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klains
Regular Member


Date Joined Nov 2010
Total Posts : 79
   Posted 2/12/2011 10:12 AM (GMT -6)   
My husband has PC and Acromegaly as mentioned in prior post. He went to meet the PC surgeon and a neurosurgeon for the acromegaly (pituitary gland produces too much growth hormone, (benign) tumor ) They did a catscan and found the tumor, and decided surgery would be needed. The neorosurgeon sugested he have the RP surgery first. This RP will be sometime in April/May.  Why my question is about sugar, is because he is also pre-diabetic. When I checked with the endo dr, they tested all his hormones, besides the growth hormone, The testoterone levels were low. In his case, that is good. But what is concerning me now is his glucose levels. He had a glucose test and that came back high. I am reading this could feed the PC.    We can not seem to get one doctor to talk to the other doctor, or even consider any connection to the 2 situation.  If you mention the acromegaly to the PC dr, you get " ow that would be handled by the other dr" and if you mention the PC to the neorosurgeon or endo , you get " ow, that would be a concern for the other dr. "
Sense the head surgery will be done after the RP recovery.  I am thinking they should try to bring his sugar levels down. We have a appointment with the endo to discuss this Thursday.  Hopefully she will not dismiss the possibility of the conection.   I am trying to improve my husband diet. I have read losts of good recipes for the PC, but he loves his sweets, which leads me to the question about the sugar.  Im thinking sugar substitute would be worse than sugar. Organic sugar? molasses? Also trying to introduce soy . Wondering if there is any truth to this "

One of the main ingredients in soy protein supplements is soy protein isolate. During the process of making soy protein isolate, a toxin called lysinoalamine is formed and the processed soybeans are exposed to high levels of aluminum which make their way into the final product. Spray drying the product at high temperatures makes the other proteins in soy ineffective. Powerful carcinogens called nitrites are also formed during spray drying. Overall, soy protein isolate is a substance to avoid. "

Post Edited (klains) : 2/12/2011 8:24:04 AM (GMT-7)


natural44
Regular Member


Date Joined Dec 2010
Total Posts : 172
   Posted 2/12/2011 10:28 AM (GMT -6)   
Klains, I am an Acupuncturist and Herbalist, I may be able to help some with you delema... yes the sugar levels must be kept in check, primarily the first glucose reading of the day. yes high sugar levels can feed the PC but it would have to be a high constant number there. There are natural substitutes for the sweet tooth. I recomend Stevia. it will not effect your glucose level at all but it tatses very sweet. artifitial sweeteners will actually cause a false hypoglycemia and then a rebound glucose reading due to that.... So find Stevia you can cook with it and freeze it and it retains its sweetness. Hope that helps.
age 44 when diagnosed 45 now
RRP 9-28-10
gleason 3+3=6
pathology report all clear
11-1-10 PSA 0.02
3 month PSA 0.00
bladder control 3 weeks post cath.
Osbon pump works great!
some noctural erections stated 12-01-10, but not very strong ones.
5mg Cialis daily 1-3-11 able to get short semi erections(60-70%) with effort daily
Dr. R. Saint in Tulsa did my procedure, I do NOT recomend him!!

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 2/12/2011 10:59 AM (GMT -6)   
Klains:
 
My Dr. told me to stay off refined sugars from the start. My homeopath also suggested that my wife cook with Stevia as a substitute.  She bakes a lot so I can still have a little this way.  Actually I receive most sugars from fruit and that is basically it.  Yes,  sugar does feed PC.  Avoid all red meats, milk products, refined wheat products.  I drink almond milk, unsweatened and low cal. with cereals and protein shakes.  I eat well and really don't crave these items any more.
 
Skate
Age 59 at Diagnosis
01/08 PSA 4.17 DRE showed node
03/08 RP - Nerve Sparing, margins clear, no invasion
Continent 3 weeks post surgery / ED
06/08 until 08/09 PSA 0.01
08/09 PSA .14
09/09 RT / 36 treatments
01/10 PSA .13
08/11/10 PSA 3.44
30/11/10 Zoladex ADT

MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 2/12/2011 2:16 PM (GMT -6)   
Klains, Xylitol is another all natural sweetener that can be found in most health food stores. Great for diabetics, does not feed cancer, and is also known to inhibit dental cavities. I first heard about it through my Dentist. It is expensive, and because I have never tried Stevia I can't give a comparison.

As to your concerns (from an earlier post) about hospital infections. You might want to consider looking into probiotics as a natural form of defense. After my husbands PC dx in December, we decided to incorporate a healthier approach as well. Pulled the juicing machine out of storage, switched to all organic, etc. Don't know how much it can help, but it certainly cannot hurt.

