Memorial Sloan Kettering

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Tigerfan53
Veteran Member


Date Joined Jan 2011
Total Posts : 929
   Posted 2/15/2011 5:07 PM (GMT -6)   
Anyone treated at MSK in New York willing to share your experience?

tedgard
Regular Member


Date Joined Feb 2008
Total Posts : 108
   Posted 2/15/2011 6:23 PM (GMT -6)   
I assume from your post that you primary interest is in the experience with MSK, not with PC or other related issues.
I don’t have any experience with MSK, but regardless, I hope you are doing well. If you do have any other interest about other PC related questions, please let us know. There is a lot of folks on this site that can provide a lot of good information.
Ted.
Diagnosis Results – Oct 31, 2007;
•Age – 53 (turned 54 in Nov 2007)
•PSA is 3.83
•Gleason's Grade - 3+3=6, T1C

Surgery Dec 11, 2007;
•Cancer confirmed on Right mid and Left apex
•Both nerve bundles spared, some damage to the Left bundle.
•30 day PSA, .01
•90 day PSA, .00
•Latest PSA, .12
•ED treatments: Levitra, Cialis, Trimix, Erect Aid pump, Penile Implant on 3/12/2009
•Happy

Tigerfan53
Veteran Member


Date Joined Jan 2011
Total Posts : 929
   Posted 2/16/2011 12:16 PM (GMT -6)   
Interested in prostate cancer treatment experience and outcome at MSK
Diagnosed 12/2010  Gleason 6 in 1 of 12 cores  PSA 5.3 Age 53
Trying to make a decision between robotic surgery, brachytherapy, Active surveillance
Looking for any feedback you guys can offer to help with decision
 
 
Diagnosed Dec 2010
PSA 5.3
Biopsy 1 of 12 cores 30% Gleason 6

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 2/16/2011 12:42 PM (GMT -6)   
tigerfan53,

I had my salvage prostatectomy at MSK in March 2008. The care and attention I received from my initial consultation in January 2008 through June 2008 when I was referred to the Cleveland Clinic for further treatments was top rate. The fact that they recognized that MSK wasn't the best place for my reconstructive surgery and recommended Cleveland Clinic goes a long way in my book.

Obviously, I can't say enough good things about my experience there.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 709
   Posted 2/16/2011 8:07 PM (GMT -6)   
I did a great deal of research prior to my DaVinci.  MSK was near the top in ratings. However, I did not go there, as Cleveland is closer, and almost rated as well as Sloan by U.S. News.

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 2/16/2011 10:19 PM (GMT -6)   
If you are near NYC, shop around. MSK is good. But lots of docs are good. They all do good jobs. just go with the package that resonates with you - gives you confidence, etc. I LOVED my time at MSK. They treat you well. I know it sounds crazy, but it's just a first class place in every way...even as a socio-economic demography. but did not have surgery there. But that was insurance stuff. Am I sorry? not at all. had a good doc. great outcome.
paul
Founder, Erectile Dysfunction Foundation and creator of www.franktalk.org The site for erectile dysfunction.

46 at Diagnosis.
Davinci at 47.
Doing fine.

hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 2/17/2011 6:31 AM (GMT -6)   
I had my surgery at MSK in Aug 2008. The Dr I used is no longer with them. Overall I had a very positive experience. I got the feeling that they really cared. I have only the best things to say.
Just keep in mind that, in my opinion, the Dr has a much greater impact on your health than the institution he works for.
Overall I was very pleased with both.

Mike H
Regular Member


Date Joined Jan 2010
Total Posts : 72
   Posted 2/17/2011 6:18 PM (GMT -6)   
I had my surgery at MSK in October 29th 2009.

The care I got was first rate. My PSA has been zero since I had my prostate removed.
I was continent almost immediately and my ED improves daily and everything is great with 25 or 50 mg of Viagra.

I could not ask for a better experience or a better outcome. EVERYONE I came in contact with there is WONDERFUL.

Mike
8/12/09 Diagnosed at 49 years old. DOB. 6/11/60

12/2/00 PSA was 4.9

5/5/03 PSA was 5.4 - Biopsy Negative

6/10/09 PSA hit a all time high of 6.9

7/23/09 Biopsy Positive. 10% cancer in 1 of 12 cores. Gleason 3+3=6.



10/29/09 Surgery at Memorial Sloan Kettering Cancer Center, NYC
11/25/09 Catheter Out (4 weeks)
99% continent the day the catheter came out
Wore the pads for 2 weeks to be safe but had minor drips at most.
12/16/09 First PSA (7 weeks) < .05 Undetectable

Post Surgical Pathology:
Gleason 3+3=6
Tumor confined to prostate
Seminal vesicles not involved
Bladder neck not involved
Surgical margins free of tumor
Lymph nodes not involved

6/16/10 6 Month PSA < .05 Undetectable
1/5/11 12 Month PSA < .05 Undetectable

BillArb
Regular Member


Date Joined Jun 2010
Total Posts : 35
   Posted 2/18/2011 8:56 AM (GMT -6)   
I considered going to Sloan but live on eastern Long Island. I was concerned that the trip back and forth would wear on my wife. I also considered the possibility of post-surgical complications and the difficulty of going back into NYC while dealing with an urgent problem. I finally opted for surgery closer to home with a doctor who has done ~350 RP's.

Mike H
Regular Member


Date Joined Jan 2010
Total Posts : 72
   Posted 2/18/2011 9:17 AM (GMT -6)   
Tigerfan -

Activate your e-mail or e-mail me your phone number if you would like to speak in greater detail. My e-mail is mah7777@aol.com


Mike
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