SRT Recovery question

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compiler
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Date Joined Nov 2009
Total Posts : 7205
   Posted 3/5/2011 8:26 AM (GMT -6)   
For those who have had SRT, I have a question.
 
It looks like I will be doing about 8 weeks worth, starting on March 22, roughly.
 
I have contracted again to grade AP Calculus tests. This will occur 6/8-6/15 in KC. Basically, I fly down there and I am busy grading for 7-8 days. They will be booking/covering my flight, of course.
 
I would like to do this as it has always been a very enjoyable experience, but I am wondering if I should back out. I need to have my mind clear and have good mental acuity to do this. I am concerned about fatigue and other side effects. I would hate to have them set up my flight and then I cancel, although I am sure it happens. Any thoughts?
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64. Surgery: Dr. Menon @Ford Hospital, 1/26/10. Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- yes.. PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06; 1/4/11-0.13,3/1/11--0.27

Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 3/5/2011 8:35 AM (GMT -6)   
Mel,  I didn't have any fatigue problems during or after SRT.  In fact I was a little on the hyper side and increased my gym workout levels a good bit during SRT and am still maintaining a high activity level.  If you are in reasonably good shape you shouldn't have any problems.
 
Carlos
Dx 2/2008, age 71, PSA 9.1, G8,T1c. daVinci surgery 5/2008, G8(5+3), pT2c. LFPF, good QOL. PSA <0.1 for 2 yrs. PSA rose to .2 at 30 months, Completed SRT 2/2011. PSA 0.1 at 3 wks post SRT.

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 3/5/2011 8:39 AM (GMT -6)   
 
 
Mel,
 
I also did not have any problems with fatigue during my SRT sessions, continued to played tennis 5 days a week. 
 
Jerry1 
Age 71 DX 8/13/08, PSA 4.0 Biopsy 14 samples , 1 positive, Gleason 4+4 - Da Vinci 10/17/08 organ confined, no positive margins or lymph nodes, both nerve bundles taken. Gleason 4+4, PT2A
Cath out 10/29/08 dry 11/19/08
First PSA 3/6/09 >0.1- 3/6/09 0.0, 6/3/09 0.1, 10/15/09 0.3, 12/14/09 0.5. IMRT 1/18/10 First PSA 1.5, 7/8/10 1.9, (not good IMRT a failure)
9/3/10 2.4 11/2/10 3.3 1/7/11 3.5

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 3/5/2011 8:40 AM (GMT -6)   
Mel,
 
I did not suffer (as best I can tell, and no issues at work :-) ) from any loss of mental function. I was still working a full day, with a shift to allow for the sessions.
 
What I saw was fatigue. I got to the point at the end where I had to take a nap at noon if I wanted to be awake at 7pm. My usual 11-midnight bedtime became 9pm at the latest.
 
It wasn't that I would be overly tired. I just simply dropped in my tracks. I'd sit down for a minute and wake up two hours later.
 
I've heard others who had the same impact, and yet others who did not suffer fatigue at all (talking to the others that I waited with each day). The odds are that yours won't be as bad as mine, but you won't know until about half way through, maybe later.
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 3/5/2011 8:43 AM (GMT -6)   
I just finished up 2 weeks ago. The last week or so I felt tired in the afternoon, but there was no major problem or anything.. in fact, I almost enjoyed the fact I was tired and could take a nap if I wanted.

So I certainly wouldn't consider it a debilitating ordeal, at least not for me. You likely wont have "A" moment where all of a sudden you dont feel good, or are exhausted.

GO FOR IT!

Good luck.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 3/5/2011 8:58 AM (GMT -6)   
Mel.
SRT seems to effect different people to different degrees.

Fatigue for me was more physical than mental. When I was half way through my RT I had to stop walking from the train station to the hospital and back each day and catch the bus (about a mile each way), but I never needed an afternoon nap, and was still able to do things that required concentration. Biggest problem I had was the increase in urgency and frequency for both pee and BMs.

Now, if you were planning to go down to run a marathon every day for a week in June, then I'd suggest that you might find it hard, but as the limit approaches June I'd guess your mental ability will tend towards infinity.

Alf

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/5/2011 10:01 AM (GMT -6)   
Mel,

No way anyone can really answer this clearly. Fatigue is so different person to person. It hit me hard and fast, and I am still in physical therapy 15 months after srt ended (but other complications in my case). Be kind of hard for you know how you are going to feel in June. You may feel good as new, or as dead as a doorknob. Your know your body best.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/5/2011 10:08 AM (GMT -6)   
Meil,
There are preventive steps. While most of the guys who do ART or SRT only experience slight side effects, there are cases that it can be more pronounced. I was on the table at 7:00am, home bt 8:00. Then I grabbed a water bottle and walked 3 miles. I never noticed my slight fatigue until after I was done with the therapy and started feeling more energy.

If the walking didn't help fight off fatigue ~ it good for me anyway...

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3747
   Posted 3/5/2011 11:15 AM (GMT -6)   
I just finished 40 SRT treatments (Varian RapidArc) 72Gy, and it pretty much a non event..Urinary frequency and urgency increased a little (it's now subsiding) and a little minor rectal irritation..These two side-effects had no impact on my activity.

