Posted 2/25/2011 9:25 PM (GMT -7)
On my 4th of 39 sessions, when the machine hit the 6th of 7 positions, I felt a deep seering burning sensation. Not at the skin or on the outside, but deep inside, about where my bladder would be located. It hurt getting off the table that day, but I managed. The remnant of the pain lasted a good hour afterward.
I told the operators, who dismissed as not being possible, and told me to report it to the Radiation Oncologist when I met her the following Monday.
The Friday treatment, #5, the pain began again as the machine hit that same positon. It hurt worse the 2nd time, and I had a harder time getting back to a seated position on the table before I got off of it. It hurt as I walked back to my car, again, a very deep, seering burning pain, almost like a very long and deep paper cut, that kind of sensation.
When I told the doctor the following Monday, she too said it really wasn't possible to feel anything and to keep her posted.
Long story short, the doctor would not stop the treatments, or investigate the source of the pain, and
as each session went by, week by week, the pains were more intense, and lasted longer. From about the 3rd week on, it would hurt so bad when the zapping ended, it took both operators sometimes to have me seated upright when it was over, and to help me off the table. It was agony somedays to walk back to the parking garage, and some times, the pain would stay with me for hours after.
At first the doctor kept saying no way possible, then later, after my uro called her complaining on my behalf, she finally acknowldge that perhaps some "scattering" of radiation was taking place, despite being done as IMRT. My uro was not convinced.
I should add, that no one should avoid radiation if needed to attempt to stop your cancer if needed. Mine is a bad example of how radiation can be administered wrong. For starters, I never was asked or required to drink water ahead of time, like the majority of men are. I asked the rad. dr. about that before we started, and her words, "I got that covered."
Then end result, I suffered daily severe pain in my bladder and bladder neck for nearly a year after the radiation ended, and ultimately, required the ilieal conduit surgery I had in September, in order to by pass my bladder for good, and urinate through a stoma. It is not reversible.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10