Need advice for post prostatectomy treatment!! HELP!!

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confuzzled
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/4/2011 4:21 AM (GMT -6)   
Hi everyone, in October 2010, my dad was diagnosed with prostate cancer. Here are all the details:

He is 55 years old.

Original diagnosis: Gleason 8 with stage T2B BEFORE the operation.
PSA prior to the operation: 4.5

He had a FULL RADICAL PROSTATECTOMY including the removal of lymph nodes and seminal nerves.

AFTER PROSTATECTOMY staging was T3A with cancer being micrometasticised on one side.

Post operative biopsies revealed that MARGINS AND LYMPH NODES WERE CLEAR.

PSA after the operation: 0.14 (it is steady in this range and has been since 3 weeks after the operation and is still in this region after 11 weeks after the operation, which is now).

My dad’s treating urologist says the cancer has most likely spread outside the pelvic region, more likely, into the blood stream. He did state that no one really knows if my dad still has cancer.

His radiation oncologist says he has an ‘excellent’ chance of being cured with 1 year of hormone therapy and 8 weeks of radiation of the WHOLE PELVIC REGION.

Another medical oncologist from another hospital recommends radiation WITHOUT HORMONE THERAPY.

WHICH WAY TO GO???! We are so confused!! Please be honest with answers!
Is anyone in a similar situation?? Got any suggestions? Thanks!

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 3/4/2011 5:31 AM (GMT -6)   
Welcome Confuzzled. (And dad)

If your dad is 55 then I'm guessing you are a lot younger than most people who find themselves in your situation. Sorry you've got to deal with this at all but being younger can be tougher, but your first post indicates that you have already been getting sound medical advice from the right type of docs.

RT for eight weeks will actually probably be about 39 sessions on week days with what may feel like two days off at the week ends to recover. (RT is not usually a problem to start with but by the end of 8 weeks you can feel very tired.)

As for RT & HT.
If the docs are not sure where the cancerous cells are that have been left behind, they may want to use RT and HT separately (Like mine did).
With me they hoped that the cancerous cells were in the area near the prostate (prostate bed) and they directed my RT at that area. So when my PSA went down after my RT it was reasonable to conclude that they had aimed the RT at the correct place. Had I just been given HT then the PSA would also have gone down regardless of where the cancerous cells were located. (ie the HT would have disguised the effect of the RT)

However there is another scenario where, based on pathology, staging etc, they may conclude that there are probably cancerous cells in the prostate bed and that there likely to be some elsewhere too, and so it will be better to try and treat both problems at the same time and thus use RT and HT together. Thee are many guys here who have been down this road and I am sure they will provide some more details.

Also your dad is only 11 weeks after surgery and I think that many of us would think that he could do with a bit longer to recover from surgery before going through the next part of his treatment.

Also are you in the US and posting late at night or (like me) in a different country and posting in a different time zone? I ask as there are folk here from a variety pf places who may be able to give moore specific support if you are not in the US.

All the best
Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr CT
66Gy 28 Apr to 11 Jun 10
Tired + weird BMs
14 Sep 10 PSA <0.1
12 Jan 11 PSA <0.1
Erection OK

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/4/2011 6:28 AM (GMT -6)   
English Alf- is basically well versed in PCa from what I can see and has words of wisdom that I find well spoken and I like reading his way with the words.

Don't know how much information you know on PCa, have you read or heard things from the major voices on PCa like: Dr. Strum, Barken, Scholz, Lam, Sartor, Myers, Volgelzang, Leibowitz and others that have plenty of experience and have reached out to the PCa community with education over the years with frank discussions no agenda for one to do surgery or radiations, but they also see the value in all protocols used in PCa.

The concensus of these more informed types is this: the doctors don't know exactly where PCa can linger or be, it cannot be totally assessed or found on any scans we currently have (micro mets can go undetectable for years and years). The best scannings we may have available would be Combidex (non-FDA approved) or a new version of that just now in the USA also the useage of color doppler ultrasound by experts is sometimes more useful than other methods is showing suspecious areas.

