Slowly but surely........

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IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 2/19/2011 3:22 PM (GMT -6)   
Folks, while I am anxiously awaiting my 2 year post da vinci PSA testing, I have decided to make a quick stopover to post something positive to encourage RP newbies.
 
So far I am  still at <.1 (undetectable). Zero incontinence! The ED front has been great. Slowly but surely I am getting there with no medicines. I started with very small improvements. Now, I am performing at about 98% pre da vinci  capacity!
 
What did I do? Nothing major on the incontinence side..just the intial Kegel exercises + regular walking and other exercises and things resolved by themselves. On the ED side, rather than the 'medicines for blood flow' with its attendant headaches and stuffy noses, I tried something else: A daily healthy dose of adult visuals (behind the wife's back of course). It's worked for me. I selected a few that are guranteed to give my 105 year old grand father an erection!
At this rate, I am sure to be fully there after the 2 yr mark.
 
So patience my friend, patience and try new things.
 
Next step is PSA on my 2nd anniversary in May! Will be back then with my 2 year report.
 
Cheers!
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!
> June 10 - 1year PSA Undetectable!

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 2/19/2011 3:44 PM (GMT -6)   
Great to hear Ike! My 2 year post op will be in May as well but my numbers have not been as good as yours. But I have always been a late bloomer. Thanks for checking in.
Michael

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/19/2011 4:17 PM (GMT -6)   
Ike, good going, but are you saying that **** was your cure for ED?
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 2/19/2011 10:31 PM (GMT -6)   
Thanks Purgatory...Well, the theory is that keeping the blood flowing south is the key to early/full recovery. I am just saying that I chose a non conventional approach that works..and has no adverse side effects...
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!
> June 10 - 1year PSA Undetectable!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/19/2011 10:33 PM (GMT -6)   
ike, no problem, was just trying to understand, can't believe the word por*n was bleeped out, lol
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 2/20/2011 8:56 AM (GMT -6)   
No problem...Maybe I am the only one bold enough to admit this 'therapy'? LOL! I will send you a copy complete with dosage instructions!! LOL!
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!
> June 10 - 1year PSA Undetectable!

MikeS24
Regular Member


Date Joined Oct 2010
Total Posts : 131
   Posted 2/20/2011 1:37 PM (GMT -6)   
Ike:  Who did your surgery?  Also how long did it take to recover continence?  You say no incontinence but was recovery over a time period.  Glad everything went well.  If you tried to do active survellence at Hopkins, they would have actively discouraged you from doing so.  Age 41 is too much time for living to be concerned that some part of the prostate that can't be watched because getting a biopsy needle in the upper reaches of the gland is not possible.  Glad you did not play that "russian roulette" game and take your chances with long term watching.  Hope that PSA remains the big goose egg.  Viagara and a stuffy nose.  Yep, I have experienced that along with light blue vision.  I did not know that the color of the pill went into your eye sockets!!!   At least it is only 4 hours of blue tinted vision. 
Take Care,
Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010
Pathology Gleason 6, Neg Margins, Neg Lymph, Neg Sem Vesicles
9/15/10 1st post op PSA >0.1 undetectable
3/11/11 PSA - TBD
Incontinence - very slow recovery
Aug -Sept 2010 - 4-5 pads
Oct 2010 3 pads
Nov 2010 2 pads
Dec - Feb 2011 1 pad all day - pad at night for some small urge incontinence leaks
ED: slow recovery

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 2/20/2011 1:52 PM (GMT -6)   
I'm willing to concede the images may have helped your recovery from ED to some extent, but I suspect your youthful age had even more to do with it.  I'm 24 years older than you, and at 6 months after surgery not much happening.  It definitely makes sense to me, though, that keeping the libido revved up may be important to regaining sexual function.
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