Thanks for the replies thus far. I was almost, for once, just going to keep this to myself. I hope now, that for some here that haven't bought into the danger of High PSA Velocity in the year prior to dx, my case will make a believer out of them now. My readings told me from the start, that with my initial pre-dx velocity issues, I was anywhere from 5 to 10 times more likely to die from PC, regardless of any treatments. So far, my case has been textbook perfect on that viewpoint. Trust me, it doesn't make me feel any better being right.
My uro's original suspicions on my case have held true, and his worry and concern has been dead on accurate.
He did say, and there's no way of proving this accurately, that with massive a rise in this short a time, again, that the PSA is being produced in any number of locations away from the prostate bed, anyone of the areas too small to show up on a scan at this point (remember, I just had a clear bone scan a month ago), but collectively, these multiple micro-metatisis are mutilplying quickly and producing these amazing fast rises in the PSA. Makes sense to me.
Yes, still shopping for a good medical oncologist, been following mutiple leads.
Just had a thought, what I have going on is like a nuclear weapon with multiple warheads. If so, this may be very difficult to slow down at best.
Part of me, and no, not in particular a death wish, but almost content just to let its run it course, it may just be my ultimate fate. Nothing has worked so far, and at the local level, the docs aren't putting much hope on HT lasting for long with a case like mine. They may or may not be wrong.
As we all say, it is what it is. This has been a journey from hell right from the start. I am not saying a deserve a break, just another smuck with PC, but I certainly haven't had any breaks with my treatments and side effects. Oh year, I forgot that I still have no evidence of ED. But right now, I don't even care about that.
Meanwhile, I will continue to help as many people as I can, for as long as I can. PC is a vicious, mean-hearted disease. No one has it easy, some just have it harder. I know there are brothers here much worse off than me, I am very aware of that.
Thanks for the support.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,