Announcing the new HealingWell Blog

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Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9791
   Posted 3/24/2011 12:21 PM (GMT -6)   
It has been a long time coming, especially since blogging has been around for over 10 years now. But I'm pleased to announce today I've launched the new HealingWell.com Blog. To get there, just click on the "BLOG" tab at the top menu, or visit directly at blog.healingwell.com.

Please leave your comments on the blog, I'd love to hear your thoughts!

Peter
Peter Waite
HealingWell.com
www.healingwell.com

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/24/2011 12:53 PM (GMT -6)   
Thanks, Peter, awesome!
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5875
   Posted 3/24/2011 3:16 PM (GMT -6)   
I'll double down on that, wow be prepared for increased workload. As we say in Hawaii, " Can Handle! "
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 3/24/2011 3:38 PM (GMT -6)   
I wanna know why for some reason I thought Peter was about 80 years older then he looks scool

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 3/24/2011 3:43 PM (GMT -6)   
I must admit I am somewhat behind when it comes to tweets, blogs, facebook, and all the other new stuff (unless it has something to do with digital imaging). How does a blog differ from a forum? 
 
The only dumb questions are the ones you did not ask....
                                                                                                                             Mr Bill
                                                                      

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/24/2011 4:18 PM (GMT -6)   
Bill,
A blog is an online posting center for someone who would like to publish articles, information or even an online diary. Mine is below in my signature and has over 20,000 visitors and 500 friendly replies.

Here is another blog that is put out by an oncologist friend of mine ~ a blog that is out of this world cool. www.integrativeoncology-essentials.com/ioeblog/

It's what you would want to make of it and it can be many things. Again see mine and you can get my story about living with prostate cancer in a page that deals with real life experiences through faith and tribulation. I started my blog because I wanted to have a place to safely speak about my real belief in the role of faith in my cancer journey. It has been modeled that way by me, but i could be talking about golf and prostate cancer or whatever. It was my goal to let others like me know of where they can find out more about such things. As it turned out it was even better therapy for me.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 3/24/2011 4:44 PM (GMT -6)   
Tony,
The explanation is now apparent to me.  I knew the difference between a forum and a journey posting such as yours.  I guess I should have "thought before I shot."  Insofar as your blog is concerned, I find it to be very enlightening and certainly adds insight, dimension and those rays hope that we all need.  Keep up the excellent work. Both with your blog and your responsibilities as forum moderator. 
 
Bill

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 3/24/2011 4:54 PM (GMT -6)   
Thanks Peter thats great, i have been keeping a public online diary since i got my diagnosis last October and it has helped loads, i might copy and paste them into the blog so my journey through this can be shared.

Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 3/24/2011 4:59 PM (GMT -6)   
Tony,
That blog put out by your friend the oncologist is awesome...

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/24/2011 8:50 PM (GMT -6)   
Bill,
Brian is one cool cat. He is as sharp as any presenter I have seen. His website is a "labor of love" and there is nowhere to pay for or buy anything. It is by far the best such site I have seen.

His work on the blog is just a piece of the site. But he posts there regularly and never a bad post.

But I will put the superlatives down and just say, he is a great guy and I am happy to have new and very kind friends in himself and his lovely wife...

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 3/25/2011 4:35 AM (GMT -6)   
Tony,
Please give Brian my "Thank You."  It is folks like him that make this somewhat unpleasant journey a little more tolerable.
Bill

montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 3/25/2011 5:34 AM (GMT -6)   
Great Blog from your oncologist Tony. Thanks for posting. I have emailed the pdf of his diet blog to a gentleman I know who refuses to change his diet after his prostate surgery. again thanks for posting the link.

Ron
diagnosed sept 2006 @ 54 years old, live in Georgia, gleason 3+4=7, (r) lobe only

psa 4.7 (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern. If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006. Path-negative margin, negative lymph nodes, negative SV, both Lobes involved, 40% gland involved
multifocal perineural invasion, Gleason 3+4=7

1st psa April 2007-<0.04, 6 mos-<0.04, 9 mos <0.04, 1yr <0.04, 21 mos <0.04, 2 yr 0.04 (rising?) 26 mos-0.05, 27 mos-0.04, 29 mos 0.06 Sept 09 ,<0.04 3 year <0.04 39 mo. 0.07 (rising again) 0.07 2 different times 3 mos apart.,now seeing Rad. Onc. next 2 tests with him 3 mos apart <0.05.

Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9791
   Posted 3/25/2011 4:20 PM (GMT -6)   
Thanks all, please take a moment to leave your comments and especially ideas for future blog posts! I'm also looking forward to having Tony contribute as a guest author. By the way, I'm 46 years young.

Peter
Peter Waite
HealingWell.com
blog.healingwell.com
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