Dr. Barken has talked about micro mets in some patients that didn't show up until even year 10 in some post opt patients....this is the way it is. It is in effect just plain gambling time on your life (sorry to say) I wish more docs would just tell the blanking truth....hey we don't know we can offer a couple choices for you to consider...but it is all a big gamble and so we want you to think it all over as to what side effects and total amount of protocols you wish to use in fighting it. Instead we get 'sales' pitches on 'I think it is contained' or I believe you have 75% chance of cure or other superlative words. Not to mention the huge profittability of adding SRT and expensive HT protocols that enrich the docs first and put you as the enrichment gambling program., they have a biased vision of what you may need (nasty generalization)...none have guarantees.  I decided to be blunt on this so as to make it clear. You should be informed enough to consider all your options, question everything and always.  There are no simplistic answers..this disease is evolving...we happen to be post stone age...maybe still in the dark ages at this time.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), ct and bone scans looked clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed again and still working

Post Edited (zufus) : 3/4/2011 4:40:47 AM (GMT-7)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/4/2011 8:26 AM (GMT -6)   
I encourage you to question everything and all time...and show me how the expert docs know PCa contained. We have patients on this forum with clear margins, clear everything and told basically in effect you are cured (per se). Some of those unfortunate patients already have BCR...so how did that happen??? Presumeably Dr. Strum et al, are novices in PCa and couldn't know that much???

Recent article is out about uro-docs owning radiation facilities so as to refer you to those.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), ct and bone scans looked clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed again and still working

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 3/4/2011 9:26 AM (GMT -6)   
Here's a little different opinion why HT and SRT are used together, I believe most of the guys have it wrong.  The reason that Ht is used for a couple of months before SRT is started is to weaken the cancer as much as possible.  HT basically takes the food away from PCa(testosterone) so it is in a weakened state for the SRT to go in for the kill and it is then usually continued after the SRT for a substantial period of time to make sure if any cancer cells have escaped in a weakened or wounded state, they are starved to death.  This is your Dad's last chance at a true cure, I'd throw everything at it that I could if it were me.
 
The idea that HT masks the PSA for the time your on it is true I guess but if it weakens the cancer and even kills cells during that time, I'd do the treatment and worry about whether the PSA reading is true or not at a later date.
 
Like myself, your dad has an aggressive form of PCa but it is still beatable.  All of the well known Med. Onc's that I have followed recommend HT with SRT I believe for aggresive cases.  I just received my last shot of HT and it is yet to be seen if I'm cancer free but I know that I have done everything possible to attempt to reach a cure.
 
David
 
 
 
 
 
 
 
 
 
 
 
54 y.o.
Diagnosed 4/10/08

DRE Normal

PSA-5.5

Biopsy- 12 cores, 4 positive highest 4+4=8

Bone scan, CT scan and Chest X-ray clear 4/16/08

Urologist suggested surgery 4/16/08

MRI on 4/24/08 clear no suggestion of lymph node involvement.

4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July. This treatment will not preclude me from surgery if I change my mind.

Decide to have DaVinci surgery after another consult with surgeon.

6/19/08- DaVinci surgery at University of Washington.

6/25/08- Path report, clear margins, no noted extension

9/12/08- PSA <0.02

12/05/08-PSA <0.02 Six months after surgery

3/02/09-PSA <0.02 Nine months after surgery

5/02/09-PSA .10

8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.

12/31/09- SRT completed, still on HT and will be for 2 years, PSA is <0.01

7/30/10- PSA still <0.01, on HT 1 year with 1 to go.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7087
   Posted 3/4/2011 9:41 AM (GMT -6)   
Confuzzled,
 
As you can already see, there are some very strong positions on Radiation and Hormone Therapy.
 
I will stay away from those conversations.
 
My experience (at age 56) was about the same - G 4+4, bilateral, PSA 7.4.
Post surgery was worse, as I had G 4+5, positive margins, and EPE.
 
My PSA did drop to undetectable, but with the extension (EPE) it was presumed my PCa was out, if not yet growing somewhere else.
Based on the coverage (9 of 12 cores all G 3+4 or 4+4) and the Gleason, I was expecting radiation from the start.
 
I did adjuvant radiation (39 sessions) and started the process about 21 weeks after surgery (see my sig link for the details). I did not do HT, having had equally confused opinions on its value at that point. Your case is slightly different, as the PSA has not gone to undetectable, so the case for HT is a bit stronger.
 
