I agree with much that's been said above, but the problem isn't that the media don't care, or that there are too few reporters.
I earned a living as a reporter, many years ago, and people with a cause have always blamed "the media" for lack of coverage. The reason the media don't cover a story isn't that they don't care, it's because the public doesn't care.
Clocknut is amazed that 300,000 people in Washington marching don't get coverage. Problem is their cause is only shared with relatively few people. The general public pretty much decided long ago that a woman had a right to decide what to do with her body. That's not a political statement. It's just fact. It's not a value judgement. It's just the way things are. A woman deciding may be reprehensible to some, but most just don't care about the issue. And, if John Doe, or Sally Doe don't much care, neither does the media. If the public cared as much as they do about what Tiger Woods is up to off the golf course, the media would be all over it like a dirty shirt. 300,000 passionate people don't make an interesting story in a nation of 308 million people where 300 million don't buy in.
The same is true for PCa. We care passionately, but most people out there don't. PCa doesn't ring their bells. We could have 300,000 people march in Washington and the media wouldn't much care, because their readers don't much care. People look at the media and see Susan Boyle turn into an overnight singing sensation and think it's the media doing it. It's not. It's the public. If the public wasn't totally wired into the Susan Boyle story it would have died instantly, not been dragged on for days.
So, IF a March for Life is ever going to get media attention, IF PCa is ever going to get the attention we'd like it to have, then energy spent blaming the media is energy wasted. The question is, why doesn't the public care? And the issue is, how can we make them care?
NEIrish makes lots of good points. She says, " It took many extraordinary women to speak of their disease, countless times in many venues, meeting the same disinterest, discomfort, lack of understanding that PC survivors find nowadays." It did. My mother is a 50 plus year survivor from back in the days when far fewer survived a radical mastectomy. So, I've watched the BC phenomena with interest. The tipping point, I believe, came NOT from women being out beating their own drum, but when husbands, daughters, children got involved. A special interest group is just that, a special interest group. But when people outside that group, connected to it perhaps, but not part of the passionate core, start to march, bang the drum, speak out, then others outside the passionate core pay attention.
IF we're to ever get big media coverage for PCa, then we must figure out how to follow the example of successful organizations as diverse as BC and The Nature Conservancy (NC) NC has assets of $5.64 billion. It blows Greenpeace out of the water. (Love that metaphor, lol) Look at how the two operate, how they enlist public support, how NC has appeal far beyond the die-hard enviornmental lobby of passionate people.
The key, I believe, isn't spending money advertising. It's a focus on bringing on side mothers and daughters and fathers and sons who don't have PCa. I think trying to do that in a nation of 308 million is a tough sell. I'd find one small town, community, where there was already indication of good support and then build on that in that limited sphere. And, when it was humming, I'd go to the town/community next door and get it going.
The town by town approach may not be the way to success, but I am convinced success for advocacy organizations is directly proportional to how they frame and spin their message in such a way that John and Sally Doe start to care.
Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours. Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn --- perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7
First post op PSA Sept 09 less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010 less than 0.02
PSA on April 9, 2010 less than 0.02
PSA on July 9, 2010 (one year) less than 0.02