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natural44
Regular Member


Date Joined Dec 2010
Total Posts : 172
   Posted 2/18/2011 12:11 PM (GMT -6)   
I will try not to sounds crude here but I have some very personal questions and would greatly appreciate any and everyones advice.   I am 4.5 months post RRP  not worried about the cancer (I kicked its ass due to early detection) I have bladder control so no worries there.  I have tried daily cialis no noticable results, tried levitra and vigra and full dose cialis no results as far as a spontanius erection, I do notice nocturnal erections(though they are only about 20% firmness) more on nights with vigra 75-100mg dosages.  I can masterbate to get 60-80% firmness with alot of continued stimulation. Nothing spontanious and not able to maintain for sex without pump and the constriction ring.
 
I am seriously considering at my 6 month appointment with Uro Dr. to request injection therapy for my sex life and to help speed up natural healing of return of spontanious erections. 
So my questions are:
1. If I am getting erections with manual stimulation now...is this a sign that the nerves are starting to come back?/and should this continue to improve to get harder erections and be able to maintain them?
2. If thats the case, then should I just hold off on the injections and let nature take its course?
3. If I am getting this much with stimulation now am I at greater risk of priapism if I start injections?
4. Should I continue daily oral meds if I start injenctions?
 
I refer back to the post about baldness and PCa, I am pulling my hair out over all this!!!  LOL.....
age 44 when diagnosed 45 now
RRP 9-28-10
gleason 3+3
pathology report clear
11-1-10 PSA 0.02
3 month 0.00
bladder control good
Osbon pump works but uncomfortable to use ring
some noctural erections, but not very strong,more like hanging looser and/or lower
tried all oral meds and nothing yet
Dr. R. Saint in Tulsa did my procedure, I do NOT recomend him!!

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/18/2011 12:34 PM (GMT -6)   
Hmmm, in order:
1. Depends, as you may only regain a certain amount of nerve repair, resulting in weak or less erections. Then again, you may return to 100%. At 6 months, still too early to tel.. Wait 18 months, then see
2. MY opinion? It's time to try injections, if you want. There's some research that says early use of injections does the most good to regain function, beyond pills and such. If you're willing to do it, and you want to do it for either therepy or for sex, then there's no reason no to. Again, my opinion.
3. I don't think you would be at risk for priaprism, at any stage, no more so than any other man. You may be the exception, but it's not something that I would worry about....again- my opinion.
4. Yes, continuing the daily oral meds, on the maintence level is fine, it encourages blood flow and such. Lots of doctors say not to mix them with injections at full strength, some say to use them together. That's a question for you and your doctor to discuss.

Some pointers: Discuss with your Uro his experience and course of action in using injections. If he is not that familiar with it, or of the different drugs and options, as far as drug combo's (bimix, trimix, caverject, etc) then maybe you would be better served with finding a ed or reproductive expert, if one is available in your area. The main thi9ng is finding a doc who is willing to work with you, accept suggestions from patients and willing to mix it up to find the best combo for each man. Good luck, and we've got a bunch of first line users here to help guide you along your way. Just ask....
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 2/18/2011 2:16 PM (GMT -6)   
What James said.
 
I'll just add, I don't think the stage you are at impacts your risk of priapism.  I think use of a needle, if not done right, increases the risk.
For me, injections seemed to jump start things a bit.  I found that once I started injections, my results were better even without injections.

lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 2/18/2011 8:20 PM (GMT -6)   

Natural,

I agree totally with James, he did an excellent job with his reply. I will only add one thing in reference to injections. I wish I would have started sooner than I did. I have been on Trimix for about a year now and I am very pleased with the results. I “firmly” believe it has helped my healing process and enabled me to focus on the other aspects of this disease. I love this forum and have found it a good source of encouragement and information. One other thing, I know I said only one, but don’t let the needles bother you. Once you learn how to do the injections, they won’t bother you at all.

Good luck,

Lynn


Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 2/19/2011 6:50 AM (GMT -6)   
Natural: Ditto to all the replys. I started injections just over a year ago and it was the best decision I have made in my recovery. I wish I had started earlier. I did have to fight with the uro to get started on injections.

Best of luck in your quest for wood. I do think the injections have started the engine for me. James you are the man.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
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