One shot of Lupron...coming right up....

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Concerned4You
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Date Joined Dec 2010
Total Posts : 94
   Posted 4/8/2011 1:12 PM (GMT -6)   
The follow up appointment was today. Dad's PSA went up from 5 something 2 weeks ago to 6.9 today (obviously not good news).
 
The doctor said it means the surgery wasn't successful (as we've all said). He advised not waiting any longer and gave him a Lupron shot.
 
I asked alot of questions --- particularly about radiation. He said he has "Micro-Mets" which I've read about in Dr. Walsh's book. He doesn't think radiation would be beneficial right now but may consider it after the next hormone shot (and once the cointenence) comes back.
 
He also said there is one test that isn't used anymore... it starts with a "P". It's a nuclear medicine test that puts dye into your system. It's for Prostate Cancer patients only and will do a scan (similiar to a bone scan) and identify areas where mets has set in. He said it's not favored by many doctors anymore and hardly anyone does them, however, he's doing to do some research on it as he thinks it might be beneficial for my Dad's case.
 
Has anyone had this test done .... or know about it?
 
For now... he gave him the Lupron and said he'll see him in 4 months when he'll retest his PSA. SCARY.... 4 months is a long time!!!

zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 4/8/2011 1:28 PM (GMT -6)   
Prostascint scan probably....useless in my estimation(can give false positives-great money maker), their are other scans even better...).  :-)
 
 

Post Edited (zufus) : 4/8/2011 1:24:11 PM (GMT-6)


BB_Fan
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Date Joined Jan 2010
Total Posts : 1011
   Posted 4/8/2011 1:39 PM (GMT -6)   
Agree with Zufus, it's time for you Dad to see a Medical oncologist for treatment. It would be best to get a specialist in prostate cancer.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%, nerves spared, no negitive side effects of surgery.
PSA's < .01, .01, .07, .28, .50. HT 5/10. IMRT 9/10.
PSA's post HT .01, < .01

Concerned4You
Regular Member


Date Joined Dec 2010
Total Posts : 94
   Posted 4/8/2011 1:40 PM (GMT -6)   
Zufus,

Thanks. I asked about false-positives. He said the test he is considering doing isn't likely to give false-positive readings. It just isn't as well liked because it doesn't often give enough information. I'm not sure if it was the "Prostasctint Scan". He was going to do some more research.

As for seeing the uro-doc rather than an oncologist. He feels at this point he can treat him w/the hormone injections and give him a good shot at a long life. It's scary... but we do trust him. He is a very caring doctor and seems to know his stuff. We know the cancer isn't curable --- but it's still treatable.

zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 4/8/2011 1:52 PM (GMT -6)   
Gone fishing 

Post Edited (zufus) : 4/8/2011 1:24:58 PM (GMT-6)


Putt
Regular Member


Date Joined Aug 2010
Total Posts : 154
   Posted 4/8/2011 5:26 PM (GMT -6)   
Concerned
Your Uro might be caring and trustworthy, but like other have mentioned, you need to find an Oncologist who specializes in PC.  Your Uro has exhausted his tool chest already with surgery and injections.  The injections may be required, however, you need a long term strategy that can only be provided by an Oncologist, who BTW can also provide the hormone treatments.
PSA at Dx 105 at age 68, 4/04. ADT (Lupron only), RRP, 5/04. Gleason 4+5=9, Staged pT3bc NO MO, 3D rad, 40 treatments, 8/04. PSA 1/05 <0.01. ADT till 7/07. PSA 0.03 12/08, 0.07 4/09, 0.13 8/09, 0.19 12/09, 0.30 4/10, 8/10 0.42, 12/10 0.47. Will start ADT3 after PSA reaches 1.2.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/9/2011 6:33 AM (GMT -6)   
Best to you in your decisions.

Post Edited (zufus) : 4/10/2011 5:31:08 AM (GMT-6)


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6087
   Posted 4/10/2011 8:25 PM (GMT -6)   
What are you trusting him for and why. Do you trust him as an old family doctor or as a specialist that can keep your father alive for a long time. He definetly took PCA101, cause he gave the old lupron shot and set him up for another one Ask him this question. Do you think that you have as much knowledge and insight into this disease as a medical oncologist who specialises in PCA. Also would you please , pretty please with sugar on it tell us how old your father is. Ive asked this question of you at least twice. Its impawtant!!!! Take this as tough love . I feel like asking you to put your father on the line. You came to us for help, help us help you. I can see staying with a local urologist when your talking, biopsy, diagnosis and certain treatments . But once the cat is out of the bag so to speak, you need an oncologist, be it local or distant. And while you are at it since its PCA that is the issue, a urological oncologist , better yet one who specialises in PCA. You thoughtfully and wisely joined this forum. These are not ck marks to ck off like a gp does with a psa form. You chose to be the front person on this. you aren't required to do what anyone suggests, but find your consolation in your knowledge, not the warm fuzzy feeling your urologist givs you.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6087
   Posted 4/10/2011 8:34 PM (GMT -6)   
BTW, if your father is in his late 70,s to 80's a whole bunch of specialists would say not to treat at all that he will die of something else first so why have him go thru the SE. We all talk about QOL, but there reaches a point in life where life itself gives off SE's
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/11/2011 6:08 AM (GMT -6)   
More info from U. of Mich. on mets:
Today, University of Michigan (U-M) scientists announced that they believe prostate and breast cancer cells specifically target and eventually overrun the bone marrow niche, a specialized area for stem cells that produce red and white blood cells. The cancer cells can lay dormant in these niche regions for years before reactivating and resulting in disease recurrence.

“This news from the University of Michigan represents a potentially important and targetable pathway that may someday be targeted by new drugs to stop bone metastatses before they take root,” says Howard Soule, PhD, PCF’s chief scientist. “We will continue to follow this research closely.”

Kenneth Pienta, MD, one of the study’s authors and is also a PCF-supported researcher.

The complete U-M news release follows.


--------------------------------------------------------------------------------
It appears your doc gave Lupron without casodex prior...that prevents 'flare'....especially with a known mets patient....is inexecuseable and shows he is a novice compared to real experts in PCa! But never listen to others we dumb laypersons. Maybe count your current blessing on what flare could have done on a mets patient, knowledge is power.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/11/2011 9:23 AM (GMT -6)   
Logo, earlier the poster says this about Dad:

my father is 65 --- we're hoping for more than 12 years... we're pretty sure he's had this for awhile and just ignored symptoms as he didn't realize they were so serious!
James C. Age 64, Kingsport, TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6087
   Posted 4/11/2011 10:23 AM (GMT -6)   
Well there you go, I knew I should have reviewed the previous posts better, I was hard on her, but I stand behind the post and at that age and stage, its time for an upgrade in care, so much can be done.....
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving
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