Post AMS Activation, Weights and Y

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tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 3/5/2011 9:41 AM (GMT -6)   
Scheduled for AUS activation Weds 3/9 and will also discuss with Surgeon
I have read Bikes are the best thing to use post activation.
 
What about weight lifting
   Squats
   Lunges
 
Are there any others which could be a problem
   Crunches
   Lifting in General
  Others.
 
It has been too many months since I did those - so will take it easy and use machines before free weights.
 
Any suggestions or feedback
 
Thanks
Tom
 
 
Prostrate Cancer 2001 RP 51 years old
PSA 6.8 Gleason 3 + 2 40% T3bNxMo moderately differentiated adenocarcinoma
RP - cancer in apex area contained but nerve sparing was not successful
Bulking using both collagen and teflex unsuccessful for continence
AMS 800 AUS installed 1/22/2011

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 3/5/2011 4:43 PM (GMT -6)   
I asked about bikes, answer- it won't hurt anything, however, sitting on a bike seat, the cuff may (will) deflate. Then you will be leaking again. I have experienced this a few times just sitting on the wrong type of chair. And about chairs, my doc sugested that if you are in doubt about if you have accidentially deflated the cuff, then before you get up, roll up on one butt cheek for a minute or so before you get up so that the cuff can reinflate a some. I hope you like your AUS as much as I like mine. It feels so natural to walk around without pads or leg bags that sometimes i forget and try to pee without opening the cuff. That is not very comfortable to do. I am hoping my bladder will get used to having some urine in it so that I can increase my capacity so i can go longer but that may be difficult without the bladder outlet sphincter that we lost. Well, your big "activation" will take something like 2-3 seconds and you might ask your doc. is it done? like I did. There ought to be some sort of fan fare but it is over before your pants get to your knees. Then I walked around for 30 min or so wondering is it really working? It was and yours will too! I am excited for you, myself having been activated just three weeks ago. Please report how it went! I say good luck but I think luck is out of the picture at this point, you won't need it.
Ron

Post Edited (knotreel) : 3/5/2011 3:46:31 PM (GMT-7)


davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 3/5/2011 4:54 PM (GMT -6)   
I had done all those things but then someone here mentioned I was doing too much too quickly and told me to imagine having a catheter back in for a month. SO I stopped and for now am sticking only with running and soccer. I did do a spin, class. Wasn't a big deal. Those seats were always uncomfortable anyway.

lowandslow
Regular Member


Date Joined Jan 2011
Total Posts : 122
   Posted 3/6/2011 6:53 AM (GMT -6)   
tvw, Who did your original prostatectomy?

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 3/6/2011 8:56 AM (GMT -6)   
The original surgeon who did RP  was Dr C. J. and was done in Lima Memorial.
The Surgeon had a string of bad luck afterwards - his wife developed cancer and he developed a nonmalignant brain tumour
The tumour removal caused him some health issue (didn't affect his practice) but then he fell and had additional brain trauma.
He retired - really liked him, very intelligent, very caring and conservative but was into doing studies with NIH on alternatives.
 

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 3/6/2011 2:36 PM (GMT -6)   
I have stayed mainly with treadmill and multi gym weight set. Good common sense and listening to your body plus start slow and work up gradually was what my doc advised.
Know you must be excited. A long journey but you are almost there and it will be a great day.
I just had my six month checkup and you probably read my report on other posts. Don't be surprised if you have some residual leaking (a few drops) after you pee....unless you are patient enough to wait a couple of minutes. Also if you stress with some heavy lifting or something like a full golf swing you may leak a little. A relatively full bladder may put more pressure on the cuff and have a tendency to leak if stressed. I just plan to go every 2-3 hours since my bladder does not seem to hold a lot. 200-300 ml max and most of the time I am betweet 100-200ml.
You will soon be all smiles....dry ones!
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 3/6/2011 2:45 PM (GMT -6)   
TVW,
Forgot to mention, ask your doc about this question we have been debating......to deactivate or not at night or just leave the sucker on all the time? Pros and cons?
As you may have noticed on my other thread, I had not even deactivated mine after the activation six months ago. I just did it this morning just to know I could and it worked fine. I had my doc demonstrate last week for my six month checkup. I had forgotten the exact instructions and the AMS 800 brochure does not explain the reactivation correctly.
Carl
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 3/7/2011 7:46 AM (GMT -6)   
tvohio,

Good luck on Wednesday. As you can tell from the posts, there are many satisfied users and I am one of them.

As I am not into weightlifting or cycling, I can't respond to those questions; however, I can say that I have experienced activating my AUS by sitting down or getting into my truck. I have realized to avoid that from happening, I just take a little more time to do those things.

Wigs
Diagnosed @ age 46 - September 1997 - PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007 - PSA 2.7 - July 2007 - PSA 3.0 - November 2007
Diagnosed @ age 57 - December 2007 - Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 3/8/2011 6:41 PM (GMT -6)   
Where are you tvw? Did you get your little majic button working today? We need a report!
Carl
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 3/8/2011 7:04 PM (GMT -6)   
Official Turn on - hopefully not blast off is tomorrow 3/9 @ 11:00AM
Preop review 10:30 and Dr Montague or his resident presses the button and hopefully doesn't misjudge or abuse the other occupant of that sac.
 
Excited about my new toy, hope it works as well as most of your does
 
May not report until Thursday night - I have 3 1/2hr drive home tomorrow.
I have my pain pills and assorted pads to try.
 
Thanks to ALL of you Great Guys for  your support, advise and concern
 
Tom  & Jo , my wife will be just as happy if this works since I am  only one using pads at home now except Grandkids under 3.
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