anyone with no reoccurance

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anxiety out the roof
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Date Joined Aug 2010
Total Posts : 111
   Posted 2/9/2011 4:56 PM (GMT -6)   
I'm 1 month post RP. My pathology report is 3+3=6 in one core about 10%. All margins and vessicles and nodes were negative. The cancer was totally confined says the surgeon- Dr Partin of Johs Hopkins. My concern is I read here about persons who have a reoccurence after several years. Is there anyone on here or who you know of, that has had no reoccurance after their surgery???

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Date Joined Jan 2010
Total Posts : 7080
   Posted 2/9/2011 5:14 PM (GMT -6)   
I'm sure that a lot (probably majority, just my speculation) of patients have minor or no recurrance, but they will likely not be hanging around with us after they have gotten past surgery. If you think about it, HW is a group of folks who are recently-diagnosed, recently-treated, or have longer term issues, or sometimes just the desire to help folks.
And, in a convoluted way, none of us knows we are without BCR until we die of something else first.
Tony might have some stats for you.

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Date Joined Oct 2010
Total Posts : 131
   Posted 2/9/2011 5:14 PM (GMT -6)   
Glad your surgery went well. Gleason 6 people are in a very good position to avoid reoccurrence of a rise in PSA after surgery. I am reposting a link that a member Chris R made a little while ago which has the results of a 15 year study with thousands of post surgical men who had stats collected on them.

Interesting stats.

The incidence of reoccurrence was extremely low. When you read it you will be very much reassured that your change of having a detectable or rising PSA will be very small.

Glad to see a post from another person who used Hopkins. My experience with Dr. Carter was very satisfactory. We should start a Hopkins discussion for insights into that experience to allow Mid-Atlantic participants who are contemplating treatment with Hopkins to read how it went for us. It is a unique and interesting place.

Now I just have to resolve the incontinence issue. Carter's stats indicate that 95 percent reach a no pad state. I am having consistent work days of 13 hours from time of departure in the am to coming home in the early evening with just under 10 ml of seepage. I can happily call it seepage now because if you do the math, that is under 1 ml per hour that I leak. Hardy worth using a pad but damp underwear would not make me happy for a whole work day.

Read the article and get some comfort by it. Hope your recovery is going well. You should be getting that first post surgical psa test shortly.

Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
Recovering from incontinence and ED slowly

Jerry L.
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Date Joined Feb 2010
Total Posts : 3072
   Posted 2/9/2011 5:23 PM (GMT -6)   
With stats and path like yours, I would not worry about recurrence and would concentrate on healing. After your healed - diet and exercise.

Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05

anxiety out the roof
Regular Member

Date Joined Aug 2010
Total Posts : 111
   Posted 2/9/2011 5:29 PM (GMT -6)   
This is the best site. I have a friend that was just diagnosed with PCa. I referred him to this site because it's a very informative site with excellent members.

Regular Member

Date Joined Jun 2010
Total Posts : 74
   Posted 2/9/2011 5:59 PM (GMT -6)   
I am a "zero club" member and expect to remain so; I have a short bit of anxiety when the test blood is drawn and an equal bit of anxiety when I call for the results.  I stay here because of the ED issues and a slow mastering of continence.  Mainly as a way to feel connected that I'm "not the only one."  But as suggested earlier, many many men are cured, have no long-lasting side effects and just move on.

Age at Dx: 56
DaVinci Prostatectomy: 10/28/09

Stage: T2C

Gleason - 3+4 = 7

Prosate: 52 grams

Incontinence - absolutely at first, better with time and kegels

ED - Indeed

Post Edited (cantexplain) : 2/9/2011 4:35:46 PM (GMT-7)

Regular Member

Date Joined Aug 2009
Total Posts : 374
   Posted 2/9/2011 6:13 PM (GMT -6)   

I'm two years out from surgery, and have had no BCR, am not incontinent, and am slowing gaining back my erectile function. I stay involved with this forum, because although I have "good" stats, one never knows what the future brings. I learn something new every day I'm here. I've recently started testosterone supplementation, and hope to be useful in a guinea-pig sorta way to other guys who may in my same boat. As others have advised, concentrate on the immedaite healing by walking, drinking lots of water and resting as needed.

Arnie in DE


Age 56 (biopsy & surgery)-PSA-3.9-Biopsy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3) 1/26/09-DaVinci Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA-Dr. David Lee
Path. Report- G7 (3+4)Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins
Continent at 3 mos.------ED improving
PSA at 2 yrs-<0.1

John T
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Date Joined Nov 2008
Total Posts : 4268
   Posted 2/9/2011 6:18 PM (GMT -6)   
Your PC won't kill you, but worrying about it like you do will just cause stress and that may end up killing you. You have excellent stats so just chill out and enjoy life.
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

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Date Joined Apr 2008
Total Posts : 831
   Posted 2/9/2011 7:27 PM (GMT -6)   

For starters my dad had G6 on biopsy and then had radiation. He is now 11 years out and no BCR.

