twotimestwo posted as a new member on another thread

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Date Joined Jan 2010
Total Posts : 7078
   Posted 2/24/2011 4:04 PM (GMT -6)   
twotimestwo posted as a new member on another thread
I am a 64 year old RP survivor who had a PSA of 3.8, gleason of 3+3, and in fine health otherwise. I was somewhat disappointed in that my initial post PSA was not Zero as I expected. But it was only .1 . Over the last ten years I have had my PSA checked every 6 months and watched as it ever so slowly crept up to .2 and then .23 six months ago. Last week my PSA had jumped to .48 (a little more than double in 6 months). I was more worried than my surgeon, who was named last month one of the TOP 5 Urological Surgeons in the USA by his peers, and has performed over 6000 RP's.. so I knew I had made the right decision on who and where after I decided on treatment. ( I got 5 opinions prior to surgery,Memorial Sloan Kettering,Cleveland Clinic,Mayo Clinic, M D Anderson, and Johns Hopkins). He says I may have some cancer tissue in my prostate bed, or bladder neck, or worse case scenario, lymph nodes. He is going to re-test the PSA in 10 days to rule out false PSA score. If accurate, He said maybe we talk about a shot of beam radiation. I ruled that out 10 years ago on re-assurance rates and the possibility of the side effects. I have never had one minute of urine leakage and no erectile problems after 4 months..other than I now take Viagra to feel 18 again. This doubling really worries me and radiation therapy worries me even more. Anyone out there with a similar case history that is very positive results?
I'm only 16 months out, and hope to be doing well in ten years - Welcome to HW.

Post Edited (142) : 2/24/2011 3:36:02 PM (GMT-7)

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Date Joined Oct 2008
Total Posts : 25393
   Posted 2/24/2011 5:16 PM (GMT -6)   
Welcome aboard.

Many radiation oncologist would be deeply concerned at this point, as some believe that salvage radiation is most effective if administered below a threshold of .50. You are almost there already, wouldn't take much to push over the line.

The usual thinking, is if there is residual prostate material left, it will show up in your PSA right after surgery, and hover around a fairly small number, i.e. .1 to .2, and then kind of stay there. You have a pretty good doubling rate going on there, if it were me, just my opinion, I would already have been with a good radiation and/or medical oncologist by now, in case your window for a secondary curative treatment is still possible.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Regular Member

Date Joined Jan 2011
Total Posts : 78
   Posted 2/24/2011 6:53 PM (GMT -6)   
"...who was named last month one of the TOP 5 Urological Surgeons in the USA by his peers,..."
I don't have anymore prostates to have removed, but I would be interested and I bet a lot of others on this board might be interested in finding out how to get there hands on such a list.  Anyone have any ideas?
PSA 3.9 - October 2010 at annual physical
PSA 4.1 - November 2010 after a month of antibiotic, DRE Normal
Age 41 in December 2010 at Dx of 6 of 12 cores positive T1C and Gleason 3 + 3

open RP on 2/14/11 at Mass General

Post Surgery Pathology Report: Gleason 6, T2, Cancer in 35% of Prostate, All Margins Clear

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Date Joined Jan 2010
Total Posts : 7078
   Posted 2/24/2011 6:58 PM (GMT -6)   
Ah, the experienced surgeon - in the top 5 last month (Jan 2011?). Once again we get the "other side" of the experience question. Twotimestwo used this surgeon 10 years ago ( 2001).
This doc would not be in the top 5 if he had not learned something somewhere -
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