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Sparrowhawk
Regular Member


Date Joined Mar 2011
Total Posts : 130
   Posted 3/24/2011 9:55 AM (GMT -6)   
 
Hello Guys,
  Never at the magic age of fifty did I think I'd be checking out web sites dealing with Prostrate Cancer!  I come here after a USS Independence Shipmate recommend the site.
  Fifty and diagnosed with Prostrate Cancer, in no way would I have thought I'd start my golden years this way.  Angry, upset, depressed, yes I've had all those emotions before.  But now I'm doing my best to keep those things in check and maintaining pretty well.  Besides being any of the above can't help the situation.
  Here's what I know:  A colonoscopy reveals a Nodular Prostrate, A biopsy eight cores right, six cores left discovers; RT: Adenocarcinoma- Gleason Score 3+4=7  in five of seven cores- involving 30 to 40%.
LF: Adenocarcinoma- Gleason Score 3+4=7 in two of eight cores- involving 5%.
  Bone scan:  "No abnormal foci demonstrated to suggest osteolytic or osteoblastic malignancy."
  Cat Scan:  Large Prostrate 4.9 x 4.0 cm (It's been enlarged for at least 2 years without any treatment. I should have pushed this issue and had treatment!)
  PSA:  2.16, (In my case there were no early warning signs via the PSA!)
  From what the Drs. can tell the cancer has not spread past the margin of the prostrate.  Yet, I have not been given a grade, although I've been told it's intermediate.
  I've been to a total of seven Doctors from the start of this "Discovery".
If anything at all it's been confusing, frustrating, and leaves me wanting answers.  Radiologists want to perform radiation and hormone treatments.  Urologists want to perform surgery.  Not to surprising to tell anyone that outcome.
  Being "Young" my primary Dr. feels surgery is the best solution, so do the urologists.  I am considering this option more so than radiation.  The thought of radiation bothers me greatly.  Guess I've had the Radiation scare drummed into my head since watching all those B movies as a kid!
  So I figured while I still have to wait to see a few more Drs. I'd check out this site and see what is being discussed.
  The about me part:  I'm a Navy Veteran having served eight years with Uncle Sam's Canoe Club.  Served on the carrier USS Independence as a fight deck boatswain's mate (ABH).  Second hitch I was assigned as Brig Staff at the Naval Brig in Newport RI.  Ended my short Naval career and went into Civilian Law Enforcement, did my twenty and got out, not looking back!  I'm into Training Dogs in obedience, agility and herding.
Some hobbies; Old VW's/ Bicycle's- riding off road, on road, repairs, updating and restorations/Navy History as it pertains to my old ship/PTSD issues that involve Veterans, and a few other things that I spend time on to keep from going stir crazy.
  So hello to all here.  Guess I have a new interest to look into!

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2666
   Posted 3/24/2011 10:19 AM (GMT -6)   
Hello SparrowHawk and welcome to HealingWell. Sorry you have to be here, but I think you're going to find a lot of guys about your age, and even younger, who can share their experiences with you and offer some lessons learned.

I have a great fondness for the Navy. Although I'm an Army veteran (Vietnam era), I worked for the Navy for 28 years. Our stats are somewhat similar in terms of the PCa.

The weeks right after diagnosis were a tough time for me, but it gets better. Keep a positive attitude.
Age 65
Dx in June 2010.
PSA gradually rising for 3 years to 6.2
Biopsy confirmed cancer in 6 of 12 cores, all on left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays negative.
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 52-67 ; I'm the only one with PCa
Continence OK after 7 weeks. ED continues.
PSA 1/3/10: 0.01

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 3/24/2011 10:27 AM (GMT -6)   
Sparrowhawk,
Welcome, you will get alot of advice regarding treatments, but first you need some additional information before you can make a decision.
A large prostate, a large volume G7 tumor, and a psa of only 2.1 is very suspicious and indicative of a PC varient.
Your biopsy slides should be reviewed by either Dr Bostwick at Bostwick Labs or Dr Bronkhoff in Germany. These are the only two pathologists that have the skill and testing means to detect varients.
Have your doctor arrange to have the slides sent out for a 2nd opinion and tumor markers.
Just Google Dr David Bostwick for contact info. I hope Zufus will post Dr Bronkhoff's contact info.
JohnT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/24/2011 10:31 AM (GMT -6)   
Hi Sparrow,
Welcome. Thank you for your service as well.


