My AMS 800 activated only 3 weeks ago but I discussed this with my doc. He does not ask his patients to de-activate and further more, he and another doctor, who does recomend nightly de-activtion, did a joint study and the conlusion of the study was there was no statistical advantage. He went on further to say that the study did indicate a "tend" that "could" support nightly de-activation as being helpful but my doc does not ask his patients to de-activate, but he does not discourage it either. So, I there!
Now I have my story about
nightly de-activation, the first day of my devise being activated I had a buring pain the seemed to be from my urethra where the cuff is. So each night I de-activated and a coulpe of times I went 36 hours de-activated, hoping that a rest would help the burning type of pain I had. No one that I have run across have had a burning pain that was not associated with urination and my doc was mildy concerned and said my response to initial activation was not the usual and I should not feel anything like pain.
4 days ago I did not de-activate and I have just left is activated 24hours a day and my pain went away the first day i did that and has not returned. This has me scratching my head wondering why, but mainly I am happy that I can enjoy the devise without worrying about
something ominious going on.
To your question, my logic was not suported by my reality and I don't know what I will do in the future. I will probably try nightly de-activation again.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.
Post Edited (knotreel) : 2/24/2011 7:02:53 PM (GMT-7)