Three year update

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 3/14/2011 6:48 PM (GMT -6)   
The three-year anniversary of my surgery slipped by last week without my noticing, so here's a small update.

I had RRP three years ago. No side effects apart from ED. Continence continues to be good, with no leaks.

With non-nerve-sparing surgery, ED was to be expected, even though I hoped that I might be the rare exception. But at three years, I accept that what I have now is all I will have. Can't "think it up" to the slightest degree, although lot of manual stimulation with a constriction ring produces something that is stuffable.

Injections worked well for me, but I now prefer to use a pump, and I get good results with that although not brilliant. Like other guys here, I find orgasm to be better than before. Frequency is falling off, and lately has been once every 1-2 weeks. It's a lot easier these days to find reasons not have sex!

With BCR, I am not cured, so expect that ADT will be some time in my future. In otherwise good health, I also accept that PCa may kill me, perhaps in a period as short as a few years. I live every day as it comes. There are many things I enjoy doing, and nothing that I wish I had done -- apart perhaps from cavorting on a warm beach with a few naked beach bunnies!

To stave off the ADT day, I have been testing a largely vegan diet, with a few supplements -- some of which shall remain nameless! I am on a 3-monthly PSA test, so should have an early indication whether any of this is working in about another month...
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but now 0.4, doubling time 7 months
No radiation but ADT coming unless I can slow down the rise...

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/14/2011 6:54 PM (GMT -6)   
Gosh, hard to believe its been 3 full years, how time flies. With your stats, keeping to 3 month PSA tests makes sense to me, that way, if something happens, you won't have a huge gap in your numbers. Your beach fantasies sound good to me! Know a good beach?

Once my brain re-trained itself not to have an ejaculation with an orgasm, and that took me a few month to reconcile, I can honestly say that after 2 plus years, I wouldn't even want to go back. The big "O" for me, is so very intense and easily last 3-4x longer than anything I ever had pre-PC. Sure that varies guy to guy, just my take. And the no-mess part is a big plus with the wife.

Glad you are doing well, and hope you can continue that way for a long times yet.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/14/2011 7:15 PM (GMT -6)   
Piano:
- wishing you all the best in your journey
- sometimes the elements that give us hope, can help us as well ....
- I am enjoying my anti-cancer diet... will see how it does for me soon ( my PSA results are later this month)
-take care.
hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/14/2011 8:32 PM (GMT -6)   
Thanks for the update Piano. Wishing you the best on your diet and next PSA. Our Path and paths are similiar. Go out and buy the Sports Illlustrated Edition and let your fantasy roam.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 3/14/2011 9:13 PM (GMT -6)   
Best of luck on your diet. I am going that route as well. Although snuck in a little corned beef yesrerday for St Patty day. Tradition and all. Our stats are also very similar although I jumped to SRT and HT at the first sign of BCR.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%, nerves spared, no negitive side effects of surgery.
PSA's < .01, .01, .07, .28, .50. HT 5/10. IMRT 9/10.
PSA's post HT .01, < .01

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/15/2011 8:31 AM (GMT -6)   
Piano, thanks for the good news update. I wish you many more years of good news and low psa's... wink
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 3/15/2011 4:14 PM (GMT -6)   
Thanks for the good wishes all.

Purg, no, I don't know any good beaches cry If I ever did play out my beach bunny fantasy, I would join the group of those who die with PCa and not of it. My wife would see to that :-)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/15/2011 6:29 PM (GMT -6)   
Tell her the beach bunnies are good for prostate health reasons. My fave beach here in SC is Sullivans Island across the harbor from Charleston and my fave Florida beach is Ft. Desoto at the southern tip of St. Petersburg.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 8:39 AM (GMT -6)
There are a total of 3,006,025 posts in 329,292 threads.
View Active Threads


Who's Online
This forum has 161820 registered members. Please welcome our newest member, Dogsitter2.
274 Guest(s), 10 Registered Member(s) are currently online.  Details
Kent M., BossJ, Serenity Now, 3timechamp, 61Impala, CatLady18, RobLee, Dogsitter2, fighter87, Clifton Winstead