Embarrassing problem

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Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/24/2011 1:26 AM (GMT -6)   
I had surgery on 12/16/09. Well recently I have developed a a new and embarrassing problem. When I get an erection whether by pills or the dreaded shot... seems that I have no control of when I urinate. This makes having sex some what embarrassing cause I never know when it is going to happen or for that fact it is even happening. Has anyone else had this type of issue? If so was there anything your Uro could do for you? I am scheduled to see mine for my yearly checkup next week, but wanted to see if anyone else has the same problem and if there was anything that could be done.
Age: 45
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
PSA as of 4/28/2010 after 37 Rad treatments Undetectable
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution
Ended rad Treatments 4/28/2010

Post Edited (Hunter48152) : 3/24/2011 12:31:23 AM (GMT-6)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 3/24/2011 4:14 AM (GMT -6)   
Do you empty your bladder during foreplay and or during orgasm? Or do you just get squirts?
 
Have you stopped using ANY of the meds for a couple weeks and then tried em again and gotten the same results?

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/24/2011 6:43 AM (GMT -6)   
- no need to be embarrassed -
- due to muscle weakness after surgery, some men cannot control the leakage of urine ( that was one of the jobs the prostate did) - so I recommend emptying the bladder before arousal - and use a condom - you want to keep arousal a positive thing - and if you get upset with the potential of leakage - you may rewire your brain-penis connection - so that your penis has difficulty getting and maintaining an erection.

hugs,
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/24/11 - TBA

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 463
   Posted 3/24/2011 8:07 AM (GMT -6)   
I am 4 years post op from robotic surgery and I have the same problem you are describing and there is nothing you can do but live with it, it will not get better with time.  This is a side effect surgeons never tell you about.
 
I was very lucky when I had my surgery because I was blessed with no ED issues and I was getting a rock solid erection from the day the catheter was removed, and without drugs.  The only problem I have is that as soon as I get sexually aroused, I will loose all continence and I will start to drip uncontrolably.  I can actually feel my splinkter muscle start to relax when I get aroused.  It is really a wierd feeling because I am dry all other times , but as soon I am aroused, I leak like a faucet without any control.
 
What is even worst is when I have an orgasm.   I ejeculate urine with such force, that I can hit the ceiling.  What's kind of comical is that I ejeculate urine with more force now , then I ejeculated seman when I had my prostate.
 
Even if I try to empty my bladder before sex, I will still drip some and ejecualte some urine.  I have tried using a condom, but then I loose the sensation and I loose the erection.  
 
The only thing my uro said was that urine is sterile and if you ejeculate into your partner not to worry because it won't hurt her.  Just try telling that to a woman. I am thinking about trying to drink white food coloring prior to sex because if I have to ejeculate liquid, at least it would be nice if it looked like seman. :-)
 
Through trial and error I found that if you drink a lot of water a few hours before you plan on having sex, and stay a way from coffee and soda, the water dilutes the urine and eliminates the most of the odor.  Also when you are ready to have an orgasm, let your partner be on top and that lets gravity help reduce the urine in your orgasm.  Other than that, you just have to get use to dripping and get use to putting a lot of towels on the bed.

Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 3/24/2011 8:21 AM (GMT -6)   
I am over three years out from RRP and 2 yrs. post rad.  Have the same problem.  I twas almost gone until I had the IMRT.  I have tried everything including Kegels.  It is not so bad with injections or the pump if I use a small enough ring.  It is something I have learned to live with.  I agree, most Drs. never tell you about it prior to surgery.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 3/24/2011 8:37 AM (GMT -6)   
As I understand this problem, the two sphincter system you were born with works differently during sex. During sex the internal sphincter ( the one you don't have any more) closes while at the same time the external sphinter opens. The internal sphincter is located at the bladder neck and the external sphincter is located where the urethra exits the pelvic floor. While in this mode, urine is trapped in the bladder and ejaculate fluids have an open pathway to allow you to impregnate. Ther internal sphincter ( now gone) is not consciously controled and works with signals from other organs like the bladder. Since this is now gone the only thing that holds urine back is the external sphincter which usually you have control over but during sex, some of the old connections are still working. What to do about it, I have no idea. It does not appear to me to be a problem that can be simply fixed but what do I know. Maybe some type of psychical therapy ? sorry to heat about this and but look on the bright side you can have errections and that is a real blessing.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/24/2011 10:02 AM (GMT -6)   
Thanks for all the input guys.. NY-Sooner.. I know this was a serious topic but your post had me ****. Maybe I will try the white food coloring trick too LOL Fortunately I have a very understanding Fiance'.. she is not upset or anything, it was just embarrassing to me is all and tired of washing sheets nightly LOL
Age: 45
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
PSA as of 4/28/2010 after 37 Rad treatments Undetectable
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution
Ended rad Treatments 4/28/2010

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/24/2011 11:56 AM (GMT -6)   
... tired of washing the sheet nightly..?

and you are complaining? -
-showoff -
smilewinkgrin

-a rubber undersheet lining will protect the mattress...
-or maybe you two could wrap yourselves up like a burrito....
turn

I am sure Worried Guy ( Jeff) could work out a physics force ratio for fluid flow and surface material needed...

all the best,
BRONSON

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3794
   Posted 3/24/2011 12:12 PM (GMT -6)   
Have sex in the shower...the hot tub....the lake...the back yard....on the roof....the neighbor's yard...on the tile kitchen floor....all the places you have wanted to play, but never did. With most areas, there will be no reason to clean anything.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010, HDR Brachytherapy 12-6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.

Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/24/2011 10:23 PM (GMT -6)   
**** Tatt... I'm sure he could. I have read a few of his posts.. Makes me feel dumber every time I read one LOL
Age: 45
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
PSA as of 4/28/2010 after 37 Rad treatments Undetectable
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution
Ended rad Treatments 4/28/2010

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5883
   Posted 3/24/2011 10:34 PM (GMT -6)   
If its sterile which it is, think out of the box, its called kink, no offense!!
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 3/24/2011 10:35 PM (GMT -6)   
exactly, sex in the shower!

Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/24/2011 11:43 PM (GMT -6)   
You guys are great... But on a serious note for the 1st year after my surgery I didn't have this problem, it has just come about recently. So I am just a little confused if this is "Normal" why it took so long to occur.
Age: 45
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
PSA as of 4/28/2010 after 37 Rad treatments Undetectable
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution
Ended rad Treatments 4/28/2010

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 3/24/2011 11:46 PM (GMT -6)   
i have no idea, but don't they say radiation can do damage that way?

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5883
   Posted 3/25/2011 12:46 AM (GMT -6)   
Gosh I came back to erase my response, thought I might have stepped over the line. just wild and crazy guys and gals.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/25/2011 9:58 AM (GMT -6)   
No Logo.. Great response... My fiance' gave me a big "Hmmmm" with a smile LOL and then walked away saying "yeah right" LOL God love her she takes all these issues after the surgery in stride.
Age: 45
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
PSA as of 4/28/2010 after 37 Rad treatments Undetectable
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution
Ended rad Treatments 4/28/2010

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 3/25/2011 12:32 PM (GMT -6)   
Hunter,

Did I hear someone mention my name?
Before my sling surgery, I found that after I finished peeing, I could always squeeze out an extra 20-25 ml by pushing my perineum from the front and the back for a minute or so. That would totally empty the bladder. Since I produce about 75 ml of pee per hour that gave me a good 18 minutes of dry time - which was exactly 15 minutes more than I needed.
Now that I have the sling, the leak has stopped. I still have ED but at least I don't leak.

Hey NY-Sooner,
We have to measure your outstanding bladder pressure at the Pee Gravel test firing range here. I have an Excel program set up that calculates the pressure from distance and height above ground. I imagine you can win some interesting bar bets with that high pressure capability.
Jeff
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