It's either going to be a crappy weekend or good.

New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/11/2011 7:42 AM (GMT -6)   
I had my annual physical this morning and the GP threw in a PSA test he said "for free."  I said thanks a lot and I didn't get you anything.....  Results are usually back by the end of the day.  It will be almost 5 months since my last one, but after seeing what happened to "tedgard" I am also approaching the 3 year mark and it seems to me that all the G6 that recurred here did so around 3 years so I guess it's time to start worrying more.  You know because it helps.
 
 
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08  Johns Hopkins
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
10/15/2011 (3 Year) -

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 2/11/2011 7:43 AM (GMT -6)   
You don't have to call back for the results yeah

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/11/2011 7:53 AM (GMT -6)   
Hi CrisR, you got that right about worrying. Nothing like a good fret to change a test outcome. Matter-of-fact, the earlier the better.

I'm at 19 months. Never too early to fuss about the three year marker. Methinks I'll devote some quality time today getting myself all worked up about this.

Thanks for the reminder to worry more, "because it helps."

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 2/11/2011 8:16 AM (GMT -6)   
take some advice from a constant worrier - it ain't worth it ...

->to Chris (and other worry-warts) ..go out and look at the sun shine ( or clouds) and say - WOW ! - ain't this great ( or overcast) .. and you are still around on this side of the daisies at year 3 ( better than counting months) ... and revel in the fact that your last PSA was <0.03 ! ( even though not <0.0000000) .... and your path was a PT2 ( at least it was not PT3..) ... and so on....

->gleason smeason ..... embrace life in the now



sincere hugs
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/12/11 - TBA

Post Edited (tatt2man) : 2/11/2011 7:19:19 AM (GMT-7)


An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1148
   Posted 2/11/2011 4:40 PM (GMT -6)   
I think it's going to be a good weekend for you....
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg (margins, seminal vesicles, extraprostatic extension). Multifocal, with main involvement in the fibro-muscular zone. T2C.
Post RP PSA,
Lab 1: Sep10 – 0.02|Nov10 – 0.03|Dec10 – 0.03
Lab 2: Nov 10 - 0.01|Dec10 – 0.01

MikeS24
Regular Member


Date Joined Oct 2010
Total Posts : 131
   Posted 2/11/2011 6:01 PM (GMT -6)   
Chris R - Shame on you! http://www.healingwell.com/community/emoticons/smilewinkgrin.gif
You have been rightfully preaching to all about the Gleason 6, organ confined, no EPE benefits of gifted surgery at a center of academic excellence and here you post your doubt about a PSA test. ( Just fooling with you.)

Repeat this over and over: MY TEST WILL BE FINE. IT WILL BE >0.1 undetectable.

So read those fine papers you posted again and stare at those incredible low stats for non-reoccurance. Partin said you were cured. As you know he has seen hundreds if not thousands of patients and is certainly an authority on reading your pathology results. Again as you know, they are pathology results provided by folks who are called upon by other patients from other parts of the country who make a huge effort to have the pathology slides they have obtained read by experts from Hopkins. We both did the best we could at addressing this disease with the best resources available.

Keep the faith.

Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
9/15/10 1st post op PSA >0.1 undetectable
3/11/11 PSA - TBD
Incontinence - very slow recovery
Aug -Sept 2010 - 4-5 pads
Oct 2010 3 pads
Nov 2010 2 pads
Dec - Feb 2011 1 pad all day - pad at night for some small urge incontinence leaks
ED: slow recovery

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/11/2011 6:18 PM (GMT -6)   
Thanks everyone for the replies. MikeS24 you are right, Shame on me. I went back and read the papers I always use to help other people feel better. I truly believe the stats. from J.H. My PCP just caught me off guard with the PSA test today. I know I have no reason to complain. Outside of not having PCa, I got the best end of the stick. I really feel for the others here that did not fare as well. I feel guilty complaining.

The results did not come back as of 5:00pm so I'm going to take the weekend off from PCa and try to keep busy. The kids are with my ex. this weekend and the house needs picked up. I swear it's like living with 2 tornados....
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
10/15/2011 (3 Year) -

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 2/11/2011 7:28 PM (GMT -6)   
Chris,

I don't believe we have talked before. But, I have posted many times about my mantra of "Every Day is A Bonus". Way before I was diagnosed with PCa this was my mantra. Each day I try to either do something to enrich my life or that of someone else.

