Surgery to Possible Mets - 15 months (must be a record)

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Jerry L.
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Date Joined Feb 2010
Total Posts : 3072
   Posted 3/24/2011 9:36 PM (GMT -6)   
Just got word from latest CT scan. They are seeing a potentially concerning bone lesion in the left inferior pubic ramus (pelvic bone). It appears larger than what they saw before on any prior CTs or MRIs. They want to correlate it with my bone scan as last bone scan was negative for disease (June, 2010). I have a new bone scan next Thursday. Might also get a MRI.

I believe HT to start regardless.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05
March, 2011 .09

Tony Crispino
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Date Joined Dec 2006
Total Posts : 8128
   Posted 3/24/2011 9:39 PM (GMT -6)   
Jerry,
Hang in there. Lots of managing still to do and a remission to still hope for. i know many guys who have done well in spite of this type of news.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

Herophilus
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Date Joined Sep 2009
Total Posts : 664
   Posted 3/24/2011 9:39 PM (GMT -6)   

Darn, Hope things work out.  Best of luck

Hero


goodlife
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Date Joined May 2009
Total Posts : 2692
   Posted 3/24/2011 9:42 PM (GMT -6)   
Jerry,

Sorry to hear, but also thankful that they have found it and possibly remove the area.

This is precisely why I have latched on to Snuffy Myers philosophy who says that adjuvant or SRT should do the entire pelvic region, because that is most likely where the PC is going to spread. I am in the process of getting my RO to do agree to it.

Good luck on your journey.

Goodlife

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 3/24/2011 10:01 PM (GMT -6)   
Jerry:
 
So sorry to hear that. With such a low PSA, they normally do not do any scans. Was it the G9 that made them do it?
 
Hope this turns out to be a false alarm.
 
Mel

Old Sailor
Regular Member


Date Joined Aug 2009
Total Posts : 209
   Posted 3/24/2011 10:12 PM (GMT -6)   
Jerry, sorry to hear of your situation, a lot like mine.  RP in August 09, SRT Apr-May 10, Bone scan 11/10/10 found one met in same area as yours.  Started HT 11/26.  Another bone scan next week to see where we're at.  My PSA when met found was 1.0 - Medical Oncologist says very rare to find a met when psa below 10!!  OK, so now where do we go?  The Old Sailor

142
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Date Joined Jan 2010
Total Posts : 7080
   Posted 3/24/2011 10:32 PM (GMT -6)   
Jerry,
 
Just a raft of good wishes headed your way -

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/24/2011 10:36 PM (GMT -6)   
Jerry,

I am so sorry about this news.

Know we are thinking about you.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 3/24/2011 11:28 PM (GMT -6)   
Sorry Jerry.

But you keep fighting, do whatever you need to do.

Perhaps you need to look into some clinical trials?

That XL184 showed some really interesting results..

http://clinicaltrials.gov/ct2/show/NCT00940225

I'm certainly pulling for you.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/25/2011 7:12 AM (GMT -6)   
Not the news you needed, Jerry. Feel bad for you.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/25/2011 7:27 AM (GMT -6)   
Best in the quest...

Post Edited (zufus) : 3/27/2011 7:20:35 AM (GMT-6)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/25/2011 2:21 PM (GMT -6)   
Jerry, sorry for the bad news. Hang in there, fella
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/25/2011 2:31 PM (GMT -6)   
Why is Combidex still being mentioned as a possible tool, when, according to this report, its no longer available anywhere, unless I misread it.

http://www.ustoowichita.org/pdf/COMBIDEX.pdf

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 3/25/2011 3:07 PM (GMT -6)   

I'm getting use to the tailspins that PC puts a patient in.  The time that it takes to recover from the tailspin seems to get less with each bad report, etc...  The bad news is that it seems that with each tailspin, the ground gets closer and closer.

With your help, I will evaluate options and go down roads probably travelled by countless others and perhaps go down a few roads that have not been travelled very much so far.  Either way --- I will carry on, live for the day, and hope for tomorrow.

