ED & incontinence

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LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 3/25/2011 11:32 AM (GMT -6)   
After 17 months I am still wet (1-2 pads daily). I discussed the sling with my urologist but he wants to wait until I reach 2 years. He also said because of my weight sling might not work. He started me with a physical therapist. He is also reluctant to work on ED until I'm dry. My question is, are any of you guys incontinent and working on your ED problem?

I appreciate you comments.

Len
Age: 65

DX: 7/10/09

Gleason: 7

Biopsey: 2 chips with some cancer cells out of 30.

Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09 <0.1
2nd post op PSA: 1/25/10 <0.1
3rd post op PSA 4/19/10 <0.1
4th post op PSA 7/19/10 <0.1
5th post op PSA 10/11/10 -0.1
As of 11/4/10 Still Wet 2 pads per 24 hr. period

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/25/2011 11:49 AM (GMT -6)   
Len
Yep. Are you talkin' to me?

Not sure if you read my thread -Worried Guy's Incontinence Journey. It has more details than you ever wanted to know about incontinence and how and when I decided on the sling. I measured and plotted my leak every day. Sadly the curve flattened out and it was readily apparent that further progress was not in the cards for me.
I am in pretty good shape, BMI 21.5 5 '9" so I was the perfect size for the sling. There is a new model coming out for bigger guys that is expected to be on the market in April or May. Advance XP (extra performance.)

It's real easy for the Uro to say "Oh just wait another 6 months" . He's not the one with wet pants. I say if you have data, and you can see that you are not improving - (and your 2nd and 3rd order polynomial forecast curves both say that you will never reach zero) it is time to schedule the surgery.
It is life changing. Honest.

Now that the leak is fixed I have started on ED. My prescription for Trimix was just doubled since the standard dose didn't work well for me. :-(
I use the pump every other day - I figure it can't hurt. I'm not expecting miracles any more but I might get lucky.

Good luck to you
Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/25/2011 1:00 PM (GMT -6)   
Len, good luck on those two problems, i know its got to be frustrating this far out.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,
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