You said,
PSA: 2.16, (In my case there were no early warning signs via the PSA!) but unfortunately that can be a warning sign for a 50 year old man. Of course that's a gray area. I was 44 when mine came back near 20, it wasn't a warning sign it was a panic sign. But we really no longer have a set in stone marker and a 2 can be a high PSA for anyone who has rune .5's for previous tests. I state that only to let others know. The point is moot for you. You have already joined our club...

Your membership includes nights of free worry, guessing, frustration and question marks. As an added bonus you will receive years of possible second guessing and moments that you feel like you absolutely did things right.

The good news is that you have an opportunity to address this early in your life. My advice is to do what you can to ease the stress of being an exclusive member. It starts with educating yourself on the disease, the treatments and the repercussions of prostate cancer therapy. With this knowledge you will at least have armed yourself ready for battle.

(PS another very excellent pathologist for a second opinion is located in Maryland ~ Dr. Jon Epstein)

Peace to you. Welcome again to our support group.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 3/24/2011 10:48 AM (GMT -6)   
Hey Sparrow.  Thanks for serving our country!  Sorry you have to deal with this.  But I guess you are lucky you caught it by "accident".  With a low psa, many don't.   The website for the pathologist JohnT mentioned (Helmut Bonkoff) is:  http://www.prostapath.org/us/us-main.html   Don't worry about the fact that he's in Germany.  Your doc can send the pathology slides over there, and its not much more complicated than sending them to another state.  I don't know whether you have some odd variant or not -- but in any event its a pretty good idea to get a second opinion on your biopsy slides.  You will make treatment decision in part based on your Gleason score and other analysis of the biopsy slides, so you want to make sure the reading you get is right.  And a second opinion from a "prostate pathology expert" is the best way to be confident about that.  If you don't want to use Bonkoff, there are others in the US, including  (among others) Oppenheimer, Bostwitck, or Epstein.  You can get contact info by searching this forum. (Or ask and we will provide).  When you decide on a treatment (surgery or seeds or external radiation, or whatever), make sure you get a very experienced doctor.  It makes a big difference.  People on this board spend some of their time debating how many procedures a doc should have done in order to have adequate experience.  Nobody really knows the answer to that question.  But you don't want to be a part of some doctor's learning curve. The studies show much better results (not only in terms of cancer control, but also side effects) when the doc has a lot of experience.  So don't be afraid to ask your doctor how many he has done, and how many a week or month he does these days, and what his results have been with respect to cancer control, and side effects, etc., and look for specific responses (as opposed to "I do a lot of them and my patients tend to do great").  Best wishes, Medved.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/24/2011 10:49 AM (GMT -6)   
Sparrow - glad you found this site - you will get a lot of support, information on different treatments and see other men at different parts of their personal prostate cancer journey.

This is a great patient-to-patient site - so feel free to ask as many questions as you need - rant whenever you want - and you are indeed welcome into the club in which no one wants to be a member of.

There are a lot of helpful lists and such at the top of this page and in the postings.