However, I'm a patient, not a doctor, so will suggest only that your dad visit with the Uro, the surgeon, a good Radiation Oncologist, and if possible, a Medical Oncologist, then try to sift out the opinions. At least my insurance had no problems paying for multiple opinions, although I was limited in those I could use by my plan. There are so few hard, cold facts in the PCa world that it is, as Zufus reminds us, a Twilight Zone of its own.
 
Welcome to HW, and please ask whatever questions come up.
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3998
   Posted 3/4/2011 10:31 AM (GMT -6)   
>>Had I just been given HT then the PSA would also have gone down regardless of where the cancerous cells were located. (ie the HT would have disguised the effect of the RT)<<
 
i hear this claim made alot on this forum and i believe it's very misleading.  HT also slows/stops the growth of cancer and weakens it while the radiation does it's thing.  
 
ed
 
 


age: 55
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 3/4/2011 10:57 AM (GMT -6)   
F8:
 
I'm with you, living 1963 Todd had mets in the lungs and pelvis before starting HT.  A year later he said his scans were clean, if that's masking I'll take it everytime.
 
David

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1100
   Posted 3/4/2011 11:59 AM (GMT -6)   
The discussion here may make you more confuzzled than you originally were.  That is understandable, as the whole topic is quite confuzzling.  I have something in common with you, as my father also had a serious case of prostate cancer.  With all respect to the knowledgeable and generous people on this board, I would not allow anyone here - including me - to advise you whether your dad should or should not take hormone treatment along with his radiation (or which hormone treatment, or for how long, etc.).   The best advice I can offer is this:  Find the best medical oncologist you can find -- one who specializes in prostate cancer and has enormous experience -- and ask her/him for advice.  Then ask the same question of a really good radiation oncologist -- a true expert -- a specialist in prostate cancer.  Then base your decision (or, I should say, your father's decision) on the medical advice you recieve.  If you tell us where your father lives, and whether he is in a position to travel, someone here can recommend expert docs.  Some on this board tend to have a bias in favor of independent docs -- those not affiliated with large, well-established teaching hospitals.  I have the opposite bias - I like places like Sloan Kettering, MD Andersen, Dana Farber, Mayo, Cleveland Clinic, UCSF, Hopkins, etc.  But you can consider both types and see what you (your dad) feel most comfortable with.  Really, though, the best thing you can do is get top notch, expert medical advice.  Best wishes, medved.

Post Edited (medved) : 3/4/2011 10:02:54 AM (GMT-7)


JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3888
   Posted 3/4/2011 1:19 PM (GMT -6)   
Good luck on your search. I can't advise, but I can share my experience. I did not have surgery, instead I had HDR brachytherapy and IMRT. I was started on HT one month before to start weakening the cancer so that the radiation could be more effective.

My doctor explained that there are various studies and findings that assert that a multiple approach can be better than a singular approach. That is the philosophy my doctors took. Further, my docs all agreed that the more aggressive approach right up front would be the best.

I have completed all the radiation in great shape.I am getting my second Eligard shot in April and also take Jalyn daily. Yes, there are side effects, but they haven't stopped me from enjoying life.

My first PSA reading after treatment was <0.1. So far so good.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010, HDR Brachytherapy 12-6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/4/2011 1:48 PM (GMT -6)   
Stevo- I got 8 opinions, I was lied to, given bias and saw agendas, I also found some great doctors among that mix including Dr. Menon whom refused surgery on me and was correct in so doing, the other prior surgeon was told me I would be cured and 1% chance of incontinence(I saw him first and fired him immediately), that is why I got 6 more opinions...to bad I couldn't tape for everyone.

So this is not my imagination, plus I have been around forums for 9 years, and seen plenty. You would be surprized at what goes on sometimes, not all the time...but people should be aware.

We had one guy awhile back whom got a botched surgery on DaVinci, his doc lied to him and try to cover up the error...and shipped him to his pal whom does SRT radiations, but that doc told the patient the truth of the matter...and he is now envolved in a lawsuit. But, hey this never happens in PCa. Basically the short concept...is it ever stupid to get second opinions before jumping to any major treatment?

Hey if you wish to sugar coat PCa as all good and no bias's...please take the floor.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), ct and bone scans looked clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed again and still working

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/4/2011 2:59 PM (GMT -6)   
Zufus and Steve. I see both sides of your argument and understand where you are coming from.

