Bob's scheduled excellent pathology journey~have slides will travel~my onco is awesome in arrangemen

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zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/17/2011 10:09 AM (GMT -6)   
All this info recently acquired from my onco-doc at seminar meetings, like on Dr. Bonkhoff's pathology specialized testing...has sparked my enthusiasm for more learning. So, being the wild s.o.b. I can be,  got possession of my pathology slides from storage place in Detroit (DMC-Hospital), my pathologist original is Dr. David Grignon (noted by Dr. Strum as one of excellence).  I got my 6 slides (12 biopsies originally done on me) and only had to sign a form for releasing it. Today later towards evening we are going to a local hospital's pathology dept. and meeting their patho-doc and will be looking at these slides. I hope we can gather media photos of what we are looking at..and if so..will post here for comparison and learning for all. I have 3 different Gleason scores found and actually two sets like that of 7,8,9's many with PNI and all high volume PCa 75-95% ranges.
 
Herein see my actual pathology report, I want others to learn something and perhaps this stuff is my legacy as the grim reaper is hard to escape with my stats:
 

DMC

University Laboratories

Harper University Hospital

Department of Pathology

3990 John R

Detroit, Ml 48201

Tel: 313-745-8555         Fax: 313-745-9299

Surgical Pathology Report

* Converted Case * This report may not match

the

original report format

 

Patient Name:

 

PARSONS, ROBERT

 

 

 

 

 

Pathology #:

 

SH02-3607

 

Med. Rec. #:

 

 

 

Site/Ghent

 

Grace Hospital

 

Collected:

 

3/19/2002

 

Account #:

 

 

 

location

 

102291 2 (LN)

 

Received:

 

3/19/2002

 

DOB:

 

12/1/1 950 (Age: 51)

 

 

 

 

 

Reported:

 

3/22/2002

 

Gender:

 

M

 

 

 

 

 

 

 

 

 

Ordering Phy:

 

MICH INST OF UROLOGY-PONTIAC

 

Copy To:         MICH

 

INST OF UROLOGY-PONTIAC

 

FINAL PATHOLOGIC DIAGNOSES

(let me add that sample A. is below, but B. is missing...my samples A. & B. were both Gleason 9's  (4+5)'s   95% vol (only A had PNI))*

frgstatic ale:;cca?.c:::cma x:r~ i:-:e

HISTOLOGIC TYPE: ACINAR GLEASON SCORE: 9 (4+5) VOLUME OF TISSUE INVOLVED: 95%

PEP.IME'JRAL INVASION: NO

-.?EX, NEEDLE BIOPSY: :HE FOLLOWING FEATURES:

 

'.L IF IISSVI INVOLVED: 80

;ev?--.l :;;v.-.s:;:;: no

-.??.CST.-.r:C EXTENSION: NO 3F--.ZE ?IK PRESENT: NO

 

I. PROSTATE, DESIGNATED LEFT BASE, NEEDLE BIOPSY: FP.CSTATIC ADENOCARCINOMA WITH THE FOLLOWING FEATURES:

HISTCLOGIC TYPE: ACINAR

GLEASCN SCORE: 8 (3+5)

VOLUME OF TISSUE INVOLVED: 80%

PERINEURAL INVASION: NO

EXTRAPROSTATIC EXTENSION: NO

HIGH GRADE PIN PRESENT: NO

E. PROSTATE, DESIGNATED LEFT MID, NEEDLE BIOPSY: PROSTATIC ADENOCARCINOMA WITH THE FOLLOWING FEATURES:

HISTOLOGIC TYPE: ACINAR

GLEASON SCORE: 7 (3+4)

VOLUME OF TISSUE INVOLVED: 90%

PERINEURAL INVASION: YES

EXTRAPROSTATIC EXTENSION: NO

HIGH GRADE PIN PRESENT: NO

F. PROSTATE, DESIGNATED LEFT APEX, NEEDLE BIOPSY: PROSTATIC ADENOCARCINOMA WITH THE FOLLOWING FEATURES:

HISTOLOGIC TYPE: ACINAR

GLEASON SCORE: 7 (3+4)

 

Page 1 of 4

PARSONS, ROBERT

 

SH02-3607

Surgical Pathology Report

ROBERT

 

 

TOLUME OF TISSUE INVOLVED: 9C* PERINEURAL INVASION: NO EXTRAPROSTATIC EXTENSION: N'C HIGH GRADE PIN PRESENT: NC

COMMENT: This case shows a complex pattern : r r.istclogies with the sir.gle prominent pattern being ir.f iltratir.3 ;!=*;= wi-r. -any of the cells hsvir.g abundant foamy cytoplasm ccrresptr. zir.; tr.e 31ea = :r. grade 3. The rerr.air.2er the tumor has a complex papillary cricririrn pattern (Gleascr. grade 4 wi: many areas of comedcnecrcsis 31eastr. rra;e 5 . :;r.sidering all the tur.;r present an overall Gleascr. sctre z- : 3 - : is assigned with the grades 5 elements combined accounting fcr art-t -.'.* if the tumor volume.

