New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 2/10/2011 2:00 PM (GMT -6)   
Age 53. When diagnosed my PSA level was 38 not 3.8. Biopsy showed 7 out of 12 positive. PSA level at time of Radical Robotic was 48.9 which was done on 01/25/2011,catheter was removed on 02/07/2011,and I am experiencing constant leakage. My pathology report showed my Gleason score at 4+3=7 and some areas5+2=7, a bit more aggressive that originally thought. My cancer was not contained to the prostate but all effected tissue removed. My next PSA is late March

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4824
   Posted 2/11/2011 4:42 AM (GMT -6)   
Wishing you good luck on your March PSA test cool

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/11/2011 7:34 AM (GMT -6)   
Hello DaSlink, I'd not worry too much about the leakage. It can take weeks, and I think more normally months, to train the new sphincter to clamp. It's not really a new sphincter, so much as it's an unused one as I understand it. Your main plumbing valve went with the prostate and now the back up one that for many of us was sitting pretty much idle all of a sudden is being called on to do the heavy lifting.

I echo Steve's good wishes for your March PSA test. Please keep posting and let us know how you're doing.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 2/11/2011 1:19 PM (GMT -6)   
Thanks Steve n Dallas & Sleepless09. I understand that this is not a simple fix, but it is frustrating! When my catheter was removed the nurse told me that my first urination might be a little painfull, but I am still waiting for this event to happen 4 days later. I thought maybe I was doing something wrong.It just seems to leak out as fast as I put it in and I am doing my exercises as instructed. I guess part of the problem is I only had 1 week between biofeed back and surgery, not much time too practice.
I'm afraid to leave the house for fear of over flowing my pad or just not being able to change it. Silly i know, but that is how it is for now. Hopefully things will change in a few days.

p_elliott
Regular Member


Date Joined Nov 2010
Total Posts : 143
   Posted 2/12/2011 3:44 AM (GMT -6)   
That is some pretty serious leakage you may want to call your doctor.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6894
   Posted 2/12/2011 10:48 AM (GMT -6)   
DaSlink,
 
I later accused the nurse (in jest) of leaving an open tube in there when she took out Cath. I did not leak, I flowed. Flooded would be a better term. (age 56 at DaVinci surgery)
 
(notes are for US brands/stores)
 
My first few months I used a Depends pant during the day with a Walgreens men's guard. Changed 7-8 guards a day, but had the pant as a backup (frequently came into service).
 
The guards are very different in absorbency / capacity. Start with one that is not adequate, and it will make things seem worse.
 
My "real life test" (have used them all trying to find decent prices) puts them in these categories:
 
Best capacity, but therefore most bulk, and hard to stuff a spare in a pocket:
Walgreens Mens Guards, Kroger Mens Guards, Target Affirm Mens Guards (I suspect these are all made by the same company). I have not used CVS house brand, but the packaging is the same.
 
Less capacity, but better fit (less bulk):
Depends Men's Guards
 
Less capacity, best fit, and covers more area:
Tena Mens Guards
 
Then there is a group called Drip Collectors by Coloplast. They are for minimal leaks. These are sold through specialty chains in my area. The rest mentioned are in major stores in various package sizes.
 
Depends and Tena will send samples if you go to their web site and sign up. None of them have been the source of any excessive emails.
 
-----
 
I edited this to take out the Coloplast sample mention - I went to their site to get the link, and they do not mention the Drip Collectors now - they seem to be refocused on a type of sheath catheter for that product area.

Post Edited (142) : 2/12/2011 10:07:52 AM (GMT-7)


DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 2/14/2011 10:44 AM (GMT -6)   
At least now when I sit I don't leak but only then. When I stand it opens the flood gates.
When I did my pre-surgery Biofeed back, the nurse told me I had great Kegal muscles already, so I was pumped for some urinary control. Talked to the nurse on Friday and she told me this is pretty much the norm. When the Doc told me"now comes the aggravating part",he was absolutely right. I didn't think anything could be as bad as the catheter, but boy I was wrong.
Going thru about 5 or 6 pads a day.Also using a depends as back up. I hope to see some improvement soon!

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3632
   Posted 2/14/2011 11:29 AM (GMT -6)   
The 4+3=7, 5+2=7 Gleason does not add up..Most pathologists in the States would call that 4+5=9 ..

You are firmly in the "high risk" category and some sort of follow-up treatment is almost certain no matter what that first PSA test shows..I suspect your U-doc/surgeon will be talking about "adjunct radiation and hormone therapy" soon...

Best of luck to you...
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT NOW

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 2/15/2011 12:31 PM (GMT -6)   
Thanks Fairwind for the info! The reason I take my wife to all these visits is I get information overload and the numbers are too much for me to understand. Ever since my Hemorrhagic Stroke in Feb of 09,multi-tasking and organizing or remembering these things don't come easy and it's aggravating. At least now the numbers make sense to me.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/15/2011 1:22 PM (GMT -6)   
Hey DaSlink,
I hope you are getting arms around the leakage. You are still early in the process. Wait a bit for the swelling to go down and your brain to start making new connections. Practice peeing in the shower. That way you can dribble an not worry about aiming.

I don't know your specs but as you can see from mine we were in the same ballpark and not sitting in the best seats.
I lost part of my sphincter and ended up buying enough pee pads to keep Kimberly Clarke's bonus checks flowing to the CEO.

Five weeks ago, at 18 months I had a sling installed and it is great.
Don't lose hope. This is the 21st Century - anything can be fixed.

Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Gleas 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex. EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
Advance Sling 1/1
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 5:24 PM (GMT -6)
There are a total of 2,954,785 posts in 324,149 threads.
View Active Threads


Who's Online
This forum has 162186 registered members. Please welcome our newest member, Lehmanade.
338 Guest(s), 8 Registered Member(s) are currently online.  Details
DBwithUC, Wilderness, Tudpock18, WalkingbyFaith, OriolCarol, Livingforhope, Crazyick, kate22