In Denver where I was treated, there is a surplus of Linac's (Linear accelerators, treatment machines) available and since this is a VERY high profit service, (each of my 40 fifteen minute treatments was billed at around $2400) they will go to some length to accommodate YOUR work schedule..It's YOUR MONEY, you tell them when you would like to be treated. If they can not accommodate you, perhaps another treatment center or hospital can...

Of course, if they have patients waiting on line, that won't work...
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3802
   Posted 3/5/2011 11:21 AM (GMT -6)   
Fairwind --- business was "slow" at my radiation clinic too which meant they filled the earlier slots first and closed as early as possible every day.  they're not going to have six staffers hanging around because you want your appointment and hour after the last one scheduled.
 
they made an exception a couple of times when my wife wanted to be present but they didn't like doing it.
 
ed
 
 
age: 55
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/5/2011 11:22 AM (GMT -6)   
Fairwind:
 
As you probably recall, that's the equipment I'll be using.
 
We don't have that many facilities here, plus this is the only one with this latest equipment. This hospital is the main medical center for all of Mid-Michigan. It has a very good reputation. It is a 10 minute maximum drive from my house or my work.
 
I know they TRY and accomodate you. We shall see. My schedule really dictates a late afternoon SRT session. I have heard that most folks want the morning sessions, so I might be in luck
 
Mel

142
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Date Joined Jan 2010
Total Posts : 6949
   Posted 3/5/2011 11:26 AM (GMT -6)   
Speaking of schedule, my clinic offered a choice of time slots, and preferred that I chose just one time - makes everybody else's schedule easier.
Mine was a set time, and I remember very few changes.
Once, the guy before me was late, so they offered to start early, but since my water bomb hadn't had enough time, we skipped that.

Another day there was a computer outage, and I had to either go much later, or skip a day.

And a few times they were seeing new clients, and things unexpectedly took longer. But overall, I think only 5 or 6 sessions were off-schedule, and most of those only 10-15 minutes.

I had allowed a two hour window in my work schedule to allow for slippage, weather, etc., and only went totally off one day.
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/5/2011 2:01 PM (GMT -6)   
Fatigue was not an issue for me. We went to Disneyland immediately after treatments ended, and I was full steam ahead. I did have to use the facilities more often than usual, though, due to radiation proctitis.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) Jan-Mar 2007
PSA 9/2007 and thereafter <0.1
pcabefore50.blogspot.com

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/5/2011 3:51 PM (GMT -6)   
Yes, they definitely want to schedule me the same time every day.
 
My problem is my teaching schedule varies quite a bit each day.
 
But I am free after 4:00 PM each day, or at 8:00-8:45 AM, which I hate (I am NOT a morning person!)
 
Mel

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3753
   Posted 3/5/2011 6:44 PM (GMT -6)   
Mel,

You will do fine. I suffered no fatigue, only slightly increased urinary and bowel activity, but no problems....just increased frequency and urgency. This set in at week three and ended about two weeks after the last treatment. I also had two high dose radiation treatments. They gave me more side effects as they were physically intrusive.

My scheduling worked well as I had the last time of the day at 5:45 on my way home from work. My center was very busy and they posted a wish list and did what they could do to fullfill. Remember that people are ending and starting nearly every day, so if you don't get your preferred time at first, you may get it soon enough.

You should be done in time for your Kansas City trip and should be free of side effects by then. As Tony said, pick up the physical activity as much as possible. I found that cutting back on caffine and animal fats helped considerably for both energy and lessening of the side effects.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010, HDR Brachytherapy 12-6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 3/5/2011 7:39 PM (GMT -6)   
Fairwind,
    Where did you go in Denver?  I'm from Greeley, and I fear that SRT is in my future.  I had inquired about doing proton therapy in either Loma Linda or Jacksonville because of the reduced risk of side effects,  but that is 2 months away from home.  My employer is ok with me working form wherever, but I would rather stay close to home if the side effects are not too terrible and are not permanent.
                    Thanks,
                              Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 3/5/2011 9:46 PM (GMT -6)   
Mel

I have 11 sessions left on the Varian machine and have noticed no side effects at all. Other than they make you drink decaf coffee instead of regular. I arrive at 8:25 am, change, on the table at 8:30, off at 8:35, change back and out the door.

I have lost 10 pounds because I actually seem to have more energy so am working some fat off. I'm working from home in a 2 story house and go and down the stairs at least 20 times a day. And drinking lots of water.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3747
   Posted 3/5/2011 10:00 PM (GMT -6)   
I had my treatments done at St. Antony's Central, but that hospital is closing and moving to Green Mountain, just west of the Federal Center..Their two top radiation oncologists quit and opened their own treatment centers with the latest equipment.. My R-doc is a partner in this new operation called Red Rocks Radiation Oncology Center..If impressive surroundings could cure cancer, this would be the only place to go..It's on Indiana St. just off west 6th avenue. A First Class operation..But if your insurance will cover it, enjoy the ride..My doctors name is Kevin S. a workaholic, aggressive, with a somewhat poor bedside manner who knows exactly what he can do and what he can't do and is not afraid to tell you exactly what to expect...He is very proud of his new facility and he worked very hard to get there..He was the Director of Radiation Oncology at St Anthony's and that's how I connected with him..They have the newest $8M Varian RapidArc machine..