  (ADDED be me TODAY-some of this does not print off normally don't know why???)  NOTE: overall Gleason grade 8 given, even though I had two samples of grade 9, that is different)

'Electronically Signed Out By Conversion*** GRIGNON M.D., DAVID

Consulting Pathologist(s):SAKR M.D., WAELSPEC'MEN'S.

A PROSTATE BIOPSY RIGHT BASE B: PROSTATE BIOPSY RIGHT MID C: PROSTATE BIOPSY RIGHT APEX D: PROSTATE BIOPSY LEFT BASE E: PROSTATE BIOPSY LEFT MID F  PROSTATE BIOPSY LEFT APEX

 

GROSS DEscriptION

3?i;;xz:;: .-. ??:;tate biopsy right base

i        ??C37.-.7E BIOPSY RIGHT MID

;      ??cs7;--7E biopsy right apex

:        ??CS7A7E BIOPSY LEFT BASE

^          ??.:S7AIE BIOPSY LEFT MID

:        =?3S7A7E BIOPSY LEFT APEX

?.e:eivei ir. fcrrr.alir. ir. six containers.

A.  Container A is labeled Rt base prostate.  Three cylindrical cores of tan soft tissue rar.ge from C.4 to 1.7 cm. in length, each with a diameter of less

3.  Ccr.tair.er E is labeled Rt mid prostate.  Two cylindrical cores of tan soft

tissue are C.6 and 1.4 cm. in length, both with a diar.eter of less than 0.1 cm.

Multiple additional tan soft tissue fragments aggregate to 0.5 cm.  All - 1.

C.  Container 0 is labeled Rt apex prostate.  Two cylindrical cores of tan soft tissue are 1.1 and 1.3 cm. in length, both with a diameter of less than 0.1 cm.

All - 1.

0.  Container D is labeled Lt base prostate.  Two cylindrical cores of tan soft tissue are 1.6 and 1.7 cm. in length, both with a diameter of less than 0.1 cm.

All - 1.

E.  Container E is labeled Lt mid prostate.  Two cylindrical cores of tan soft tissue are 1.6 and 1.7 cm. in length, both with a diameter of less than 0.1 cm.

 

I cannot show photo's yet herein of the slides, they look like simple slide glass you see in biology classes from school. Apparently the wax sealing is about unseeable as far as I can tell. I do see squiggly lines of specimens on the slides, some slides have 4 or 3 and one has two. It comes to more than twelve overall...not sure how that happens. Will be asking some great questions today. I hope I can learn alot more and even share it with other PCa folks whom might have interest.

 

I took the risk of posting this, but feel perhaps it can be a great learning tool for others. cool

 

Post Edited (zufus) : 3/17/2011 12:04:26 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/17/2011 10:24 AM (GMT -6)   
Bob,
It is a good thing especially for our newest guys who are yet to obtain such a report. New guys ~ These are pretty consistent looking and you should have one of these for yourselves.

If anyone needs to see a surgical report and what a post op pathology looks like (mine I mean, the kind you don't want) I would be willing to provide a copy of mine if you write me...

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 3/17/2011 11:10 AM (GMT -6)   
I always enjoy your posts! As a information nut [even when I have to investigate to understand everything], this is the kind of stuff I enjoy figuring out! I believe everyone should have all of their medical reports etc......... Cooper   wink

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/17/2011 12:06 PM (GMT -6)   
zufus,

from reading that pathology report, and pretending that i was a doctor, i might have given you 3-5 years max to live, you have and are still beating the Grim Reaper by a long shot!! Look forward to seeing those other results.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

Casey59
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Date Joined Sep 2009
Total Posts : 3172
   Posted 3/17/2011 1:15 PM (GMT -6)   
Purgatory said...
from reading that pathology report, and pretending that i was a doctor, i might have given you 3-5 years max to live...
 
