Posted 4/12/2011 8:29 AM (GMT -6)
Richard, thanks to taking the time to share your experience. You certainly have been through some tough issues yourself, and you are doing what you feel is right for you. This is how it should be. Don't worry about being "newer" here at HW, my policy to is to treat all PC brothers as my equals.
A point I don't seem to project correctly, is many feel I should jump on HT right now, with a skyrocketing PSA post savlage radiation. Sounds good on paper perhaps. But its not that simple. I have been through physical hell since late 2008, and only had a single 3 months period of time where nothing bad or painful was going on. And that was early in 2009. The rest of it has been terrible and traumatic at best.
I am also told, try HT, and if you don't like it you can quit it, nothing loss. I don't exactly agree to that line of thinking. I have already been badly "burned" twice doing what I was told to do with my failed primary and secondary treatment. I don't want to jump into HT, and have miserable side effects and even more emotional damage.
If I knew it would work, I would be more inclined, but no one can guarantee that. My track record for my entire medical history is that of complications, sensitivities to meds, bad side effects. This has been going on for 30 years of my life, not just my PC journey. This is my 4th bout in 11 years with a dangerous cancer.
This next statement is very personal and subjective, not critising anyone in particular, but I have been here a good while, certainly not an expert on any thing, just a "well tested PC pateint". But I see far more posted by men about wanting to talk about "quantity of life" as opposed to "quality of life".
Again, that part is personal, and it has to account for the sum total of what an individual values and how their lives have played out to that point in time.
As a nurse, my wife is dealing every single day, with patients (or more often, families of patients) fighting for the quantity part, while suffering endlessly with little if any quality of that life they have gained. Again, each person would view this differently.
If I went HT and it failed, then what would people say? Oh well, David did surgery - it failed, and put him through a year of hell, he did SRT - failed, and put him through even a worse year of physical pain and hell, and btw, he lost his bladder in the process, and he did HT - oh it failed, and he took on a new batch of side effects and issues.
This is what my gut tells me. My gut told me that SRT wasn't going to work, and that would produce terrible side effects (based on my previous major radiation treatments 11 years before).
If I were a betting man, you can see where I am coming from.
Thanks for writing, thanks for your support, and thanks for your care. I hope you can continue to hold off the monster in your own life, or at the least, control it.
David in SC