Welcome new member ~ timothy123

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Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2011 3:31 PM (GMT -6)   
In another thread Timothy123 said:

"Hi all,

My name is Ben. My father has undergone the robotic prostatectomy 2 and 1/2 weeks ago. He had a very bad experience. He developed a tear at the connection after surgery somehow. He was in extreme pain for a while due to fluids leaking into his stomach. The surgery was in Rochester, MN. The patient care was not good at all. He was sent home once to end up in the ER the very next day with excruciating pain. The day before his discharge the second time they scanned him to make sure he was healed enough for the catheter to be removed. The nurse came back in and said it looked good and they will remove the catheter. It was removed.

Then the doctor came in moments later and said they were going to keep it in for another week because bleeding was still present and time was needed for further healing. Needless to say, the doctor was shocked when he seen it was already removed. He stormed out and my dad was discharged the next day with unanswered questions as to what really was suppose to happen.

He is home now and feels like he has to go to the bathroom all the time. He is constantly feeling like he has to hold it in. He is not able to get any rest, because as soon as he gets seated down he feels he has to go again and rushes to the bathroom. He had a rather large old blood clot pass while urinating that caused a lot of pain. Now when he pees he says it burns after going for quite some time. The burning is really bad and painfull.

Unfortunately he does not have the internet at home and does not even know how to work a computer. He is getting really depressed and feels nothing is going to get better. He is having trouble dealing with all of this. He has no understanding of what is even supposed to be normal. I am worried!"

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2011 3:42 PM (GMT -6)   
Welcome aboard. This website is loaded with real information from the patients. And you can let your dad know that we have seen hundreds of cases post surgery that things improved with time. incontinence and impotence are no exception to the rule. Time is now necessary to see how well your father will improve.

Sorry that they prematurely pulled the catheter but good on the doctor to notice. Before they attempt to remove it again you might ask to speak to the doctor first to see if all the tests have been completed to verify that the catheter can come out. The typical time for catheter removal post op is from one week to two or three. There is a test that can help determine if there is any leakage of urine. Still when the catheter comes out there may be blood present but it usually improves quickly.

Sorry your dad is not tech savvy, but you are doing great. I would recommend that if your dad can't get to the computer, that he may want to consider a live support group. The largest such group is UsTOO International. I run one of their chapters here in Las Vegas and like this site it is a great resource for your father. You can search local chapters by going to www.ustoo.org. Hopefully, with over 300 chapters, there is one close to your father. There is one in Rochester at the Mayo Clinic.

Let your father know that we are pulling for him and that he should keep his spirits high as we have seen many men come out from under the dark clouds...


Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Da Vinci Surgery ~ 2/17/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 2/15/2011 6:22 PM (GMT -6)   

Glad to have you and your father here, sorry he's having a bad go at it right now. Hope he improves soon. Please keep us posted.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
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