Question for corvetteman (jeff)?

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mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 377
   Posted 3/20/2011 3:34 PM (GMT -6)   
Jeff,
      I had robotic prostatectomy in NOLA almost 3 years ago but live in Baton Rouge, LA. I know you live near BR. Could you please tell me who your urologist is because I want to find a local guy, no point in going to NO anymore. I just need local guy for yearly psa and prescription for trimix. Trimix works well for me and i can't afford caverject, you mentioned somewhere back that you've tried them all. Some doctors won't prescribe trimix/bimix so if you know somebody who will in BR area I'd appreciate it, I don't fell like hunting for a urologist. I know they don't like us giving out our doctors' names here, maybe you could tell me how I could email you for the info, thanks a lot..........
My age= 52 when this all happened.
DRE=negative,
PSA went from 1.9 to 2.85 in one year, biopsy ordered,
Second biopsy on 08/14/08 found 2/12 cores positive for CA on R side, 1 core=5%CA, other core=25% CA, Gleason score= 6 both cores,
Bilateral nerve sparing robotic surgery on 09/11/08, pathological stage T2A,
No signs of spread, organ confined,
6 0's in a row, still use trimix for ED

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/21/2011 5:13 AM (GMT -6)   
mspt98, Welcome to Healing Well. I am sending you an e-mail hope the info helps.

So nice to see a BR guy here on the forum.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 377
   Posted 3/21/2011 6:43 AM (GMT -6)   
This is a small, small world. Your urologist was my urologist for 17 years. He was the one that discovered my cancer. I didn't have him do the surgery because everytime I went to see him it was like a cattle call at his office. It didn't matter what time my appointment was he would always show up at 1100 and run about 50 of us guys through the psa/dre mill in 2 hours. I was afraid with the surgery that he wouldn't take the time to save my nerves. That's why I went to NOLA for the robot at Ochsner. Almost 3 years later though I still use trimix so I guess it didn't do me any good - same outcome. The other doctor you mentioned was one I had heard about from some other guys, I'll definately be going to see him. Thanks for the info, now I know where I can go :-)
My age= 52 when this all happened.
DRE=negative,
PSA went from 1.9 to 2.85 in one year, biopsy ordered,
Second biopsy on 08/14/08 found 2/12 cores positive for CA on R side, 1 core=5%CA, other core=25% CA, Gleason score= 6 both cores,
Bilateral nerve sparing robotic surgery on 09/11/08, pathological stage T2A,
No signs of spread, organ confined,
6 0's in a row, still use trimix for ED

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 3/21/2011 7:58 AM (GMT -6)   
ms, I live in the area too and have been seeing local urologist too pre op and post op (RRP done at Tulane). Besides the my "cattle call" syndrome I had to philosopical issues mine the uro that I was going to for post op followup in BR. Since I am 15 months post op I don't think I need to see a uro unless there are some problems or symptoms. So, I am now deeing my GP to get psa now and think overall I will be better off. I can alawys go to a uro if need be but this way I can get the ultra sensitive psa done the my uro does not do. ps, my uro is/was not the same one Jeff uses.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/21/2011 12:31 PM (GMT -6)   
mspt98, Just letting you know that Ron is in the area as well. I sure hope you get a chance to visit with us at the GFMPH on April 15-17.

When you make you trip to the new Dr. let me know what you think. I have not made my appointment with him as of yet.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 377
   Posted 3/21/2011 10:53 PM (GMT -6)   
For sure I will, but that won't be until February of next year. I saw my surgeon in NO last month, he told me I had another 0 psa and gave me a script for trimix with enough refills to last me a year. So I'm good until next February. Then I'll try and go to Dr. H----- to avoid going to NO anymore. I'm kind of a loner, don't have much to say about prostate cancer, most people don't want to talk about this really. I drive by your town every day, work in New Roads, maybe I'll give you a call some time, hope you're in the phone book, I'll let you know what happens in February..........
My age= 52 when this all happened.
DRE=negative,
PSA went from 1.9 to 2.85 in one year, biopsy ordered,
Second biopsy on 08/14/08 found 2/12 cores positive for CA on R side, 1 core=5%CA, other core=25% CA, Gleason score= 6 both cores,
Bilateral nerve sparing robotic surgery on 09/11/08, pathological stage T2A,
No signs of spread, organ confined,
6 0's in a row, still use trimix for ED

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/22/2011 12:04 PM (GMT -6)   
Welcome tigerfan.  Shoot me an e-mail.  If you click on my name you will see my e-mail address.  Now to answer What is GFMPH.  That stands for Good For Mens Prostate Health.  We can use that to convince our singif. other that we need this or that because it is GFMPH.  Worried Guy came up with that a couple of years ago.  Then in Sept each year he invites guys from HW to his house for a Friday, Saturday, and Sunday.  It is an opportunity for the guys here to get to know each other face to face.
 
Last September I flew in to Rochester for Worried Guy's GFMPH.  On the Saturday night the guys asked if they could have a gathering at my house and I was thrilled and accepted the challange.  If you do a search for GFMPH you will see a list of the guys that are headed to Louisiana on April 15, 16, and 17.    I have communicated will all the guy here on HW and many of them on the phone. 
 
As you probably know these guys are just great support and have become friends.  I am excited about seeing the guys that I have met before again and really excited about meeting the guys that I have never had the chance to shake hands with.
 
Tigerfan feel free to join us.  We will have lots of food and drink.  I want to teach these guys how cajuns love to party.
 
Cajun jeff

pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 3/22/2011 8:37 PM (GMT -6)   
good go jeff will see you then . i want good stuff too eat but dont want to cook but will help. ill have a blast with the yanks. you let them know how us coonies are now hu sha. your friend or the other cajun, neil
50 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1 oct/09 psa 0.06
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09 , cather back in , out again on nov 15/o9, was taught to self cath, still pluged with scar tissue but no cather. have to self cath 6 to 8 times a day. scar tissue removed on jan. 11 2010. no cathing and totally dry. 

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/22/2011 8:47 PM (GMT -6)   
Hi Neil, Good to see a post from you. I tell you I am hoping that the crawfish will come down a bit. Would love to cook them up a pot of crawfish. If they are still out the room I guess we will do a fish fry.

Will call you next wk for us to talk.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/22/2011 9:35 PM (GMT -6)   
Cajun Jeff - found this site for crawfish - is $2.99 / pound too high ?
www.crawfishpricelist.com/

habnero hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/22/2011 10:23 PM (GMT -6)   
Those are already cooked. My plans are for us to do a boil in my back yard. For those that do not want to try them I will fix other foods.

Thanks for the link Bronson. The sad thing about all of this is I can't eat crawfish. (alergic to them) But I love them. :(


Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/23/2011 7:24 PM (GMT -6)   
the live ones were $2.99 and the cooked ones were more expensive.... $3.99/lb 8lb minimum ....

- maybe a catfish /chicken jambalaya ...
yeah

hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/23/2011 9:13 PM (GMT -6)   
I am still planning on a boil. Will also do a jambalaya and probably a fish fry. Bronson we will talk.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/23/2011 10:05 PM (GMT -6)   
Cajun Jeff:
whatever you want - you are the master of your domain - I am at your bidding ... I just love to cook - you just tell me what you want..

culinary hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/23/2011 10:17 PM (GMT -6)   
no problem... We will have a great time.

Cajun JEFF
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better
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