illustrations) per day and one half of a thin pad at night.
I am up 1-2 times per nite. I have always had an urgency situation even after Kegal training, etc.

What next? A urologist I saw yesterday said maybe they would 'replace' the implant that is in. No rush and I will see my main urologist in May.

Any experience out there about this? or knowledge about alternatives?

A second question. I was taking Detrol LA and switched to Oxybutynin ER (10 mg) several months ago.
Anyone had experience with a newer, more expensive drug called: Toviaz ?

Thanks for your info and responses - ahead of time.

Wilman

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 2/4/2011 2:14 PM (GMT -6)   
Well that sucks! I just got my 800 and will have it activated next week. I still have been doing kegles and will continue to do so in the hopes that I can give the 800 some help with my own sphincter. Have you kept up with these exercises? I barely get any leakage at nite or while sitting but I am 100% leakage while on my feet. According to my doc, the results with these devises vary considerably and that's what am afraid of. Good luck on your next step.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Neoman
Regular Member


Date Joined Nov 2010
Total Posts : 192
   Posted 2/4/2011 3:05 PM (GMT -6)   
Wilman
 
I had talked to my surgeon about the AMS 800 and the statistics about failure. I was worried that if it had failed, would I be in a pinch and have to get cathed until they operated on me to get it fixed. He said no.. if it failed I just would leak like I did before the implant.
 
I thought about a double cuff, but I would take the minor leakage over the possiblity of a double problem.
 
My surgeon also put in a larger cuff than normal. Said he could later put in a smaller one if I leaked too much. I think again I will deal with the little leakage I have. I use a thin pad a day and am happy with it.
 
The only problem I have is if I sit wrong I will leak. Also I seem to be better during the day than when I lay at night. Do not know why but I leak at four hours laying down. Do not standing?
 
NEO
Bladder Cancer fall 2008, age 53
MVAC Chemo fall 2008 to Jan 2009.
RC of Bladder Feb 2009
Stage 2 high grade bladder cancer
also detected after bladder surgery high grade Prostate cancer
Had AMS 800 implanted July 2009 but surgeon nicked uretha and the cuff had to come out. Then developed infection soon after and they took it all out. Reimplanted Oct. 12 2010 after fistula/infections healed

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 2/6/2011 8:03 PM (GMT -6)   
I still leak a little but I think it is mostly residual drips because I don't wait for the aus to close all the way. Of course any strain of lifting or playing golf will cause a bit more leakage.
I wear a ladies Affirm Affinity panty liner. Don't even know it's there and it lasts all day. I wear nothing at night but get up 2-3 times. Bladder wakes me up when it has 100 ml or so. If I take one Advil PM I can go 3 hours or so before waking up.
I have had an occasion or two when I leaked for no apparent reason. Perhaps sitting wrong or accidentally activating the aus.
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599
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