My signature shows the somewhat futile journey I am presently on with PCa. Yet I try to hold true to my daily living. I take the tests when they are scheduled. Discuss the results with my doctors and make decisions as they are required. Period. The rest of the time I try to live life and not be tied to constant thoughts about PCa and what ifs. I visit the board from time to time to stay up with friends and help others as I was helped when I first came here.

Just today I was doing the simple thing of having my wife's car's oil changed and getting it washed. I was wearing my Vietnam Vet hat and a gentleman stuck up a conversation with me about when I was there. Seems he was there the year after me. I told him about PCa and the relationship to Agent Orange and the VA benefits I receive. I mentioned some of the other ailments that are on the VA list and one of them was Diabetes Type II. This man was diagnosed with Type II at the age of 40. Maybe 15-20 years ago for him. He did not know about the VA findings and benefits. We talked for maybe another 20 minutes after both of our cars were done and he left thanking me very much and saying he was going to the VA offices tomorrow.

So today while I was living LIFE to it's fullest I met my daily goal. I enriched someone else's life.

Don't let PCa rob you of living life to it's fullest. Don't let it consume you to distraction from what is around you and the LIFE we all have within us and the obligation to enjoy the hell out of it. Take the tests, discuss the findings, make the decisions and then get on with enjoying the days.

That's all any of us can do and in fact should be doing.

Good luck with the findings brother. I hope your concerns bear no fruit.

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/11/2011 8:08 PM (GMT -6)   
Thanks for the message Sonny. I have followed your posts here and on the CNS board as well. I hope all the best to you and your wife. Your courage does inspire me. I agree with your mantra one day at a time.
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
10/15/2011 (3 Year) -

MikeS24
Regular Member


Date Joined Oct 2010
Total Posts : 131
   Posted 2/12/2011 8:39 AM (GMT -6)   
Chris R. Glad you are feeling better about the test. I think I know what you are thinking. With all who post with nearly the same pre-treatment Gleason, PSA and DRE results, how did I get lucky to have an OC Gleason 6. I read over and over the signatures of folks who had far less alarming needle biopsy scores and then Wow, "How did they wind up with that bad a post-surgical pathology." It affirms for all of us that the biopsy can just be a dark murky predictor of what is really lying beneath.

At only 6.5 months out from surgery my difficulty in coping with this is 4-fold. Am I really, really free of disease. When is this incontinence going to resolve and will is really resolve to a pad free state. How does nearly 8 years of having BPH symptoms affect my post-surgical plumbing. Finally, how do I get over the fear, anxiety, doubt about this whole mess. From April 2010 to now has been a roller coaster ride of emotions and learning about this disease.

Check my post from Anxiety Out the Roof in his discussion titled KEGELS. I left both you and Anxiety a message in my posting. Would like to discuss on or off line our Hopkins experiences.

Thanks
Mike S
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
9/15/10 1st post op PSA >0.1 undetectable
3/11/11 PSA - TBD
Incontinence - very slow recovery
Aug -Sept 2010 - 4-5 pads
Oct 2010 3 pads
Nov 2010 2 pads
Dec - Feb 2011 1 pad all day - pad at night for some small urge incontinence leaks
ED: slow recovery

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 2/12/2011 9:53 AM (GMT -6)   
Chris,
I wish you good PSA result that will be be a great Valentine day present. It is difficult not to be anxious about milestones like the 1, 2, and 3 year tests. It seems like most relapses tend to happen around those times. As a Gleason 8, I'm blessed to still be in the zero club at 2 years. When I read all the prognoses for Gleason 8, it doesn't give me a lot of hope of what the future holds for me but like Sonny said, I still live my life one day at a time.

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/12/2011 10:03 AM (GMT -6)   
Mike,

I would absolutely be happy to talk to you. You can email me at crhoads@ee.net.

