Dr. Samadi on importance of PSA screening and quality of life issues

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davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 11:51 AM (GMT -6)   
Thought I'd post this video from an appearance Dr. Samadi made on Good Day New York. Those of you outside NY might not have had a chance to see it. He touches on some of the very issues some have brought up here in the last few days, the importance of PSA screening and retaining the quality of life issues we are concerned with. I couldn't agree with him more. I feel that PSA screening put my life back on track and certainly went a long way in prolonging my life and helping me avoid potentially experiencing this horrific disease in its more advanced stages. The fact that I retained complete urinary control from the minute my catheter was removed, and that I can continue to have sex with and without medication makes my entire decision to check my PSA, have a biopsy, and finally have robotic surgery performed by Dr. Samadi a no-brainer.

I can remember how scared I was when I first found out I had cancer. I think videos like this and testimonials by all people who have gone through this process are an amazing benefit to us all.

It is so important to catch this thing early because it can be beat and it doesn't have to affect our quality of life. I hope that new U.K. study on PSA screening doesn't adversely affect what young guys like me should be doing, getting your PSA checked so that at the very least you can establish a baseline. I think Dr. Samadi and other American urologists, oncologists and surgeons have made very good cases for the importance of this screening.

David

http://www.youtube.com/watch?v=Wr8EEhQrNl0

www.youtube.com/watch?v=Wr8EEhQrNl0


ps - hopefully this thread will not turn into another hostile exchange between people who chose different paths but rather, will help any new people who stumble here looking for answers to their new diagnosis.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/12/2011 12:37 PM (GMT -6)   
Sadly, I can practically guarantee conflict and disagreement. Since you posted it, and know what a touchy subject the good doc is here, we Moderators will be expecting you to offer this information as such and not use this thread to argue when the inevitable counter-points are made. At the first sign of one from either side, I will lock the thread.

Al others, let's keep it in the support, info, and help category. This particular issue has been discussed and cussed ad nauseum here and no further disagreement is needed. The original poster does have the same right to post information for sharing as anyone else.
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/12/2011 12:41 PM (GMT -6)   
He might be best in the world...wish he were alittle more humble like Dr. Menon and many others, Dr. Menon.. whom has been doing this longer is not mentioned in the video. The video says going into year 10 or such....Dr. Menon was first in the USA, I met him and the first LRRP patient in the USA returning for his follow up...we met in April-May of 2002. That is not 10 years yet and he was first for the proper record. Plus this doctor of yours says in one of his videos 4-5 patients a day...like it is all about speed and getting them in and out. I guess it depends on which side of the equation you are on.  Myself highly turned off by bragidiousness especially from doctors directly, even if one is worthy of such.

There are alot of great surgeons in this and with plenty of experience, seems Dr. Samadi is so busy that perhaps others should look elsewhere for highly qualified treatments, might not fit your schedules. You have plenty of guys herein whom are plenty pleased with whomever did there surgery, yet no huge acolades and balloons flying or parades. But glad for you or others whom might have gotten perhaps the best deal ever....let's talk more about 5 years down the road and see how that plays out. I am 9 yrs. out from my radiations from an expert, I don't think I ever mentioned his name herein in the last 2.4 years and I didn't go around endorsing whom he is....or endorsing where I got it done. Hhhmmm. I also am highly pleased and not messed up from it. But glad you posted this. I am sure you would love to know all about my doctor. James C. if this in need of retraction or repair, advise me...I would retract it immediately.

Post Edited (zufus) : 4/12/2011 12:48:04 PM (GMT-6)


davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 12:50 PM (GMT -6)   
I'm not concerned with who the first was. But as mentione din the link, I believe Samadi performed it before Menon. Not that it matters.

I think that ideally everyone would post their experiences, where they got these experience, what went well and what didn't. The more information out there the better. Just think of all the questions that haunted us form the minute we discovered we had cancer and the power patients who have gone through this and docs and surgeons have to alleviate those concerns.

It's like mention of Walsh's book and that other prostate snatchers book. When people here mentioned them I immediately drove to Barnes and Noble and read most of them. It;s information.

Not sure what my status in 5 years has to do with anything. No surgeon, doc is a miracle worker, if they were, they'd be saints, not doctors.

I posted this because it is related to the other two threads that were being discussed. It's good to hear a response from someone like Samadi who is an authority on the topics.

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 4/12/2011 1:11 PM (GMT -6)   
I for one vote to have this thread deleted. My nausea from the earlier thread has not diminished.
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4229
   Posted 4/12/2011 2:05 PM (GMT -6)   
two votes for removal
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 4/12/2011 2:14 PM (GMT -6)   
Wasnt on previous threads or read but not sure why it is being requested to delete?

I like seeing the posts with links of videos or articles Prostate Cencer treatment being brought up in the media. There can be debates on whether they are good or not but at least let us see the press?

Heck the PC topic doesnt make the news that much so I like to see the links to watch when I come to the forum...
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
7 Post Op PSA’s from 9/2008 to 11/2010: <0.1

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 2:50 PM (GMT -6)   
37! yikes. I'm 40. I have met one 34 year old.