My husband is currently going through RT, as he was not a candidate for surgery. He also had heart surgery in December. Placement of 2 stents, and consequent to that, a pacemaker implant. So I can certainly empathize with you.

Best of luck to you in going forward. MiraBeau

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/12/2011 4:44 PM (GMT -6)   
The "sugar feeds cancer" myth is widespread but is a fallacy and the endless repetition does not make it true. There is no doubt that excess refined sugar is not good for you but simply because they contribute empty calories. Your whole body runs on glucose and needs glucose to supply energy and function. It doesn't care whether this fuel comes from sucrose (simple sugar), fructose(fruit sugar) lactose(milk sugar) or the conversion of complex carbohydrates from grains etc and fats to glucose for that very fuel. It all finishes up the same ------ glucose fueling your body's cells. Those that disagree should perhaps supply the Mayo Clinic with their scientific arguments:

www.mayoclinic.com/health/cancer-causes/CA00085/NSECTIONGROUP=2

Post Edited (BillyMac) : 2/12/2011 3:24:15 PM (GMT-7)


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 2/12/2011 5:21 PM (GMT -6)   
Good post Billy. I have been testing a largely vegan diet which includes almost no refined sugar. I still get a lot of sugar via fruit, and I have never seen any suggestion that green apples might be more healthy than ripe ones. :-)

Diabetics are in in a different category -- they have to watch their sugar intake but that has nothing to do with cancer.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but now 0.4, doubling time 7 months
No radiation but ADT coming unless I can slow down the rise...

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 2/12/2011 6:06 PM (GMT -6)   

Billy:

Excellent post on sugar. You are right as it is a belief that was passed on to me by a nutritionist as well as my uro, although I don't recall whether he asked me to avoid sugars or actually stated that there was a connection with pCa. I just watched a video where Dr. "Snuffy Myers" speaks to this very issue.  I'll still avoid refined sugars and rely on the fruits I consume for natural sugars. 

Skate


Age 59 at Diagnosis 62 now
01/08 PSA 4.17 DRE showed node
03/08 RP - pT3a 10% ca / Nerve Sparing, margins clear, no invasion
Continent 3 weeks post surgery / ED
06/08 until 08/09 PSA 0.01
08/09 PSA .14
09/09 SRT / 36 treatments
01/10 PSA .13
08/11/10 PSA 3.44
30/11/10 Zoladex ADT

MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 2/12/2011 6:14 PM (GMT -6)   
Ah yes, I agree, with Piano. Thanks for the enlightenment BillyMac.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/12/2011 6:23 PM (GMT -6)   
Thanks Billy, I too get tired of that same silly myth transplanting from place to place. about to eat some good German dark chocolate in your honor. Part of my Taste-Good PC diet plan.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 2/12/2011 8:25 PM (GMT -6)   
Billy - thanks for the post.
 
The Sugar argument could go on forever.
 
My Uro said just try to maintain a healthy diet, that sugar, in moderation, is not a problem. My GP says I could stand a little less, but there are no red flags.
 
A friend with another type of cancer had been told by his oncologist that sugar would feed the cancer and kill him. He stopped it altogether, became depressed with his diet and sudden changes, and died of his cancer a few weeks later anyway (Quality of life question, anyone?)
 
I'm trying to cut back, and am trying Truvia (stevia) right now, but it costs like Cialis (there is a budget to consider) and tastes like a cotton candy from the state fair. Am staying away from artifical stuff, as my PT says it aggravates my leakage (yes, it really does appear to).

klains
Regular Member


Date Joined Nov 2010
Total Posts : 79
   Posted 2/12/2011 8:28 PM (GMT -6)   
Also trying to introduce soy and soy isolate. Wondering if there is any truth to this "
One of the main ingredients in soy protein supplements is soy protein isolate. During the process of making soy protein isolate, a toxin called lysinoalamine is formed and the processed soybeans are exposed to high levels of aluminum which make their way into the final product. Spray drying the product at high temperatures makes the other proteins in soy ineffective. Powerful carcinogens called nitrites are also formed during spray drying. Overall, soy protein isolate is a substance to avoid. "

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 2/12/2011 8:39 PM (GMT -6)   
The only things I have eaten that were made with soybeans were so disgusting that I won't even let them be grown on my farm acreage. Don't have any technical feedback, but you won't find them in my house.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/12/2011 8:48 PM (GMT -6)   
I agree, 142, soy foods are gross, that all taste fake to me. And soy milk, yuck, only baby soy beans should drink soy milk, and btw, didn't know that soy beans were mammals anyhow.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/12/2011 9:53 PM (GMT -6)   
David I dislike soy products as well (tofu? ---- give me a break nono ) but we have a product here called Soy-Milky. It is in fact quite nice------ somewhat sweeter than that usual ghastly soy milk ----- pretty good substitute for those wanting to avoid (for whatever reason) dairy products. I would assume you have something similar over there.
Bill

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3987
   Posted 2/12/2011 9:58 PM (GMT -6)   
"hey orville try some of this here sushi".
 