Zufus, your skepticism and general distrust of doctors is legendary here. We get it, New people coming here really don't need horror stories of your experiences thrust upon them in the first post you make to them. The concept of replying to every poster with your dire warnings of how doctors are unscrupulous and not to be trust is wrong, that's the wrong was to approach the subject. Telling them to question all treatment discussions implies that they should approach every doctor with mistrust and skepticism, when we know you really mean to question and make sure you understand what they are telling you, the drawbacks, etc. Two different approachs entirely. Yes, there are bad doctors, but there are many, many more good doctors and for each guy here with a bad experience here there's 10 others with good ones. I really think that throwing out the vibes of 'they're all crooks, watch out for them, never trust them" doesn't have a place here. You accuse Steve of sugar coating, I don't see that at all. Telling people to make sure they understand things, with questions, etc, getting second opinions, things like that is logical and correct, and doom and gloom in every post isn't. How about reining it back some with the doom and gloom side of it, ok?

Steve, I appreciate what you said, but you have a really bad way of saying it. Your post is a major flame from start to finish. I understand how we can sometimes lose it, not having a good day, feeling bad etc. but we need to take a minute to reread what we are getting ready to post, to avoid unnecessarily flaming or insulting. If you felt/feel so strongly then maybe the best thing to do would have been to email zufus and you two could have a private discussion about it. Sorry, but I gotta do some editing out of Rule 4 violations. At least zufus did have a chance to read and respond before I got to it. devil

4. No posts that attack, insult, "flame", defame, or abuse members or non-members. Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member. Decisions about health and well-being are highly personal, individual choices. "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 3/4/2011 4:27 PM (GMT -6)   
Confuzzled has to be more confused than the people who spin around baseball bats then try to walk.This person has come here looking for some advice,which he did get, and not a dissertation on how crocked or money grubbing one's doctor can be. One bad experience,and bad it was, does not condemn a whole profession.
Confuzzled ask all the question you can from info you see here. Write them down so you will remember. When I go to the Doc's,I always take my wife because women always ask more questions then men. That and I can't remember squat!!!
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 24gms
Biopsy 12 cores with 7 positive- left base,right base,left mid gland,right mid gland, left apex.
Gleason score of 7
First PSA 38.7 on10/05/2010
Second PSA 49.9 on11/23/2010
CT negative
Bone scan Negative
daVinci RRP on 01/25/2011 by Dr Mark G Delworth at Bethesda North Hospital.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7087
   Posted 3/4/2011 4:37 PM (GMT -6)   
Confuzzled - a suggestion that is in notes at the top of the forum, but ...
 
Get your dad to carry a small recorder (if you don't have one already, a small digital one would let him upload the files on the computer). With permission of the doctor(s), this can be a great tool. I recorded all my sessions pre-surgery, and going back days or weeks later and listing again, there were many things said that simply went over my head because of the shock of the moment. Even if someone goes with him, I think it is valuable. Regardless of what we remember hearing ....

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/4/2011 5:24 PM (GMT -6)   
Ok, James C. I will take your advice and consider you to be fairminded, even if I might wish to debate a couple small points, no point in that.  I don't wish Steve any harm even in a hotly debatable subject and some nice digs.  So hows this:  I will no longer put up any hotly debatable topics or information.  You will probably see me as a cheer leader if I respond to something. cool
 
To the poster, good hunting to you in your quest for best answers.
 
 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/4/2011 6:10 PM (GMT -6)   
zufus says:
So hows this: I will no longer put up any hotly debatable topics or information.

No, you will not stop contributing debatable topics or information, that wasn't what I meant at all. I only addressed one small area of your posting history, not trying to muzzle you or anything like that. It's just the doctor bashing and warnings of how they don't have the patients best interest in mind when planning treatments. That's all, nothing more, just the single item,

scool
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2011 6:19 PM (GMT -6)   
zufus, ive known you a good while now, and i respect your unique knowledge base, as I do posts from JohnT. I agree with JamesC on this one, he is only talking about one particular aspects in your posts, not against the good that you do here at HW. We who have known you a good while, can work through the rest of it, because we know where you are coming from, but to some new, it could send all the wrong signals. And I know, you want to help, as you have been doing a long time.