I am a little over 2 years out.

The Johns Hopkins study involving 2,524 patients they operated on had only 11 people who had BCR and none of them developed metastatic progress or died of PCa. The metastatic part makes the mortality part obvious.

So, J.H. feels that G6 organ confined it 99.6% cureable. Epstein, a pathologist at J.H., used the word "cureable" not me.

It is still hard to come to grips with. I also have run accross other people who had BCR and it rose to say .2 and then even after 10 years it did not go any higher. There is one guy here, Rinky, who went to .5 after 5 years and stayed there for the next 5 years and is now 15 years out and hasn't gotten his 3rd PSA test. He's got guts. But, he has no clinical symptoms of progression even if it is occuring. He should have gone for salvage radiation 10 years ago.

Which leads me to another point. Even if you do have BCR, it is very difficult to decide to treat or not.

I also, have noticed that the few G6 here that did have BCR had a positive margin and it took at least 3 years for them to have BCR.

The worst study I could find on G6 guys who had surgery was 1 death out of something like 11,000 people.

Don't stop saving for your retirement. That's what my uro said and I was 42 when I was dx. He is a very well respected uro. in Wheeling, WV.

Drink, take some drugs to relax...Exercise it really releaves a lot of stress for me. BTW, I meant anti-depressants....But I also hear pot has madicinal qualities, but I can't vouch for that. Really....
P.S.  Last fall I was approved for a 1 million dollar 20 year Term life insurance policy from Prudential.  I had a regular physical and just had to submit an undetecable PSA test from the last 6 months.  The rate was about $500 more a year.  A deal I think.  If an insurance company thinks G6 has a really low mortality rate up to 20 years after surgery, then I believe it.

Post Edited (ChrisR) : 2/9/2011 5:43:49 PM (GMT-7)

Ed C. (Old67)
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Date Joined Jan 2009
Total Posts : 2460
   Posted 2/9/2011 7:42 PM (GMT -6)   
I'm only 2 years out so I don't qualify but, I play golf with 3 friends who have been with undetectable PSA for 9, 5 and 4 years, none of them are on Healing well.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

Veteran Member

Date Joined Apr 2008
Total Posts : 831
   Posted 2/9/2011 7:44 PM (GMT -6)   

That's a pretty unique foursome. Let me know if you need a sub anytime.

Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
10/15/2011 (3 Year) -

anxiety out the roof
Regular Member

Date Joined Aug 2010
Total Posts : 111
   Posted 2/9/2011 8:19 PM (GMT -6)   
thanks to all for your support.

Regular Member

Date Joined Dec 2010
Total Posts : 99
   Posted 2/9/2011 9:52 PM (GMT -6)   

I’m glad your surgery went well. You have really good stats and should be on your way to a nice recovery. I am 19 months post op, my numbers are very close to yours and I think the odds are in our favor to not have a recurrence. The best thing you can do for yourself and your family is to concentrate on healing from the surgery, put your focus on “healing well” and doing everything the doctor tells you. I feel like I’ve been given the gift of time and I want to use it wisely.

God Bless and good luck with your recovery.


Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

Veteran Member

Date Joined Jul 2009
Total Posts : 504
   Posted 2/10/2011 3:59 AM (GMT -6)   
Hi Anxiety,

I am also 53 now and its been 22 months post op for me, 4 for 4 of <.001's. Uro says see you in a year. time went fast

Veteran Member

Date Joined Jun 2008
Total Posts : 1804
   Posted 2/10/2011 7:19 AM (GMT -6)   
Anxiety, my husband is closing in on the 3rd anniversary of his robotic prostatectomy with no recurrence. His path report was worse than yours: Gleason 3+4, cancer contained to one side of the gland, extraprostectic extension noted but margins were clean, no involvement of seminal vesicles or bladder neck.

I agree with John T...chill out and enjoy the gift that you've been given (a good report).

Regular Member

Date Joined Oct 2010
Total Posts : 131
   Posted 2/10/2011 8:37 AM (GMT -6)   
Commenting on the post by Chris R.:

I continue to read sections of Walsh's book on Surviving Prostate Cancer and he comments on the information you presented regarding questions about treatment. To paraphrase Walsh he says, it is difficult to know when and how much to treat a rising PSA and that the optimistic outlook is that even with a rising PSA a man might not have any outward signs of disease progression for many years. So the dilemma becomes a technical one. The "instrumental panel" aka, the PSA test says something "is going wrong. The body says things feel alright. Do you treat and for the most part make the patient feel side effects of treatment or wait for an appropriate window for proactive treatment.

I suppose that is the crux of what make prostate treatment issues so complex and not a straight line, one size fits all, decision model.

Anxiety, I am sure Partin gave you some solid assurance that things would work out well for you. All the studies, tables, Sloan Kettering, Mayo Clinic risk calculators will provide you with the same data no matter how many times you read them over and over or plug in the numbers to check your score.

