Getting better without realising it!

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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 2/11/2011 1:48 PM (GMT -6)   
When asked by the doc I said I was having to pee about once every 45 minutes, and that is more or less how frequently I have to go - yesterday I nearly had an accident while out shopping for a rug only 40 minutes after peeing at home before setting out.
Yet this evening I have just realised that I have been for three hours without needing to go.
So it is possible to be doing better than you think you are. I'm almost posting this observation as a way of having a reminder that it isn't all as bad as I think.

Oh, and I've a related question for others.
It's sort of a way of judging if you are getting really continent:...
Can you manage to have a shower without having a pee while in the shower?
I've recently been managing that too.

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr CT
66Gy 28 Apr to 11 Jun 10
Tired + weird BMs
14 Sep 10 PSA <0.1
12 Jan 11 PSA <0.1
Erection OK

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 2/11/2011 3:18 PM (GMT -6)   
Shower withOUT peeing in the shower? Why would anyone want to do that turn

fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 2/11/2011 4:37 PM (GMT -6)   
Interesting. I pee about 20 times in a 24 hour period, and use 5 pads a day, this 8 months after surgery and 5 months after stricture surgery. However, I have never peed in the shower! I go before and after, but never during. Maybe if I spent more time walking in the rain, I'd pee less!
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8 biopsy)

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/12/2011 8:03 AM (GMT -6)   
Alf you do realize you misspelled realise, I know that you know the King's English and I attempt to honor the King's English even as a Paul Revere horseback riding, American chap.
Only because I do admire your style, does this Esquire render this minor advice in due respect. Don't shoot the messenger, I wish to sing coombye-ya with all. I know I misspell sometimes or have errors on threads...I just want to help save you from the word police!

Cherrio-Pip-Pip and all that rot (I love some of the English sayings):
Lory (car or truck?)
Bonnett (hood of the car)
Stiffy (aka woody)
The loo (bathroom)
(correct me if I misspelled any of those...I am still learning Ebonics here in the U.S.)-LOL

Post Edited (zufus) : 2/12/2011 6:07:17 AM (GMT-7)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 2/13/2011 5:30 AM (GMT -6)   
OK zufus...we won't shoot you.. but have to wonder if maybe you really meant one of these:

"Kumbayah" (Gullah, "Come By Here" — "Kum ba yah") — is an African-American spiritual song from the 1930s. It enjoyed newfound popularity during the folk revival of the 1960s and became a standard campfire song in Scouting and nature-oriented organizations.

The song was originally associated with human and spiritual unity, closeness and compassion, and it still is in many places around the world.



Cumbayá" is the first single from Pee Wee debut studio album Yo Soy released on May 26, 2009, released worldwide on June 1, 2009 and released on June 30, 2009 on iTunes, the song was produced under Mas Flow Inc by the producers Luny Tunes. The song was included on the album from soundtrack of telenovela Camaleones of the same name.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/13/2011 6:19 AM (GMT -6)   
Thanks Steve the phonetics were there but yes, caught by the word police. Good catch apparently one of those versions is the King's English. Mine was more the surf's English and maybe even Ebonics version. Now I realize my misspelling. Thanks for the history lesson I see it comes from African-American spiritual song. I hope Alf is laughing at this.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 2/13/2011 6:30 AM (GMT -6)   
Alf,

Now that I am not losing everything into pads I can take even more accurate data. I produce 70-80 ml/hour - measured. My full bladder sensor turns on at about 250 ml. So I can go ~3 hours. The time is totally dependent upon the volume produced. Longer if I don't drink so much. I am trying to drink only for breakfast, lunch and dinner and bedtime. A regular pattern of about 300ml to 350ml each time.

I absolutely have to go in the shower - just like the old days. It's the best pee of the day. Besides, look at all the water saved.

Didn't you record all your times? It is easy to see trends when they are plotted - and prominently displayed on the refrigerator next to the children's artwork.

Have you tried taking a baby aspirin (81mg)? Did it have any effect on the full tank sensor alarm? It might delay the urge to go for a few minutes.

Good Luck,

Jeff (LFPD but still wearing one for data. 2 weeks to go before getting active.)

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 2/13/2011 6:46 AM (GMT -6)   
If you spell colour as color and neighbour as neighbor, why not hour as hor, pour as por, tour as tor, sour as sor, four as for, your as yor. !!
If realise is spelt realize, why is wise not spelt wize, rise as rize, etc
If Defence is Defense, why is fence is not fense!!

