some improvement

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Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 3/24/2011 8:39 PM (GMT -6)   
Good news, my 10 month PSA numbers came back at 0.04 (undetectable) and I've graduated to 6 month PSA checks from 3 month. I've never woried about my PSA number prior to tests as I feel as though PCa is behind me.
Unfortunately I'm still dealing with incontinence 10 months out, I recently switched to a lighter feminine pad (Tenna) which is thinner and less expensive, my leaking is down to 1 per day but 2 if I'm doing strenuous work. I talked to my uro yesterday about the leaking and he said "won't prescribe drugs" and "give it more time". For me those were the right answers, I'm not going to do anything but exercise for a year and a half before I begin to look at options. Hopefully I can conquer the leak the same way my ED eventually corrected itself...with patience and a positive outlook.
I feel good and I'm enjoying my new freedom since retiring last month.
 
R

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 3/24/2011 8:43 PM (GMT -6)   
Arch
As you say "good news"
Best of Luck
Hero

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 3/25/2011 4:13 AM (GMT -6)   
Great News.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 3/25/2011 6:52 AM (GMT -6)   
Glad to here you are making progress on all fronts.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/25/2011 7:04 AM (GMT -6)   
Arch, that's great news on the PSA front, and hopefully, you will see improvement on the incontinence front soon.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

MikeS24
Regular Member


Date Joined Oct 2010
Total Posts : 131
   Posted 3/25/2011 7:45 AM (GMT -6)   
Arch:  I am right behind you with close to 8 months post surgery and still have a small amount of incontinence.  My urologist said to be patient and wait it out.  He said do not compare yourself to others who end incontinence earlier.  Everyone progresses at an individual pace.  I am down to 1 pad per day as well and very little leakage in that pad (12 cc to 15 cc) for my waking hours.  I was told to watch my fluid intake and cut back more.  I have been drinking around 64 ounces of water per day.  My doctor said that was way too much and to start to slowly cut back to the point where I drink only when thirsty.  I admit I force fluids during the day and it does create more leakage.   One day at a time.
 
Mike S.
Dx 56
Biopsy: Gleason 3+3=6, PSA 6.6 One core of 12 with 5% T1c
Surgery: July 2010 J. Hopkins
Path: Gleason 6, Neg Mar, Neg LN, Neg Sem Ves
9/15/10 1st post op PSA <0.1 undetectable
3/11/11 PSA - TBD <0.1
Incontinence - seeing some progress
Aug -Sept 2010 - 4-5 pads
Oct 2010 3 pads
Nov 2010 2 pads
Dec - Mar 2011 1 pad all day -slight leaking
ED: slow steady improvements

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 3/25/2011 8:10 AM (GMT -6)   
Mike S,
 
your situation sounds almost identical to mine, I also drink 6-8 glasses of water per day, usually toward the evening when I know I'll be sitting and able to control any leakage. I don't have a scale to weigh my leakage so not sure how much I leak. Its hard not to compare the progress of others but I guess I just accept my slow progress as long as I see movement forward.
 
thanks everyone for your comments.
 
r
age 56
PSA 5.5
Biopsy, both lobes PCa
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
Sept 22, 2 pads a day
Oct 12, PSA 0.03
Dec 1.5 pads a day
ED OK with no drugs Dec 2010

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 3/25/2011 6:21 PM (GMT -6)   
That is great Arch. Good luck the rest of the way.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 175
   Posted 3/25/2011 7:39 PM (GMT -6)   
congratulations
the best you can do naturally the better.
I was on a killer drug trofinil which helped but was antidepressant and side affects of Sugar hungry and sleeping all the time helped me gain 50 lbs.
So your urologist is right, the less the better.

So far so good
Great job
Tom
Prostrate Cancer 2001 RP 50 years old PSA 6.8 Gleason 3 + 2 40% T3bNxMo moderately differentiated adenocarcinoma RP - cancer apex area, nerve sparing not successful Bulking using both collagen and teflex unsuccessful for continence. 4 sets of strictures within 1 yr after RP - 3 manual and 1 rotorotor -9/2010 stricture - suprapubic catheter folled by Homan Laser. AMS800 1/22/11. Dry 3/9/2011

lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 3/25/2011 7:49 PM (GMT -6)   

Arch,

That’s great news. Keep that positive outlook and those zeroes coming.

Lynn
Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6069
   Posted 3/25/2011 8:12 PM (GMT -6)   
Beside the kegals, work to strenthen your core. Beside the skill of the surgeon, I attribute my years of distance running, which will strengthen the core, to my 99%+ continence day of catheter removal.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving
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