WAITING FOR THE PHONE TO RING-- AGAIN

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anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 4/5/2011 2:32 PM (GMT -6)   
I just got my first PSA taken 3 months after my prostate removal. I had one spot that was rated Gleason 3+3=6 with a tertiary of 4. All other patholgy was negative. I hate this and hope I can get a break from being tested.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/5/2011 3:12 PM (GMT -6)   
A out of the Roof:
-wishing you all the best for a good result... am warming up a zero club chair for you (PSA<0.10 - there is no such thing as an absolute zero)

- keep in mind, each doctor has their own routine for post-op tests - depending on the numbers and pathology report - 3 months - then graduate to 6 months and then yearly and ...
-in Canada, we generally have to wait 2-3 weeks to get the PSA results - they are currently working on making it faster -

- write down the numbers they tell you - remember "less than" if stated - and where the zero's and dots are... ie. 0.05 is not the same as 0.50 or 0.005... and read it back to them - they can read the numbers wrong... and it is easy to get befuddled in a stressful situation...

- we have had posters here on HW panicking due to receptionist/nurse error...

-hugs,
BRONSON
-
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

Post Edited (tatt2man) : 4/5/2011 2:59:16 PM (GMT-6)


DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 4/5/2011 3:18 PM (GMT -6)   
Good Luck!
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 4/5/2011 4:38 PM (GMT -6)   
Anxiety.
I had my PSA tested every 3 months for the first year. If the result is undetectable, you will get tested every six months and for another year or two and then once a year if your still in the zero club.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21 months) undetectable
Latest PSA test (2 years) <.008 ?

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/5/2011 4:59 PM (GMT -6)   
and call and bug them. doctors sometimes lose track of how anxious we are for those results.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 4/5/2011 5:03 PM (GMT -6)   
good luck and hopefully smooth sailing into the zero club.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 4/5/2011 5:53 PM (GMT -6)   
If you haven't already inquired, you should ask how quickly you can get the results. There's nothing more frustrating and scary than that first wait. Here in British Columbia, the results are online for the patient 24 hours after the blood is taken. (Tattman, take note! BC is not Ontario!) My uro, however, doesn't call for 3 or 4 days, and by then, I've moved on (because all the results thus far are less than.01, 11 months test yesterday). I wish you the best of luck and agree the zero club is about to welcome a new member!
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8 biopsy)

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/5/2011 7:24 PM (GMT -6)   
dearest fertree - once again the rivalry between BC and ON ( British Columbia and Ontario, Canada) rears it's head !
:-)
I am very pleased to announce that Sunnybrook Hospital, Toronto, Ontario is now able to give men their biopsy results in 72 hours - it even merited a press release !
sunnybrook.ca/media/item.asp?i=623

Congrats on the zero club membership - and for those upcoming members !
smithmeek.com/zeroclub.jpg

hugs to you and yours,
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

Post Edited (tatt2man) : 4/5/2011 6:27:18 PM (GMT-6)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 4/5/2011 8:44 PM (GMT -6)   
Welcome to the anxiously awaiting PSA tests results club!
 
Good luck -- we all know the feeling
 
Mel

proscapt
Veteran Member


Date Joined Aug 2010
Total Posts : 644
   Posted 4/5/2011 9:43 PM (GMT -6)   
I always want to get an actual copy of the results for my own file; they will fax it to you on request. that is extra protection against someone misreading a report and dropping a decimal point.

That said, with a gleason 3+3+4 and clean pathology the odds of having anything bad show up are *extremely* low, maybe even less than 1%

fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 4/6/2011 12:29 AM (GMT -6)   
Bronson, I am amazed how they claim to be the first in Canada to provide 72 hour results, when here in BC they're available in 24 hours! But then again, I amazed at some of the claims uro's make as well! As for your Zero Club jpeg, I would love to have that as a bumper sticker!
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8 biopsy)
PSA 06/22/10 >.01 09/22/10 >.01 01/06/11 >.01 04/04/11 >.01

Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 4/6/2011 5:40 AM (GMT -6)   
Here in Thailand you have your blood taken 2hrs before you see the doctor and he gives you your PSA result all done normally by 9.30 am

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3744
   Posted 4/6/2011 7:28 AM (GMT -6)   
Before I leave the doctor's office I make sure my blood test request form has my name in the second "cc" box. The first "cc" box has my primary care physician's name. The complete report is mailed to me about two days after the test. I keep a copy of the records in my own file - and plot it on my spread sheet, of course.

Hey fertree, I like the idea of having results online for the patient. Very efficient.

Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 4/6/2011 10:10 AM (GMT -6)   
Actually, a friend of mine is a physician in town. I always include him on the list of doctors to get the report. I email him when I want the results and he emails it to me. He then has his office mail me an official copy.
 
Mel

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/6/2011 10:23 AM (GMT -6)   
Did you get the results?

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 4/6/2011 2:44 PM (GMT -6)   
no still waiting

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 4/10/2011 3:28 AM (GMT -6)   
Finally got my results. You can add me to the zero club. WHEW best news in a year of waiting for phone to ring.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/10/2011 8:15 AM (GMT -6)   
Congrats on the less than .1 zero club... smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 4/10/2011 9:07 AM (GMT -6)   
This is wonderful news, congratulations
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/10/2011 9:13 AM (GMT -6)   
anxiety-
- congrats on the zero club membership - PSA <0.10 - there is no such thing as an absolute zero -
smithmeek.com/zeroclub.jpg

Hope1- wishing you all the best with your numbers - hope your numbers are still undetectable - saving a chair for you -

hugs,
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 4/10/2011 3:52 PM (GMT -6)   
Mine read less than .05. I'll take it. Hope 1 I know exactly how you feel. Check out my name.

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 4/10/2011 6:26 PM (GMT -6)   
Colin45 said...
Here in Thailand you have your blood taken 2hrs before you see the doctor and he gives you your PSA result all done normally by 9.30 am


I have it just about that good here in Illinois. I go at lunch time to the Copley Hospital out-patient center and have my blood drawn.
Then on the way home I stop by there again and ask for the results. They give me a computer printout of the results.
All I had to do was ask my doctor if I could have it done at the hospital out-patient center.
location: Batavia, IL
dx age 57 2/2010 PSA 8.2
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from Johns Hopkins 4+4=8
PSA 15 4/2010
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 palladium 103 seeds 7/2010 at Chicago Prostate Center, Westmont, IL
PSA
Oct 3.97
Dec 2.78
Mar 2.42

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 4/10/2011 7:59 PM (GMT -6)   
Great News!
Hero
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