You are ever zo inconziztent.

(Paul Revere was bazically French anyway - but like him, I too have French Hugenot ancestours zomewhere in my family line. His father changing the spelling of their name from Rivoire tp Revere set you all off I suppoze)

I cood go on, but that mite wake up the Auztralians too.

But to return to my original theme, my peeing is now all over the place (time wize at leazt, az I can ztill aim accurately)

Englizh Alf
tongue

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/13/2011 11:09 AM (GMT -6)   
Too funny Alf....I knew you were the word master, I learned something new about Paul Revere from you, too. I'll bet our English books have mistakes in them, when translated from the King's English to our morphed versions. We Americans have a way of butchering precise language and have alot of influences from slang, streets, hip-hop and regional accent variations. I suppose this is endemic of the World with the internet and all. Word!

Cherrio and carry on....
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

MikeS24
Regular Member


Date Joined Oct 2010
Total Posts : 131
   Posted 2/16/2011 2:08 PM (GMT -6)   
Alf and others: Is your benchmark for gaining continence the length of time between urges to urinate? Just wondering what indicator you are using to check how you are doing.

Like Worried Guy, I measure pad input. At this point I could not tell without measuring where I am in my recovery. The one pad I wear at the end of 13 hours (leave for work at 6:15 am and arrive back home by 7:15 pm) looks pretty dry and has just a hint of weight and a bit of yellowness somewhere in the middle of the pad. The weight lets me know the amount I have left in the pad over the day. Without measuring I would be running blind on my progress.

Peeing in the shower has always been more like dribbling and now just kind of weeping in the shower. For me right now anytime I wash in the shower around my penis or butt, it puts pressure on things inside and I weep a bit. I have to be careful when drying myself after the shower, to much rubbing or bending low to dry my feet and I weep as well. Are you and others experiencing that as well?

I feel like my bladder is governed by a sphincter that is on a hair trigger. One twist here or there, touch my underwear to adjust my pad and I leak a bit out. Is that the same for you as well? This is getting discouraging at 6.5 months after surgery when so many are done with this incontinence thing at 3 months.

Worried Guy: your post to me a few weeks ago made me anxious regarding how you found that progress had stopped for you at some point. The down side of measuring is that when progress is slow, you can tell right away from the pad input. I have been dropping down below 10 ml per 13 hours on my one work pad. The below 10 ml trend started on January 18th. I have had a string of a few days in a row of below 10 ml followed by the low teens.

It is progress but compared to the progress I made during the first 4.5 months when my pad volume was cut in half with each passing month, I am at a snails pace right now. Is that common to have a very slow gradual end to the dripping and weeping??? If nobody replies to this somewhat buried message I will repost this in a new discussion.

Worried Guy: Also, did you indicate that you are drinking at max, 350 ml of fluid 4 times per day for a total of around 47 ounces for an entire day? Unless you are fairly low in weight, that seems like a small amount to drink per day for an average male. I am 6 ft and 170 lbs and try to drink around 64 oz per day. I did far less a few months ago without harm but felt the need to increase my fluid intake as my holding urine got better. Before surgery I used to slug down a 24 oz Starbucks ice tea on my walk to work and finished it in 12 minutes. That high intake combined with my pre surgical BPH had me going to the bathroom every 15 minutes for around 1.5 hours. I miss my tea but not the constant urge to go. Now post surgically, I can hold around 200 to 250 ml of urine before I really, really have to go. I leak a bit on the way if I wait too long. Sitting I easily hold 250 ml and can be pressed to get to around 275 before I feel I might explode. I am nowhere near the recommended 475 ml (1 pint) that I read was about the normal voiding total for men. I think they gave me a little girl bladder when I had my RP surgery.

Ta Ta For Now.

Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
9/15/10 1st post op PSA >0.1 undetectable
3/11/11 PSA - TBD
Incontinence - very slow recovery
Aug -Sept 2010 - 4-5 pads
Oct 2010 3 pads
Nov 2010 2 pads
Dec - Feb 2011 1 pad all day - pad at night for some small urge incontinence leaks
ED: slow recovery

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 2/16/2011 8:03 PM (GMT -6)   
mikes24,
I most respectfully submit that the bladder they gave you during your RP surgery was not the bladder of a little girl, but a postmenopausal 60 yr. old woman. And I'd bet she doesn't want it back. Wouldn't make a difference to her either way.
So, so respectfully submitted...
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED
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