Folks, while I am anxiously awaiting my 2 year post da vinci PSA testing, I have decided to make a quick stopover to post something positive to encourage RP newbies.
So far I am still at <.1 (undetectable). Zero incontinence! The ED front has been great. Slowly but surely I am getting there with no medicines. I started with very small improvements. Now, I am performing at about 98% pre da vinci capacity!
What did I do? Nothing major on the incontinence side..just the intial Kegel exercises + regular walking and other exercises and things resolved by themselves. On the ED side, rather than the 'medicines for blood flow' with its attendant headaches and stuffy noses, I tried something else: A daily healthy dose of adult visuals (behind the wife's back of course). It's worked for me. I selected a few that are guranteed to give my 105 year old grand father an erection!
At this rate, I am sure to be fully there after the 2 yr mark.
So patience my friend, patience and try new things.
Next step is PSA on my 2nd anniversary in May! Will be back then with my 2 year report.
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!) failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!
> June 10 - 1year PSA Undetectable!