Yes, unfortuantely, I am the king of strictures and such, having worn 21 catheters, both foleys and suprapubic, for a total of almost 1 1/2 years of my first 2 years after my open RP surgery. It was a painful and terrible time. I never had to self cath, as my uro said I wasn't a good candidate for it, plus there were lots of complications. Even after having 6 corrective surgeries to fix the problem, it seemed endless. I was said to be in a small pool of 2-4 per cent of men where it becomes chronic.
After I had radiation, the problem was much worse, but I was on a suprapubic by then, and stayed on it for 51 weeks straight until I finally had a surgery for a Urostomy. Now I will pee from a hole in my side into a bag for the rest of my life.
I wish you well, friend, sometimes it only takes 1 or 2 attempts to get it straightened out. Our friend SubicSquid went through a period like ours, but his was resolved, I believe after the 2nd fix.
Its no fun having an emergency dialation done while at pain level 10, or having some half wit in a local ER trying to put a cath into a guy that is already in pain.
Hopefully your twist will be a blip in your past. Keep us posted.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10