Since the cost to me was the same, I wanted to be treated on the latest, most accurate equipment. TUCC, The Urology Center of Colorado did not have that equipment so I moved to St. Anthony's which had the latest Varian Trilogy Novalis RapidArc machine..(what a mouthful). This machine puts the full prescribed dose on the intended target while greatly reducing the exposure to healthy tissue.. My only side effects have been increased urinary urgency and frequency (started at about the half way point) and towards the end, a little rectal irritation, nothing major..My treatment ended about 3 weeks ago and the symptoms are fading away, the rectal irritation gone and the urinary frequency slowly returning to normal...

I just thought of something..My R-docs partner, Dr Gardner, much better bed-side manner, just as aggressive, works out of a new treatment center in Thornton, much closer to you if you must commute from Greeley..I believe his shop also has the new Varian Linac..
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 3/6/2011 1:14 PM (GMT -6)   
Thanks, Fairwind. I will definitely check out Dr. Gardner.
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/7/2011 7:51 AM (GMT -6)   
Mel,

As with most things PCa related, outcomes, reactions, etc. vary greatly as you have seen and see here.

I finished RT on Jan 15th. I did have some mild fatigue during the latter half of the treatments and like others enjoyed the afternoon naps. I also had issues with increased urgency for a while following the RT.

Your questions about your trip had me go back and look at my post treatment scheduling.

You should finish treatment about May 22 and leave for your trip about two weeks later. I finished treatment about Jan 15th and from Feb 1st through March 31 I umpired 51 high school and college softball games. So I guess you could say that I did not suffer any fatigue after the treatment.

The urgency issues were a non issue, but I still took precautions with pads, just in case.

I know that you exercise regularly and eat healthy, so my non-medical, educated guess would be that the trip will be a non-issue. Why don't you take this one off your worry list before it becomes a self-fulfilling prophecy.

Hey you know me and my mantra "Every Day is A Bonus", so look at the trip as a change of pace, change of scenery, and a part of your life you enjoy. The key is and will always be "Living Life" and putting up with PCa is just part of it.

Best of luck brother,

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 3/7/2011 8:26 AM (GMT -6)   

Mel:

I stated in an earlier post that I took some time off from my position after the completion of radiation.  It was more a mental break than a physical need caused by the radiation.  I too believe in exercise, a healthy living and eating lifestyle.  It had been such an intense term at school (I was an adminstrator)and hence I chose to give myself a break.  The first thing I did was plan a trip in January and again another in March.  Both of these vacations helped refresh my mental state and were extremely uplifting. I returned to work in March with the same vigor that I always had. Of course the radiation caused some fatigue and naps helped,  usually just before dinner and then I went to my gym in the evening. All through my treatment I faithfully attended the gym even if my workouts might have been somewhat less in intensity.

The point of my previous post was not to convey that the RT "did me in". Many factors contributed to this, of which R. therapy played a minor role.  It was to show you that if you feel you need to take time off from your work schedule, then your employer will be more than understanding.  Mine were very supportive of whatever I chose to do. So you should be fine to travel following RT based on my experience.

I did not have urgency issues other than holding a full bladder of two bottles of water through the 15 minute R treatment.  Extreme temporary urgency barely got me to the washroom the moment I got off of the table.  Washrooms are conveniently placed right outside the treatment rooms.  Loose BM's continued for about a year or less for me but they were not necessarily out of my control.  One thing is, is that you will scout out where washrooms are wherever you happen to be during and following treatments.  No big deal though when you consider the benefits of the treatment.  Unfortunately mine failed and I am now on HT which is certainly controlling my Pca.


Age 59 at Diagnosis 62 now
01/08 PSA 4.17 DRE showed node
03/08 RP - pT3a 10% ca / Nerve Sparing, margins clear, no invasion
Continent 3 weeks post surgery / ED
06/08 until 08/09 PSA 0.01
08/09 PSA .14
09/09 SRT / 36 treatments
01/10 PSA .13
08/11/10 PSA 3.44 T = 25.0
30/11/10 Zoladex ADT
24/02/11 PSA <.04 T = 1.0

maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 3/7/2011 6:38 PM (GMT -6)   
Mel, I had no fatigue until the latter end of my treatment, even then, a 1 hour afternoon nap got me through ok, but if I had something to do, I managed to do it ok, the treatment brought about a change in my BM, which still affects me to this day, everyone is different, but I am sure you will be ok.

Best Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA from 30th April 08, until now range- 0.5 to 0.6, I am now 70

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/7/2011 8:37 PM (GMT -6)   
Mal:
 
I sent you an email question
 
Mel

maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 3/7/2011 11:11 PM (GMT -6)   
Hi mate, just replied.

Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA from 30th April 08, until now range- 0.5 to 0.6, I am now 70
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