Wishing you all the best.
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 3/24/2011 11:18 AM (GMT -6)   
Hey Hawk, welcome to the club nobody wants to be in....been keeping my eyes peeled for you, glad you showed up, you'll be glad you did. This is an amazing site for those dealing with PCa either as the patient or a loved one, or friend...Sure helped me keep my emotions in check close to three years ago after my intial Dx.. browse the site, ask any question and stand by for "high seas and heavy rolls"...it's quite a group we have here with a lot of great info and knowledge, You'll be glad you're here...Good luck brother-Bluenose
 
  age: 53 @ Dx, Pre-op PSA Feb 08' 5.0, April 08' 4.1
  Biopsy 5.1.08, 5 of 15 cores postive, T2a, Gleason 3+4=7
  DaVinci performed 7.29.08
  Bladder sling installed, umbilical hernia repaired during surgery.
  Path report, "cancer fully contained, margins clear".
  Cath removed 8.8.08, ED therapy begins 8.9.08
  100mg Viagra three times a week, pump for ten minutes daily
  and hold for ten minutes.
  8.16.08 switched to Levitra 20mg, immediate results
  9.15.08 Pad free at night, one thin (light) pad during the day
  9.18.08 1st Post-op PSA Undetectable Zero's....Yes!
  12.22.08 2nd Post-op PSA  Zero's still...
  6.23.09 1yr Post-op PSA Still a zero..
  12.23.09...another zero
  Pads gone 1.3.09, finally found the courage...Thanks ya'll
          ".....tryin' to reason with hurricane season...."
       

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3738
   Posted 3/24/2011 11:32 AM (GMT -6)   
We all know the feeling sparrow...You need to read a couple of books on the subject, there is a list at the top of the forum, thread #4 I think..My favorite is Walsh's, Chodak's is good too..I agree that having a true expert review your slides might be worth-while at this point..Then have an expert medical oncologist review his pathology report. Your low PSA and large prostate with a high-percentage cancer involvement is a warning your case may be a little different..The more you know about your cancer, the better off you are..Best of luck to you and welcome to the group...
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 3/24/2011 3:37 PM (GMT -6)   
Sparrow, were you taking any medication for enlarge prostate? These medication tend to lower the PSA reading by 50%.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 3/24/2011 3:59 PM (GMT -6)   
Hi Sparrowhawk,

Welcome to the forum but sorry you had to find us this way. We are a supportive bunch in here and all help each other through the up and downs of PC and will do what we can to keep you positive and keep your sense of humour going as well. There is light at the end of this tunnel so keep smiling when you can,

Take care, Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5815
   Posted 3/24/2011 4:06 PM (GMT -6)   
Excellent point Ed, Hey Sparrowhawk, can tell by your auto bio, we all should do that, profile has it, but its cool upfront, that you will stay on top of this in a cool,calm manner I was an AC3 , back when I was paid 116/mos, in cash by the paymaster,no sea duty, big regret, Have never had better friends than those I met in those 4 years. And the chow, specially, midrats, chocolate cow, have never been matched since. Welcome, thanks for letting us be a part of your family. You have and will get great knowledge and support.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

GOP
Veteran Member


Date Joined Dec 2010
Total Posts : 657
   Posted 3/24/2011 5:16 PM (GMT -6)   
Sparrowhawk (love that name),
First of all, thank you for serving. I'll be briref, but I would hope that you would do yourself a favor and at least do the research on brachytherapy. If, after doing so, you still lean towards surgery, then by all means go for it, but having been where you are, I am very very glad that I chose brachy. God Bless you, Man. .....Sparrowhawk...Love it!!!