 
In the spirit of the earlier comments in this thread about helping newbies learn more about this disease, I can pass on some of the teachings I heard Dr James Mohler (from the Roswell Park Cancer Center) say in a recent NCCN online presentation which speak to David's comment, above...  [not pretending to be a doctor wink  ]
 
Dr Moehler utilizes a study published in the British Journal or Urology showing that typical time to symptomatic metastases for a patient with an aggressive pathology report is 8-years, and then they figure time to death based on an estimate of the additional years of control gained by ADT treatment...3-5 years on ADT is common after symptomatic mets.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/17/2011 1:37 PM (GMT -6)   
There have been plenty of men with metastases PC that have died in 2-4 years from diagnosis.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 3/17/2011 2:56 PM (GMT -6)   
Purgatory said...
There have been plenty of men with metastases PC that have died in 2-4 years from diagnosis.
 
Yes, this comment is, of course, correct....but it doesn't really follow-on to my previous post because it speaks to a different situation.
 
Shortly after I entered my last post, I hopped in my car and drove home, and during the drive I thought about how I might have worded that last post differently so as to be more instructive to the newbie reading this thread.  Here's my 2nd attempt...in the spirit of providing learnings about the biology of this disease to newbies (most who have been here for a while already know this):
 
Men don't die from having a high Gleason score.  Death from PC generally comes after stage-4 metastases to a vital organ which eventually (not immediately) shows symptoms and then finally shuts down.  Not everyone with a pathologically high gleason score advances to metastesis, but those with high Gleason scores are more likely to progress eventually to that stage than others with lower Gleason scores.  If curative treatments fail--both primary and secondary--Dr Mohler spoke of the typical time (after treatments) of 8-years to develop symptomatic mets for aggressive cases (as mentioned perhaps incompletely in my last post, with symptomatic mets then further treated to further prolong life).  In the big picture, this sub-group of patients represents a very small percent of men diagnosed with PC.
 
An even smaller number of men present with mets and high Gleason in their initial diagnosis (as described by David in his last post).  This condition was more common in the pre-PSA days, but infrequent now.  It does happen, and there have been men (or their wives) in this situation who have posted here at HW.
 
For the vast majority of men diagnosed with PC, it never metastasizes, and never becomes symptomatic...and many high Gleason men go many, many years (or the rest of their lives) without mets and without reaching stage-4.
 
I wrote in another earlier thread that the "goal" (for essentially all cancers) is to never get to stage-4...this is one way of looking at it.
 
This post was intended to supplement my last post, and hopefully add more clarity...

Post Edited (Casey59) : 3/17/2011 2:58:09 PM (GMT-6)


zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 3/17/2011 6:28 PM (GMT -6)   
There are and have been cases posted at yananow with men whom had half the stats I was presented with and some of those died 3-6 yrs. from diagnosis.
Dx-2002 total urinary blockage from PCa, higher end stats...I think I must have been abducted by aliens probably near Area 51 and Roswell cause this disease is to alien to believe.(LOL) So I zapped at it.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/17/2011 6:38 PM (GMT -6)   
Thanks, zufus, you validated my point. I am totally amazed in your journey, you got something going right for you for sure. You, JohnT, and O.S have had some pretty out of the box PC journeys. I don't like where mine has been going, because on "paper", it shouldn't be as aggressive as it has been so far. Very frustrating disease.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 3/17/2011 9:28 PM (GMT -6)   
zufus said...
There are and have been cases posted at yananow with men whom had half the stats I was presented with and some of those died 3-6 yrs. from diagnosis.
 
Sure...this remains entirely consistent with what I said previously.  Patients don't' die from high stats...but you guys already know this.  Cancer patients die when mets attack a vital organ.  
 
Symptomatic mets don't eventually happen to all high stat men, but the higher the stats the higher the probability that mets may eventually occur.  The more intermediate case stats also doesn't mean that they will never eventually progress to systemic mets, but it is decreasingly likely.  "Never" almost never happens in statistics, and statistics fairly predictably tell the big picture story of how things unfold...just not for any one individual.
 
Of course, the guy who shows up at the doctor's door for the first time in 30 years with symptoms & mets already in place, like David described earlier, is a very different case.  Relatively rare these days.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/18/2011 5:41 AM (GMT -6)   
Casey- Surely you know it all in PCa and have all the answers( I maintain it is very complex and keep questioning everything). I know you have plenty of links and information and likely way advanced in knowledge on this...not sure how much real world experience you have witnessed first and second hand. Since you have kind of trivialized my PCa journey as not all that interesting and made it a thread of well this sap is gonna die and who cares what he did or what he might try to add to this forum....thanks. Best support I have ever seen (LOL). skull

I was going to post about my viewing experience with a local pathologist literally teaching me on a dual microscope on how to discern PNI in my own cells, Gleason score changes, tubular and cribiform cells, and comedcnecrcsis. Then the fact he is going to get me microscopic photos on my pathology and place it on a memory stick...thus I could have shown them here for others.....right now I am rethinking even coming to this forum anymore. Have a nice day, I bet that news makes your day.   yeah

Post Edited (zufus) : 3/18/2011 4:44:24 AM (GMT-6)


Casey59
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Date Joined Sep 2009
Total Posts : 3172
   Posted 3/18/2011 8:23 AM (GMT -6)   

huh...?