"looks like bait to me billy-bob."
 

cool

ed

 
age: 55
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 2/12/2011 10:00 PM (GMT -6)   
I switched recently to soy milk instead of dairy (on breakfast cereal) and hardly noticed the difference. Would not drink either straight though.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but now 0.4, doubling time 7 months
No radiation but ADT coming unless I can slow down the rise...

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/12/2011 10:16 PM (GMT -6)   
I should admit, that I don't ever drink regular milk either, hated it as a kid too. Don't do cottage cheese, yogurts, cream cheese, sour cream, butter milk, strong smelling cheeses, etc. Guess not much of a dairy eater really.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/13/2011 10:24 AM (GMT -6)   
David, your line, "only baby soy beans should drink soy milk" is hilarious!

Who would have thought our David was headed for a career on Saturday Night Live.

Good on you ....

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 2/13/2011 10:49 AM (GMT -6)   
Klains,

I'm with the guys on this one, I think soy is just yucky. Though, like Billy we use SILK soy milk on our cereal, oatmeal, etc. It has a sweet, vanilla like flavor, very good.

I also heard that there is a mold in the shell of the peanuts that is "allegedly" carcinogenic, and is present in all peanut products, including peanut butter. That was enough for me to switch to sunflower, almond, and cashew butters. All three, good substitutes, though my personal favorite is the sunflower. Still took some getting used to. Soy, we can live without.
58 yr. old husband dx with PC in Dec.2010
PSA 139.9
Gleason Score 9 (5+4)
Biopsy 12 of 12 cores positive, majority 100%
Stage T3a N0 M0
Treatment HT and IMRT

Post Edited (MiraBeau) : 2/13/2011 9:09:52 AM (GMT-7)


klains
Regular Member


Date Joined Nov 2010
Total Posts : 79
   Posted 2/13/2011 11:13 AM (GMT -6)   
I just got the silk soy milk and my concern of the sugar is actually less than the 1% milk he was drinking. He was drinking a huge amount of milk, prior to his diagnosis. And he seems to like the silk soy now. Seeing as my husband is pre-diabetic, I was thinking of a supplement of soy, and less of the silk soy milk. That's when I came across the soy protein "isolate". Not thinking this is a good substitue?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/13/2011 11:40 AM (GMT -6)   
Sheldon, I got a million more where that one came from, but don't encourage me, lol
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/13/2011 12:04 PM (GMT -6)   
BillyMac -- wonderful post.

We have a crisis in America (at least Canada and the U.S.) where science, true science, is being dummed down in the classroom, sometimes because it is too difficult for the students. No wonder it's difficult --- they aren't taught the basics of such things as math. My 8 year old granddaughter goes to special home-school classes taught by a college professor on Saturday to learn the basics of addition, subtraction and multiplication. At her school it's all about the "concept of numbers" and if two and two equal five, that's fine (for now anyways) as no one should ever be wrong --- Lord knows what it might do to her confidence and self image. And so she's being dummed down to lowest common denominator. Thank God her parents are doing something to stop that.

In some places science is being dummed down because scientific fact doesn't suit the social mores of the community. Think of some countries where Canadian and U.S. soldiers are dying today.

What we're winding up with is a two tiered society that is condeming some youth to a lifetime of ignorance and poor decision making.

Which, BillyMac, leads me to your post.

One of the most promising fields of science is Nutraceuticals. Unfortunatly, a non-science educated society is busy cherry picking and interpreting results. An old friend is one of these. We had dinner with him and his wife last night and again listened to his bizzare ideas on diet and foods. He is sure his diabetic class instructor at the hospital doesn't know what she is talking about. Can you imagine! She hasn't read the latest Prevention Magazine, or watched the health food commercials on at 2 a.m. for the latest break through news.

In his case I think the subversion of science is because he's looking for an easy out to his weight and health issues. Somewhere there is this magic thing that will make the difference. It isn't about eating less and exercising more.

In other cases I think people introduce nutraceutical excesses into their lives and diets because it gives them a sense of control, it makes them proactive. I know someone who follows Kosher not, he says, for religious reasons so much as a discipline. It gives him strength knowing he has kept Kosher for 25 years. Following a particular diet to give yourself some control over some aspect of your life has to be a good thing. At least as long as it doesn't hurt you.