For those who have worked hard to select the best doctor with vast experience in surgery, gone through the procedure and were sent on the road to recovery have does all that we could to address the issues we have had to face.

This is a wonderful website to share our thoughts and feelings about this issue. Thanks everyone.

Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
Recovering from incontinence and ED slowly

Father of Two
New Member

Date Joined Dec 2010
Total Posts : 14
   Posted 2/10/2011 1:31 PM (GMT -6)   

I'm only 2 months post-op and my first post-op psa was 0.1. Obviously, I'm too new to be of any use, but my father is more than 12 years out and still undetecable. Mine was a bit worse than his; I was Gleason 3+4 and he was like you 3+3, but still, the general concensus seems to be: sweat it if you have to, but don't before you do.

Not much help, but still...
Robotic Surgery 12/23/10
Age 40; PSA - 6.2; 3+4 Gleason

Regular Member

Date Joined Jan 2010
Total Posts : 363
   Posted 2/10/2011 2:50 PM (GMT -6)   
I have one good friend who had surgery back in 2000, he's on a one test a year schedule and isn't worried a bit about recurrance. Most of the 10 or so guys at the one prostate cancer support group that I went to a year ago (sadly it conflicts with my Jeep club meeting so I haven't been back) had over 5 years several were over 10 years "clean".

You can't judge recurrance rates from what you read on the forum, most folks never find us and a high percentage of the ones that do and hang around are folks like me who are high risk or are already fighting advanced disease and looking for answers and or spreading their experience to help others. Internet forums in general attract people who are having trouble and are wanting answers. Those who have had surgery and are doing great tend to go out and enjoy life after a while.

With your stats and pathology I'll bet in 5 years you're out living the good life and don't even think of posting, but it would be nice if you drop in once in a while and give the new guys hope.

All the best
Dave in Durango CO
07-06 PSA 2.5
01-08 PSA 5.5
09-09 PSA 6.5
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5
03-01-10 Age 55 RRP in Durango CO by Dr Sejal Quale and Dr Shandra Wilson
03-16-10 Path' G-8 (4+4+5) Bilateral involving 21% of left lobe, 3% of right lobe, SVI, Focal positive margin, pT3b NO MX

All PSA as of 1-25-11 <0.04

Regular Member

Date Joined Nov 2008
Total Posts : 184
   Posted 2/10/2011 7:36 PM (GMT -6)   
My zero club membership renewal came in the mail today, 2.5 years post op. Keep moving forward. You have good stats. Stay positive brother, you're going to be fine.
Age 51 @ DX
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at 24 months post op

Regular Member

Date Joined Aug 2007
Total Posts : 118
   Posted 2/12/2011 8:04 PM (GMT -6)   
I had similar stats to yours after RP but still had anxiety over the PSA tests, especially the "ultrasensitive" variety. I was fortunate to have no side-effects and do not need ED meds. My PSA has remained undetectable. After nearly three and a half years from my surgery, my only regret is all of the hours fretting and wasted over things that (thank God) never happened. My wish for you is that you will be able to avoid or minimize anxiety over an extremely unlikely risk.
Age:45 (44 when diagnosed)
Father diagnosed and cured at age 52.

08/21/07: Diagnosed with T1c cancer

1 of 12 biopsy cores positive; 10% tissue

Gleason score: 3+3=6

PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)

10/19/07: da Vinci prostatectomy by Dr. Vipul Patel

Difficult surgery due to prostate inflammation.

Both nerve bundles spared.

Spongy erections began within 24hrs of surgery!

10/24/07: Catheter out; down to 1 Serenity pad/day next day.

Final pathology: neg margins, no capsular penetration,

Gleason 3+3=6, 5% tumor involvement, multi-focal.

11/04/07 First usable erection with Cialis

11/22/07 Thanksgiving - Bye-bye, pads

01/17/08 First post-surgery PSA result: < 0.008 ng/ml

03/17/08 Erection quality mostly back to pre-surgery levels with Cialis;

have not tried without meds yet.

04/23/08 Second post-surgery PSA result: < 0.008 ng/ml

07/30/08 Third PSA: 0.01 ng/ml

11/04/08 One year PSA: 0.01

Still taking 10mg Cialis every other day - enjoying the results

too much to stop yet.

02/07/09 Taking 5mg Cialis every other day - having too much fun to try

to stop for now.

03/23/09 PSA: 0.02

10/19/09 PSA: < 0.1 (switched to "standard" assay)
05/06/10 <0.1

Regular Member

Date Joined Sep 2009
Total Posts : 464
   Posted 2/14/2011 8:27 AM (GMT -6)   
I am 3 1/2 years post op and I am still <.04 on my PSA tests.
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04

Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4119
   Posted 2/14/2011 10:48 AM (GMT -6)   
My numbers are very close to yours. I am just short of 2.5 years out and still in the zero club. We are the lucky guys with that G6. I count my blessing every day.

Now quit worring about the what ifs and get to healing.

Take care and congrats.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
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