18 months post Da Vinci

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reachout
Veteran Member


Date Joined May 2009
Total Posts : 725
   Posted 3/7/2011 4:13 PM (GMT -6)   
Well, what do you know, it's already been 18 months since my Da Vinci, though at times it seems lime many years ago. I don't have breaking news to report, as I did in the first few months, but would like to reassure those who go through surgery that it's just as the doctors say (for most of us). The worst side effects are felt soon after the surgery, and things gradually,but constantly, improve with time.

Looking back, any pain or discomfort episodes were mostly gone after one month, and completely gone after 3. The catheter was the worst, not for pain per se but for discomfort, but that is a vague memory now. I was lucky about never needing pads, but what small leaking I had improved through the first 6 months. Today I still have a bit of leakage, but only when I make a mistake and laugh or push down too hard without first tightening my kegel muscles. It's so second nature now that I don't evemthink about it.

OK, about sex ;). As you know, I'm on trimix. I don't care what anyone tells you, if you are like 90% of us, this surgery will leave you unable to get a natural erection for a very long time. Now, without getting into details, there are ways around that but I'll leave that to the imagination. For me, I went on Trimix after 5 or 6 months and it was difficult at first because of the ache. I was told by others on this site and by my doctors to have patience, adjust the level and give it time. That is correct! Even though I occasionally have a natural erection in the morning, it only lasts for a minute or two. What I've found, though, is that the Trimix continues to work even better. I don't have nearly the ache I did at first, and the sections from Trimix almost feel natural -- actually, better than natural given my age ;). Forget spontaneous sex with my wife, but substitute nicely planned occasions that are even better than before the surgery.

Note I didn't mention Prostate Cancer. The best thing is that, with time, the periodic PSAs don't produce anxiety and, if it comes back, I will deal with it then. My last PSA was 0 and I'm due for another one at the end if this month but hey, I have a lot of golf to play between now and then.

May God bless all of you on this board, whom I consider my brothers in the battle against this awful disease. If not for this board I would have had a much worst struggle. May your experience of recovery be as good or better than mine.

reachout
Veteran Member


Date Joined May 2009
Total Posts : 725
   Posted 3/7/2011 4:16 PM (GMT -6)   
Correction: I meant "erections with Trimix," not "sections with Trimix.". The iPad spell checker got me again.
Age: 66
Pre-surgery PSA: 7 tests over 2 years bounced around from 2.6 to 5.6
Biopsy 8 of 12 positive, Gleason 3+4, T2a
DaVinci August 2009, pathology Gleason 4+3, neg margins, T2c
Post-surgery PSA one year of zeros.
Continent right away.
Viagra and other pills only gave me headache
Trimix working great!

In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/7/2011 4:17 PM (GMT -6)   
Awesome!! Thanks for the report and perspective.
CareBear

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 3/7/2011 4:58 PM (GMT -6)   
Thanks for the Update and happy that all goes well for you my friend. Enjoy the golfing!
Michael

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 3/7/2011 5:07 PM (GMT -6)   
That made my day better.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 3/7/2011 7:53 PM (GMT -6)   
I'm with you on this one. I'm on trimix as well (nerve bundles were removed). I can live with that. As long as I'm in the zero club I'm happy playing golf and enjoying my family and sports.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 3/7/2011 8:10 PM (GMT -6)   

Excellent report, I’m glad you’re doing so well. My story is very similar to yours; things do get better with time, and that Trimix is really amazing stuff.

Lynn


Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/7/2011 8:23 PM (GMT -6)   
Like hearing about happy endings too in the world of PC, what a great report
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/8/2011 10:02 AM (GMT -6)   
Thanks for the update, glad to see things are continuing to go well for you.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc
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