Keep up the good work, brother. It's a tough fight we fight.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

confuzzled
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/4/2011 7:05 PM (GMT -6)   
Thank you all for replying! I wasn't expecting so many replies overnight! I've read every single one of your posts and I thank you. It is a confusing time but all of your support has helped already.

In reply to questionaboutit, it is mets on one side because it is 4mm out of the prostate with 1mm clear from the margin.

In reply to English Alf, yes I'm from a different time zone, I'm from Australia ;)

You have no idea how many doctors my dad has seen, basically everyday, getting different opinions non-stop! The funny thing is, the radiation oncologist and his treating urologist, they were in the same meeting room discussing my dad's prognosis and treatments, and they're the two doctors with totally opposite opinions. My dad is going to continue talking to a few doctors to ask why their opinions differed. Well I guess the answer is, no one really knows how to treat this, not even doctors. It's all up to the patient, right? A decision has to be made.

Another thing is, my dad's treating urologist has said that no studies have been done for people in my dad's situation, i.e. post prostatectomy and using hormone therapy with radiation therapy. So, the doctors are going on theory here! That HT weakens the cancer and then radiation kills it. We'll have to wait and see. Am I confuzzled again? I think yes, but a little less confuzzled than before thanks to every one of you :)

Thanks again everyone! Good luck to you all as well with your treatments :) Will hopefully keep you posted.

Confuzzled

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3895
   Posted 3/4/2011 7:53 PM (GMT -6)   
Yes, studies have been done showing HT increases the effectiveness of radiation treatment..I guarantee you I would not be on HT otherwise..

esciencenews.com/articles/2008/09/22/radiation.added.hormone.therapy.increases.survival.men.with.prostate.cancer

www.ncbi.nlm.nih.gov/pubmed/16378903

www.prostate-cancer.com/radiation/survival-rates/survival-rates-radiation-hormone-therapy.html

Post Edited (Fairwind) : 3/4/2011 6:01:41 PM (GMT-7)


MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 3/4/2011 9:59 PM (GMT -6)   
Confuzzled,

I don't think you are as confused as your name implies. Sounds like you and your Dad together, have a pretty good handle on this situation. The fact that there are so many variables involved in each specific case, is what makes choosing a treatment for this particular cancer such a weighty decision.

From your post above it seems like you are taking all the appropriate steps to becoming as informed as possible. From there it's just a matter of sorting through all that (conflicting) information and choosing what's best in your particular case.

This is a great place for you to have come. There is a lot of good information to be gleaned, albeit, different, and opposing view points as well. Not to mention the moral support, comfort, and inspirational aspects. Emotions run high at times, but isn't that to be expected?

Though I am relatively new here myself I bid you welcome, and wish the best to you and your Dad.

MiraBeau
58 yr. old husband dx with PC in Dec.2010
PSA 139.9
Gleason Score 9 (5+4)
Biopsy 12 of 12 cores positive, majority 100%
Stage T3a N0 M0
Treatment HT and IMRT

MiraBeau
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 3/4/2011 11:16 PM (GMT -6)   
Questionaboutit,

In response to your dental analogy, I just have to comment.

When I was very young, married, raising a family, broke, and without dental insurance, this is what happened, true story!

The dentist down the street sent out coupons offering free cleaning and ex-rays to new patients. I decided to take advantage since it had been awhile since I had a cleaning. Having always practiced impeccable oral hygiene, and not having any noticeable problems, I was not prepared for the news I got that day. Eight cavities! I was beside myself. I could not afford a dental bill of any amount at this time in my life. I never went back.

Approximately 1 to 2 years later, we were living in a different area, and had acquired dental insurance. I made an appt. with a new dentist and after cleaning and ex-rays this time, I was expecting to be told about needing at least 8 fillings. Instead, the dentist said all was good, perfect, in fact.

I began to cry in relief, and explained why. To think that if I had the money at the time I saw that other dentist, he would have drilled my perfect teeth full of holes, and I being young, and naive would have never known the difference. Thank Goodness for our being so broke during that time!!!
58 yr. old husband dx with PC in Dec.2010
PSA 139.9
Gleason Score 9 (5+4)
Biopsy 12 of 12 cores positive, majority 100%
Stage T3a N0 M0
Treatment HT and IMRT
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