Invader, only the wife (survivor)

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Gremma
Regular Member


Date Joined Apr 2007
Total Posts : 57
   Posted 2/9/2011 10:12 PM (GMT -6)   
Hereditary, osteoporosis, Low T, no stamina, depressed, frustrated, barely keeping his job.
He's only at the beginning of all this. Has really, really, really, bad stomach, been taking Prevecid
for 5 years, afraid since Endo doc said he could not take Prevecid any more and has to take an
osteoporosis med that is citric acid, he will be in angony. Responded well to first injection. I hear
all this "will stop making his own testosterone, heart attack, meds may give him jaw problems,
we lived through 4 years of him having TMJ until he could quite literally have all his teeth redone
to get rid of pain, prostrate cancer, I feel terrible saying, if I can get my husband back again, yahoo!!!
His T is 92, he is 58, his brother also has the same thing, but he had a brain tumor in '91 and hasn't
swallowed since then, so most side effects won't bother him. I want my husband back! What are
good meds, bad meds, new things to try or any instant cures? Should he get a second opinion from
another Endo doc? His urologist and endo doc seem to see things differently. I've had more than my
share of medical crap, and have learned to appreciate the experience of others, I think he is really just
too tired and depressed or he'd be on here instead of me. Think I've had my last surgery and this is the
year I get to go for it for me; maybe with treatment we'll both be having a great year!

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/9/2011 10:45 PM (GMT -6)   
Hi Gremma, I'm sorry, I don't have any answers for you, and I don't know enough about medicine to give you any advice.

But, I've read your posts from yesterday, and the above post, and I think both you and your husband are very brave. This is tough stuff you are dealing with. I hope someone here will be able to give you good direction and you'll get your husband back again.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Gremma
Regular Member


Date Joined Apr 2007
Total Posts : 57
   Posted 2/10/2011 11:13 PM (GMT -6)   
Thanks Sleepless, me too.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/10/2011 11:19 PM (GMT -6)   
You're both on my prayer list, Gremma. Please do write and keep us posted.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 2/11/2011 12:09 AM (GMT -6)   
Oh wow, what an incredibly difficult situation. My heart goes out to you and your husband in such a situation.

I have no special wisdom, but in your situation I would look for a top medical center that would treat all of your husband's issues with a team of doctors. In my mind, that would be the Mayo Clinic or Johns Hopkins, but I am sure that there are others.

Be brave, but be proactive.
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