Thank you all for your continued support.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 3/25/2011 6:13 PM (GMT -6)   
Jerry,
Sorry about this news. You still have more bullets in the chamber. Keep fighting and don't give up.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 3/26/2011 9:04 AM (GMT -6)   
BobCape:
 
Thanks for the clinical trial info.  I am not eligible for the one you mentioned (XL184).  It is for those that are no longer responding to HT.
 
Although one could argue that I'm not responding to HT since I'm not on it....yet.
 
Thanks anyways,
Jerry L.

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6069
   Posted 3/26/2011 1:03 PM (GMT -6)   
The follow up scan hopefully will get to the facts, remain calm and confident! No pain there could be a positive sign!
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 4/11/2011 6:10 PM (GMT -6)   
fyi ---- Bone scan and MRI has confirmed this.

Starting caseodex / lupron

Got to get that PSA down from .09
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05
March, 2011 .09

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/11/2011 6:52 PM (GMT -6)   
Jerry, hang in there, don't let the bustards get ya down
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/11/2011 8:13 PM (GMT -6)   
Good luck, Jerry, with the HT, both in terms of helping, and with minimal side effects. I am watching your case very carefully due to my own situation.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6069
   Posted 4/11/2011 11:07 PM (GMT -6)   
Darn mets with a psa of .09, and no pain I,m sorry i would get a second opinion on all those scans, even if its tru that some cancers don't put out psa. I just would. The longer I have with this PCA, my trust of the medical establisment gets weaker and weaker. Even if only 10% are weak, or just not very good in their job, thats alot. I certainly can come up with 10% in my career field who were " " " " " " " " " " ". Bet most of us can. And It isn't getting any better.. We as a culture seem to be living off the inertia of the great generation and sadly they are dying off, its scary...... the inability to create our own momentum as a culture . Note to myself, stay on point forget the tangents. Good luck. Even Old Sailors mets, from what I gleaned became questionable, or did I mis understand that one post last week or so. Just saying!!
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 4/12/2011 12:33 AM (GMT -6)   
Yikes Jerry, mets with a PSA of only 0.09?

With a rising PSA at this stage, HT is probably a reasonable step with or without mets. Like Logoslidat, though I'd be suspicious of the readings of the scans. But with three, CT, Bone and MRI, it seems highly unlikely for a screw-up on all three, unless of course it is the same person doing all three readings.

If it really is mets, then HT should make a difference -- good luck.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but now 0.4, doubling time 7 months
No radiation but ADT coming unless I can slow down the rise...

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/12/2011 5:52 AM (GMT -6)   
Jerry, I had a lesion on my spine that was picked up by an MRI and bone scan. I had a PSA of .31 at the time and no pain. RO was getting ready to hit the spot. I just couldn't believe it and asked for a biopsy. They did another scan first and decided that it was just a hemangioma. Ctearly we could be in different places, but the Uro and RO were ready to go ahead with treatment.

Very sorry about your situation. The day that I received the bone scan/MRI results of the lesion was the worst of my journey. You probably have already read Dr Myers book on HT and Diet, but if you haven't, you should. BB
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%, nerves spared, no negitive side effects of surgery.
PSA's < .01, .01, .07, .28, .50. HT 5/10. IMRT 9/10.
PSA's post HT .01, < .01

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6069
   Posted 4/12/2011 10:20 AM (GMT -6)   
In spite of my own bias about early HT, Piano is right the standard treatment is at your stage would be HT, but the anxiety has to be terrible. about the mets. BB fan your story reinforces my feelings. You know once we humans get something in our head we will always find a source of reenforcement, including doctors, lawyers and such, wahoo! At least try and get a consultation with the forces to be there and have them explain it to your satisfaction and if you get mumbo jumbo call them on it.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 4/12/2011 5:36 PM (GMT -6)   
I'm like 75% like David with a "strange calm upon me..." mixed with 20% nail biting horror and 5% disbelief...I think that's 100%...
 
I'm thinking about a needle biopsy to be completely sure.  I meet Thursday with RO to discuss possible radiation

Post Edited (Jerry L.) : 4/12/2011 4:40:47 PM (GMT-6)

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