I thought what you wrote ("I want others to learn something..."), and what Tony then wrote, and what I clearly stated that I wrote was for others to learn more about the biology of this disease.

It's not all about you nono ...in fact, nothing I wrote about had to do with you.  I was following your lead in helping others learn... wink


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/18/2011 9:04 AM (GMT -6)   
Casey, you should learn from what zufus just wrote. You don't seem to understand how many of your posts come across to some folks here. Your posts are often condenscending and cold, the opposite of what people want to hear. I don't think you are doing it on purpose, but that is how its translated on the receiving end.

This was zufus's thread, and you are trying to turn it into another Prof. Casey discourse. The poor man has been walking a difficult path, with a severe situation, and he has had to go way outside the box to stay alive. You even downplayed my remark to him above, about how "if I were" a doctor, I wouldn't have given him long to live. zufus has said this himself, it didn't need correcting or qualifying by you. You need to stop doing stuff like that.

zufus: this will pass, continue on please, your unique angle and input is valuable here. so please don't give it up.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

An38
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Date Joined Mar 2010
Total Posts : 1152
   Posted 3/18/2011 5:48 PM (GMT -6)   
I'm sorry guys but I have read both Zufus' and Casey's posts twice and found them very interesting - both from the point of view of understanding Zufus' situation and from learnng a bit more.

I cannot see how Casey's posts are in the smallest way offensive, on the contrary they are interesting and informative. And they are certainly not rude, condescending or unsupportive.

I don't understand whats going on here and I need to understand because it makes me nervous about posting about what I have learnt.

Regards,
An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg (margins, seminal vesicles, extraprostatic extension). Multifocal, with main involvement in the fibro-muscular zone. T2C.
Post RP PSA,
Lab 1: Sep10 – 0.02|Nov10 – 0.03|Dec10 – 0.03|Feb10 – 0.03
Lab 2: Nov 10 - 0.01|Dec10 – 0.01|Feb10 – 0.01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/18/2011 6:18 PM (GMT -6)   
An,

A person's tone and attitude ultimately determines how a person's post is received on the other end.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 3/19/2011 8:36 AM (GMT -6)   

 

It might be best to appropriately draw closure to this thread (since zufus isn’t apparently here to do this himself), re-stating the perspective that the big picture “goal” with essentially any cancer is to do what you can to avoid reaching stage-4.

 

More traditionally and for most people, this means (1) getting the very best medical team possible, and (2) contributing to your own complete recovery.

 

Those who have read numerous zufus (Bob) posts here aren’t surprised the he went a different route.  After initially starting out with IMRT+HT, Bob dropped the HT in lieu of going on & off of DES to (successfully) regulate his PSA (and specifically, in his words, to get away from the HT side effects).  More recently, Bob’s dabbling in non-FDA approved DCA (not on the advice of his oncologist), which is available through overseas channels.  about DCA, Bob writes “it has claims made for some usefulness in cancers.  I don’t recommend you try it…but I am willing to.”

 

I think that we could all salute zufus (Bob) for going his own route…even though it’s not a route that even he would recommend others to try.  Apparently, he’s been successful—even with higher stats/higher probability—in avoiding reaching stage-4…that should be celebrated.

 

Cheers…


60Michael
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Date Joined Jan 2009
Total Posts : 2243
   Posted 3/19/2011 9:13 AM (GMT -6)   
Like An, I am not sure how this got so personal as some very good points were made, and not at the expense of someone else. Zufus please stick around as you are one of the best on this board. Have a great weekend all.
Peace, as Dale would say!
Michael

clocknut
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Date Joined Sep 2010
Total Posts : 2680
   Posted 3/19/2011 9:42 AM (GMT -6)   
Although I've recently been on the receiving end of some posts that I perceived as hostile, to the point that I've cut way back in my participation on this forum, I fail to see what the brouhaha is all about here.  Casey and Zufus, and Purgatory....you guys all bring a lot to this forum and for the good of all, I wish you would all kiss and make up and keep in mind that it's PCa that's the enemy here, not each other.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/19/2011 10:11 AM (GMT -6)   
It shouldn't be hard for anyone that's been here any length of time. to understand why zufus felt slighted or even offended ealier in this thread.