Sparrowhawk
Regular Member


Date Joined Mar 2011
Total Posts : 130
   Posted 3/25/2011 4:47 AM (GMT -6)   
Thank you for the Thank you's! It was my honor to serve our country!
Please let me take this time to thank all the Veteran's who are on this site for their service to the US of A!
Bluenose, that's quite a handle! Wonder how many know what it means? I could always sign up Shellback! Thanks for pointing me in this direction. I've got my sea anchors ready to go, awaiting the high seas and heavy rolls, double tie downs on all top side birds! No friggin way I'm ready to join the Final Cruise Crew yet!
I've been having my work ups done by the Veteran's Administration Hospitals in my area. Don't mis-understand me, a majority of the care I've received has been top notch. I now feel that PC is an area where the VA sorely lacks in treatment procedures. I surely don't want interns doing my surgery! My colonoscopy went very well and I'm thankful to the Dr. who was on his game and found the "cyst" on my prostrate. From there things have taken a turn down hill. I am now focused on consulting Drs. in the private sector for answers and treatment when I make up my mind what that will be.
I agree with those here who have suggested a second biopsy. I'm going to arrange that, with the samples sent to a specialist. I have a feeling my first biopsy cores have gone the way of Bio-Waste by now.
No, for those that asked, I was never treated for an enlarged prostrate. My Dr. knew about this condition but never mentioned treatment. I've never taken any medication for this condition.

You guys have it wrong, it's not a club nobody wants to join. It's a club with an exclusive membership, made up of men with the determination to fight the battle and survive!

Sparrowhawk: yeah it's a nickname I picked up as Boy Scout. I've stuck with it. Neat little bird.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/25/2011 6:06 AM (GMT -6)   
Bonkhoff is the world's premier pathologist: 
 
(since nobody is interested removed the information- smurf )

Post Edited (zufus) : 3/25/2011 12:18:57 PM (GMT-6)


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5815
   Posted 3/25/2011 10:09 AM (GMT -6)   
Hey don't do a second biopsy, we are advising second opinion on initial biopsy, Your slides are definetly not in biowaste can. Prostate biopsy readings are subjective. The local pathologists read all kine slides of different cancers, yes, each cancer looks has a signature look. Prostate cancers have different grade, some more aggressive than others. The local pathologist are not as good at reading them as a pathologist that specializes in PCA. You need to get Walshes book and study the PCA sections and understand them or some prostate book. We can only help so much. At this point you have a lack of knowledge, we all did. You must educate yourself, which you have begun by joining this forum.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 3/25/2011 10:55 AM (GMT -6)   
Zufus,
Do you know what a read out like Bronkoff's cost compared to what Bostwick's does? Will insurance cover Bronkoff because it is done in Germany?
Sparrowhawk,
They keep biopsy slides for at least 10 years, so yours should be good.
JT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3738
   Posted 3/25/2011 11:09 AM (GMT -6)   
Epstein at Johns-Hopkins is also a good choice for that second pathology read....I doubt his and Bronkoff's analysis will differ very much...
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

Sparrowhawk
Regular Member


Date Joined Mar 2011
Total Posts : 130
   Posted 3/25/2011 11:12 AM (GMT -6)   
John T said...
Sparrowhawk,
They keep biopsy slides for at least 10 years, so yours should be good. JT
Backing up the train! So what I should do is find out if my "slides" are available from the Veteran's hospital.  I would then only have/need a second biopsy if the slides have gone thier merry way. 

Sparrowhawk
Regular Member


Date Joined Mar 2011
Total Posts : 130
   Posted 3/25/2011 11:15 AM (GMT -6)   
logoslidat said...
Hey don't do a second biopsy, we are advising second opinion on initial biopsy, Your slides are definetly not in biowaste can. Prostate biopsy readings are subjective. The local pathologists read all kine slides of different cancers, yes, each cancer looks has a signature look. Prostate cancers have different grade, some more aggressive than others. The local pathologist are not as good at reading them as a pathologist that specializes in PCA. You need to get Walshes book and study the PCA sections and understand them or some prostate book. We can only help so much. At this point you have a lack of knowledge, we all did. You must educate yourself, which you have begun by joining this forum.
Thank you, you're helping greatly.