Ed C.
Sometimes I think too much and when I start reading research papers and look at the stats. I feel better. Also, heres one for you.

http://physicianupdate.mayoclinic.org/2011/02/03/surgery-effective-for-patients-with-aggressive-prostate-cancer/

Thanks again guys.
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
10/15/2011 (3 Year) -

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 2/12/2011 10:58 AM (GMT -6)   
Chris - for safety sake -
I would recommend putting your email in your profile - for signed on members of HW- and not on the common page for anyone to copy and use -
Bronson

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/12/2011 11:38 AM (GMT -6)   
Hey!!! Stop worrying!

<------- See that name?

That's MY job! Jeez! Don't make me call the Union rep for your area!

Jeff

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/12/2011 2:25 PM (GMT -6)   
Its a junk email acct. I use for things like this. I give him my real one when he emails me. Besides it has a great spam blocker

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 2/14/2011 7:39 AM (GMT -6)   
The results are in. <0.03

It amazes me how office personal can't read results. The nurse told me that there was a "greater than sign next to it." I asked her to fax it to me and it was a "less than sign."

See, my worring paid off big time.

Post Edited (ChrisR) : 2/14/2011 7:14:42 AM (GMT-7)


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 2/14/2011 7:43 AM (GMT -6)   
That's probably why my Uro does not let them read things over the phone - results get reviewed in person.

gibson00
Regular Member


Date Joined Nov 2009
Total Posts : 212
   Posted 2/14/2011 7:45 AM (GMT -6)   
Congrats!

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 2/15/2011 5:57 AM (GMT -6)   
Chris, just wanted to congratulate you on the great PSA results.

As far as communicating PSA results, in our case it is always the urologist who calls us to tell us the good news. In August 2009, John went for his PSA test (17 months post op). Usually, the urologist calls within 24 to 36 hours with the results. By day 2, not having heard from the doctor, I called his office. The doctor was out but when I told the staff person that I was looking for my husband's latest PSA results, she pulled up his record and gave me the news: 0.1! Ever since surgery, PSA has been less than 0.1...now it had no less than sign next to it. I told the staff member that number didn't make me happy...a nurse was nearby and told the staff person that a PSA of 0.1 at age 58 was great. My response: not if your prostate was removed. I was met with silence, and a quick "the doctor will call you" which he did. To get the to the end of this story quickly: John's PSA bumped up once more a month later, then went back down to <0.1 and has stayed there since.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 2/15/2011 11:03 AM (GMT -6)   
CONGRATS on the Zero Club status
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/15/2011 11:09 AM (GMT -6)   
Congrats on surviving what had to be a long weekend, and wishing you a lifetime of zero's.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1148
   Posted 2/16/2011 6:46 AM (GMT -6)   
What a great result. But with your stats and partin himself doing the op it would be freakish if it were not.

Congratulations!

An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg (margins, seminal vesicles, extraprostatic extension). Multifocal, with main involvement in the fibro-muscular zone. T2C.
Post RP PSA,
Lab 1: Sep10 – 0.02|Nov10 – 0.03|Dec10 – 0.03
Lab 2: Nov 10 - 0.01|Dec10 – 0.01

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 2/16/2011 7:05 AM (GMT -6)   
Chris, congrats. You have made it throught the weekend and still a big fat zero. I remember the days when I hated the thought of being a zeor. How times have changed. I don't mind being a zero for the rest of my life. :)

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 2/16/2011 10:50 AM (GMT -6)   
Congrats. It is always good to hear great news!
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 2/16/2011 10:58 AM (GMT -6)   
Hey Chris.
Congrats. I hope you are satified with the results of my Services Rendered.
I'll send you the invoice for "Worrying" next week billed at my usual rate.

.... Be happy,
Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Gleas 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11
New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, June 18, 2018 5:37 PM (GMT -6)
There are a total of 2,972,968 posts in 326,043 threads.
View Active Threads


Who's Online
This forum has 160870 registered members. Please welcome our newest member, jeannieny.
411 Guest(s), 16 Registered Member(s) are currently online.  Details
Lapis_29, spouse21, Dale B, island time, jeannieny, Waiting In Fl, Pratoman, WalkingbyFaith, Saipan Paradise, RAbid, RobLee, OriolCarol, UCver, BungalowMo, Tim Tam, Charlie1950