I would always vote for him to stay. We need those that have the unusual paths, to put the rest of us on guard when things don't go to plan, or don't go well at all. And with his difficult and darning stats, its a "miracle" that he is still on this side of the planet's surface.

I don't think people always should find the need to correct or clarify another person's post. Let the poster do that if they choose to. Sometimes (all of us) shoot off the cuff, or from the heart, or from scared part at the back of their minds, so I say, let them say what they want to say in their own unique way.

zufus, many of your out of box thoughts and sollutions only seem odd, when one is new here, or new to PC and everything is going peachy keen. Once you have blown through a surgery, and all that entails, and blow through a seoncdary treatment, and you suddenly find yourself on the side of the bridge called "Non-Curative", many things you have tried to teach and share, suddenly mean a lot to someone. And one of those "someones" is me at the moment.

A little sensitivity and tolerance goes a long way in getting your message out and in keeping the peace.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 3/19/2011 10:19 AM (GMT -6)   
Ditto.......... wink   Cooper

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/19/2011 10:20 AM (GMT -6)   
Here's a perfect example of how these threads get out of hand:

This what I said to zufus:

"There have been plenty of men with metastases PC that have died in 2-4 years from diagnosis."
--------------------------------------------------------------------------------
This is how Casey used the above sentence, and added what he thought I meant instead of what I said:

"Of course, the guy who shows up at the doctor's door for the first time in 30 years with symptoms & mets already in place, like David described earlier,"

David = me, never said anything about men showing up to the doctor for the first time in 30 years with symptons and mets aleady in place.... That's not what I said or mean, so why would he presume to speak for me? I am talking about me that get dx at a variety of ages, with fast moving, agrgressive PC cases, that don't hardly last 2-4 years. And yes, perhaps Casey, you should read more of the cases on Yana and get a closer look at the cases of men dying from PC. It's not all 80 year old men that never went to the doctors. And that was zufus's counter point.

The lesson here: what I wrote, was re-written by Casey emphathising a point that I was not even making, and I don't like that't. Let each poster speak for him/herself, and as long as they stay in bounds of the forumn rules, let them speak their own way. And don't put your words into someone elses mouth.

David

Post Edited (Purgatory) : 3/19/2011 9:23:31 AM (GMT-6)


tatt2man
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Date Joined Jan 2010
Total Posts : 2845
   Posted 3/19/2011 2:58 PM (GMT -6)   
DAVID:
- the same thing occurred to me last week - my words were re-written highlighting a point that was not remotely related to my original posting -

I posted again - demanding that the reference be removed - and it was removed later that day -
.................

ZUFUS:
- wishing you all the best in your journey and may the arrival of spring bring some more light, revelations, meaning and discoveries ... as simple as a crocus in the snow, or as complex like the Cat's Eye Nebula...
:-)
hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

Post Edited (tatt2man) : 3/19/2011 2:02:56 PM (GMT-6)


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4278
   Posted 3/19/2011 3:15 PM (GMT -6)   
Bob, I certainly hope you're not serious about dropping out...I find your posts both interesting and educational.  I think you may have misunderstood Casey's intent; I certainly did not see any malice in his posts.
 
And, I must say I absolutely agree with An on this one when she says, "I cannot see how Casey's posts are in the smallest way offensive, on the contrary they are interesting and informative. And they are certainly not rude, condescending or unsupportive."  David, I respectfully disagree with you on this one...
 
Tudpock (Jim)


Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 12/8/10. PSA: 6 mo 1.4, 1 yr. 1.0, 2 yr. .8. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1305643

Trepidation
Regular Member


Date Joined Feb 2011
Total Posts : 173
   Posted 3/19/2011 3:58 PM (GMT -6)   
Been reading past posts and historys. It seems to me that Mr. Zufus, what kinda name is that Lol, has talked the talk and walked the walk. Again, JMO.

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 3/19/2011 4:28 PM (GMT -6)   
Zufus, Casey, and Purgatory -- and any others who are offended by being left out: :-)

I hope you guys all stick around. We're all on different paths, some well trodden and others not. We can't expect to agree on everything, and some mild disagreement makes the place interesting.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but now 0.4, doubling time 7 months
No radiation but ADT coming unless I can slow down the rise...
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