Sorry for such a long ramble, to those, if any, who have read this far. It is all background to my 'bottom line' thinking on this which is that our role here, for each other, be it treatment decisions, or diet ones, is to provide the science as best we can surrounding an issue, be a tad aggressive if a PCa brother is doing something that could be dangerous to their health (not going to see another doctor when their own doctor won't do a PSA, for example) and being supportive of people --- doesn't mean we agree, just supportive --- of PCa brothers when they make decisions.

All of this is also why I think BillyMac's post on sugar is a good one. It is strongly worded, based on sound science, but doesn't trip over into the realm of a personal, or critical, attack on a belief, or stance, of others. It only challenges by putting the science on the table.

Good on you, BillyMac

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/13/2011 12:33 PM (GMT -6)   
To klains, I would say that while sugar substitutes are a great idea, as one who has recently been told that his blood sugar is too high, and I need to do something about it, that the issue for your husband is to decide, as I have been, if he wants his chocolate bar or pie and risk having his feet removed due to diabetic issues, or do he want to keep his feet and organs in the best shape possible under the circumstances, and severely limit his sugar intake?

Some may thing the foot business may be a bit much, but along with dying early from heart disease I try to be honest with myself. I know of more than one diabetic who has a stump instead of a foot. It's a theraputic thought for me.

To also be honest I have to tell you as a guy who does love his rum and coke, this is not a slam dunk decision. I've gone part way. I've been brutal about sugar and sweets, not easy, but after 3 months much easier than it was. Like salt, sugar is addictive for me. What I'll do about the Devil's Rum I've not decided. It would be a shame to lose my feet to diabetic circulation issues and not have rum to ease my soul. (And that's only partly said in jest.)

So, klains, and I hope in keeping with my guidelines in the post above, I think the issue you need to confront with your husband is not how you make sweets easier to avoid, but how he can make a firm lasting decision that sugar will be limited to "X" and "H" will freeze over before he ever again exceeds "X" --- and, sadly, "X" is likely a weekly little treat, not a daily dose. His life, my life, isn't about keeping our sweet tooth alive through substitutes. It's about a fundamental life change of no more sweets/sugar.

A good friend was able to make this transition by stopping everytime he was about to eat some sugar for his 60 second consideration. During those 60 seconds he imagined his young grandchildren standing at his coffin, wishing he'd not had that sugar. Rarely after 60 seconds of that did the sugar craving overcome the vision and he was able to avoid the sugar with some ease. Each of us who has to avoid sugar needs to find their own 'trick' to help, at least until a new habit is formed.

Best wishes for sugar success, however you may be able to make it happen.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 2/13/2011 1:12 PM (GMT -6)   
Ok Guys,

We're new here, can you cut us some slack? Didn't know being a Mensa member was a requirement here. I have also cut back on dairy products, red meat, bought pomegranate juice, am doing whatever it takes in general to live a healthier life. I don't read Prevention. I am reading Surviving Prostate Cancer by Dr. Walsh, MD along with A Primer on Prostate Cancer by Dr. Stephen B. Strum, MD, FACP And Donna Pogliono.

Sorry Klains. I have been on this site almost daily since late December. I thought these guys were a great bunch, that I actually felt a great deal of respect for. I'm feeling quite disappointed.

I'm not giving up totally as yet. I will however, go back to lurking in the shadows. As I'm sure I have much to learn from these geniuses yet.

Thanks for all the warm welcomes, once again. Wishing you all the best.

Mira
58 yr. old husband dx with PC in Dec.2010
PSA 139.9
Gleason Score 9 (5+4)
Biopsy 12 of 12 cores positive, majority 100%
Stage T3a N0 M0
Treatment HT and IMRT

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/13/2011 1:36 PM (GMT -6)   
Mira,

Please don't drift away. Yes, there are a few here that think they are gifted doctors and research scientists, with special enlightment from some heavenly source, but most of us are just plain every day "Joes", cursed with this cancer ,and this group includes some wonderful wives and women that are here on behalf of their husbands, fathers, brothers, etc.

Don't let the college lectures take away from the fact that Healing Well is a patient to patient support forumn, and yes, we all exhcange knowledge, ideas, experiences, triumphs, failures, etc.

Don't be fooled, there aren't any doctors here, or medical experts. What we share is what we have learned, and when push comes to shove, its opinion, and one person's opinion isn't worth anything more than another, and there are a lot of built in biases and subjectiveness to these opinions.

Stay for the support, even if you don't have the requried degree, lol.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
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