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5815
   Posted 3/25/2011 1:17 PM (GMT -6)   
If you have been diagnosed with PCA, I cannot think of a reason why you would need another biopsy. I don't know much about color doppler, John T does. A gleason 7 is mdt risk, some would say hi risk. 3+4 less so than 4+3. See this is where you really need to study walshs book, concentrate on PCA sections. You can only ask good questions of us, with some knowledge. The info is not necessarily, complicated, but there is a lot. Not a scold, you are brave with a lot on your plate, and your'e scared, we all were/are. Trust me on this the more you learn, that fear will reduce proportionately. As you learn and find some thing you don't understand pls ask, always ask!! Thats what keeps this boat, ahem, ship afloat. Some one help him the slide logistics plz! I really don't know! Your appreciation of our help has made my day.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5815
   Posted 3/25/2011 1:24 PM (GMT -6)   
Oh yeah, Pls respond to ED C.'s post on medication for other prostate problems. It would lesson the chance of a variant. John t and and others here would know more about that. We have some extremely knowledgeable people here willing to share.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 3/25/2011 2:12 PM (GMT -6)   
Welcome Sparrowhawk to our elite club! This place is full of info and suggestions to help guide you and ease your mind. I just wish I would have found this place earlier than I did. These are great guys here!
As I am just starting my recovery and seek and destroy mission here,there is not much more I can give but mental support and may be make you smile once in a while.
Good Luck and don't be afraid to ask questions or just vent because some times we all need to scream real loud about this silly disease!

Dave aka Slink
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 3/25/2011 6:51 PM (GMT -6)   
Sparrowhawk
First of all thanks for your service to us who didn't
 
I was 50 years old when I was dx so I know the feeling of I'm only 50.
Unfortunately, my family history and psa 5.8 to 6.3 in 6 wks said I had to do something.  Mortality in uncles (3) less than 62 said move.
 
My gleason was only 3 + 2 with 40% but as above, couldn't wait.
 
Your young but need to make intelligent decisions based on your present health as well as your FAMILY history.  Some families don't have track record I have so your decision could be different.
 
Dependent on your family, may also affect your treatment from RP, to radiation to ?.   If you had my family, I wanted to have options if PC showed up after the first treatment.  For me the RP, and its after affects was the best choice (10 years ago) so that if PC showed up I had Chemo and Radiation followed by HT.
 
The first thing is to take deep breath and review your options.  Second opinions on biopsy may be first.  Followed by finding an expert urologist which you are comfortable with - he may not have expert creditenials but you are comfortable with and he knows his limitation.  Once you have that, go from there.
 
Good Luck and God Speed
 
Tom

Sparrowhawk
Regular Member


Date Joined Mar 2011
Total Posts : 130
   Posted 3/29/2011 9:50 AM (GMT -6)   
Tom, I was proud to serve, you're welcome.

What were already confusing decisions have become more so by a bombardment of information.
My anger has returned full bore. I am so pissed off with the VA medical system at this time! I requested and received my full medical record. What's disturbing to me is the lack of notations to my medical history. Having been told for years that my PSA is normal, there is no indication of that in my record! I have also had an enlarged Prostrate for years, yet there again is no notation of this in my record! So I now have some 300 plus pages of worthless paperwork cluttering up my workspace! If it were not for the pathology, radiology reports none of this paperwork would be worth a darn.
So I've turned to the private sector to get more informed answers and over all better care.
I'm still not convinced that Radiation is the way to go. My cancer has not been "staged" something that has me concerned. Alleged to be confined to just the prostrate at this time I am looking into surgical options as a means to rid myself of this mess.

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1404
   Posted 3/30/2011 3:34 AM (GMT -6)   
Sparrowhawk, I am so sorry the VA didn't keep proper records, and your anger is justified.  The men (and women) that post here are very helpful and supportive.  Yes, there are wives, girlfriends, mothers, sisters, and daughters who seek help and support.
 
You know the saying... knowledge is power.
 
My husband served in the Army during the Vietnam War.  We are most grateful to those serving our country.  Thank you!  May God bless you as you begin this journey. 
 
Best regards,
Aimzee
 
 
Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 grams
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days
ED / NO incontinence.
Went to rehab to build up Pelvic floor
Post Surgery PSA 8 weeks - .01
6 mo. PSA - .01
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