A man asking for help has this scenario and questions from another forum

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zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 2/8/2011 7:09 AM (GMT -6)   
This also can serve to show others what kind of things go on in PCa advanced treatments and how your doctors may or may not answer your questions or advise you of all side effects or what to expect scenarios.  It would be wise to learn all you can about various drugs and protocols if you face using them in the near future....knowledge is your power.
 
Here is the guys scenario:
 
what is happening to me?

I was taken off of taxotere and went w/o treatment for 2 months. two weeks ago i started jevtana and i was given a shot for white blood cells (?), a few days later i was unable to walk and went into ER. They gave me morphine and every other med imaginable, but they cannot control my pain. the pain is to my buttocks areaa upper legs. I cannot walk and don't know what to think or do. Has anyone experienced this? I also had zometa the day that i had chemo... i have no idea what my psa is. my doctor's are very standoffish. the last time i had lab work done psa was at 98.

======================================================My words now:

If you have any clues and answers you can reply directly via going to www.yananow.net and using there discussion board, this is a recent post there.  All I can say is, it is not pretty and you gotta feel sorryful for the PCa patient and even more pathetic his docs are sheepishly away from giving him explanations, it appears.  Let's hope this is not the future scenario for some of us going forward.  Jevtana is Cabazitaxel another type of chemo recently approved by FDA, we don't know what the white blood cells shot was at this point.  

Post Edited (zufus) : 2/8/2011 5:17:59 AM (GMT-7)


Steve n Dallas
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Date Joined Mar 2008
Total Posts : 4849
   Posted 2/8/2011 7:22 AM (GMT -6)   
Don't we have enough members here with issues? And or wouldn't be easier for you to invite to guy to join us here confused

Gordy
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Date Joined Jun 2005
Total Posts : 528
   Posted 2/8/2011 10:00 AM (GMT -6)   
Steve's post notwithstanding and to the contrary, I'm sure the "shot for white blood cells" was Neulasta, which is pretty nasty stuff. My doc prescribed Claritin the day before, the day of and for 2 days after and I had no issues with Neulasta, apparently nicknamed "neu nasty". I had Neulasta one time in the past without the Claritin and it was horrible.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/8/2011 1:25 PM (GMT -6)   
Thanks Gordy and isn't what you mentioned very interesting, I hope this guys doc didn't miss something as simple as that, just sayin'...we have seen other things that were questionable and sometimes to often.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/8/2011 1:34 PM (GMT -6)   
zufus,

i really feel bad for this other fellow. that's a hard path he is on, with a lot of suffering. hope some simple relief can be found, as suggested by gordy. i watch these advanced cases closely, just in case it comes back to haunt me one day in those situations.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 2/9/2011 9:14 AM (GMT -6)   
zufus- The OP on YANA whom you quoted responded to my suggestion of Claritin:

"Gordy. I thank you again. I think that you answered my prayer. May the pain go away with Claratin. If this does not work, I don't know what will. THere are a number of blogs out there where patients express their experiences with Neulesta and CLaritin."

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/9/2011 10:35 AM (GMT -6)   
Great heads up Gordy, so Steve sometimes a grape vine network is good useful idea. Now we might know about Neulesta and using Claritin...glad you had an answer. That mans situation is just not what should happen to a patient.

I will checkout yananow right now, thanks for getting envolved.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Baptista
Regular Member


Date Joined Aug 2010
Total Posts : 84
   Posted 2/9/2011 1:27 PM (GMT -6)   
Hospices do very good job in controlling pain of advance cancer patients. I read about mmorphine used together with marijuana pills. Marijuana seems to be better than any steroids to keep pain at low level.
Age: 50 at Dx on May/2000; PSA=22.4;
6x cores biopsy positive; Gleason score (2+3=5)
RP in Aug/2000, PSA=24.2
Negative S-vesicles & lymph node (9); capsular penetration
Voluminous Adenocarcinoma, well-differentiated, Gs (3+2=5); pT3apN0
Post-op lowest PSA=0.18 on Oct/2000; Classified as Micro Metastasis
Jan/2001 PSA=0.26 Biochemical recurrence
AS (Watchful W.) until PSA=3.80 on Oct/2006; MRI & Bone scan negative
Nov/2006 SRT (3D IMRT; 68Gy / 37 fractions)
Feb/2008 lowest nPSA=0.05
May/2009 PSA=0.26 Biochemical recurrence
Oct/2010 PSA=0.95 (doubling at 9.6 months)
Nov/2010 ADT Cyproterone 100mg/day + Eligard 45mg 6-month depot
Asymptomatic, never incontinent, ED since RP

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/9/2011 8:26 PM (GMT -6)   
Just a reminder that medicinal cannabinoids are off topic here at HW. While there is an acknowledged benefit to cancer patients among doctors, it is a commonly abused topic online and the current rule is to avoid it.

Thank you for understanding...

Tony
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