Where would the three of us be in 10-15 years without PSA screening?

I think videos like this and many others need to be circulated as much as much as possible. I knew virtually nothing about prostate cancer the first few weeks after being told I had it. I wish good and reassuring information was available for me then.

I don't want to minimize prostate cancer at all, or my own journey, but it's important to understand how curable it is when caught early and how it can be treated even when not.

It's also important for men to know about how common this disease is. For some reason breast cancer gets a ton of media while prostate cancer not enough.

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 4/12/2011 4:24 PM (GMT -6)   
Thanks for the link
Hero

axle
Regular Member


Date Joined Feb 2011
Total Posts : 35
   Posted 4/12/2011 5:45 PM (GMT -6)   
Good basic info. I liked the question regarding how to deal with a mechanical breakdown. The doc seems like a confident surgeon. It is good to get the info out but I do wonder about how much PC is over-treated. As I was wondering that about my situation I probably waited a year longer than I should have.

Rob
Age 58; da Vinci on 1/26/2011
PSA History: 10/2005 = 1.7; 10/2007 = 2.8; 10/2009 = 3.6; 10/2010 = 4.9
Abnormal DRE in 2009; Increasingly abnormal DRE in 2010
Thank you POPs!
Biopsy on 11/23/2010: GS = 3+4 (right side) with 4 of 6 cores positive @ 40%.
Post-OP pathology: GS=3+4; tumor = 35%; pT3b; R. seminal vesicle invasion; Extraprostatic extension into the R. bladder neck; margins uninvolve

AJ 47 (Maryland)
Regular Member


Date Joined Aug 2010
Total Posts : 64
   Posted 4/12/2011 6:22 PM (GMT -6)   
First, the sad reality:  This is a business, a PR campaign and believe me when I tell you that the docs look for posts like this knowing they have patients coming their way.  So let's not fool ourselves.  They have TV interviews, Facebook, Twitter and all the rest because they know that  1 in 6 men will have the disease, and thus they have a pretty good chance of catching a few.   Sorry, but it's a fact.  I can even say that my experience involved some hype, some lunches, a concierge, and everything else to make me comfortable but yet positioned for me to tell the next guy what to do.  So when Menon is mentioned or Samadi is mentioned, they know and hope it will bring them clients.  And it's partly because the equipment is so expensive.  So, as impressive as it may be to get the return call the next day after an internet intake inquiry, it's business.  Pure and simple.
 
Now, with that being said, each patient will assess the doctor's disposition and reach their own conclusions as to the best "fit."  I for one would never use Samadi just because he's not a good fit for my personaility.  Yes, Menon this, Woods that, Tewari that, Carter this, Catalona that, Hu this, and all of those aces I missed, but we all make our decisions based on our circumstances, locale, and, yes, recommendations by friends and statements on listservs.  Believe me, before I made my decision, I Googled "who is the best prostate surgeon in the world."  Or, "who's done the most robotic RP in the world."  It doesn't take a rocket scientist to figure out what makes people choose or at least interview docs.
 
I make no bones about posting a particular doc's interview on TV.  We're all grown ups and to think that one person's kudos is going to make someone decide to us the doctor demeans the intelligence of those who are here looking for information and by now know that even the best surgeon can't dictate the outcome of this strange disease.  So, closing the dialogue by a "shut down" (with people asking it be done), while a threat, should be tempered by an admonishment that "to each his own" and "educate yourselfs." 
PSA 1.5 to 3.2 in 11 months. First 12 core biopsy on 2/10 negative in 11, atypical in 1. Second 13 core biopsy on 5/10 at Hopkins positive in 2 with Gleason 3+3 (focal). Robotic "Super VIP" Mani Menon 8/10. Postop G 3+4 (70%/30%). Focal ECE right posteriolateral mid. Neg. margins, lymphs, SV. Post op PSAs 9/14 <.1; 1/11 <.1; 4/11 <.1.

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 6:58 PM (GMT -6)   
AJ 47 said...
First, the sad reality: This is a business, a PR campaign and believe me when I tell you that the docs look for posts like this knowing they have patients coming their way. So let's not fool ourselves. They have TV interviews, Facebook, Twitter and all the rest because they know that 1 in 6 men will have the disease, and thus they have a pretty good chance of catching a few. Sorry, but it's a fact. I can even say that my experience involved some hype, some lunches, a concierge, and everything else to make me comfortable but yet positioned for me to tell the next guy what to do. So when Menon is mentioned or Samadi is mentioned, they know and hope it will bring them clients. And it's partly because the equipment is so expensive. So, as impressive as it may be to get the return call the next day after an internet intake inquiry, it's business. Pure and simple.


Now, with that being said, each patient will assess the doctor's disposition and reach their own conclusions as to the best "fit." I for one would never use Samadi just because he's not a good fit for my personaility. Yes, Menon this, Woods that, Tewari that, Carter this, Catalona that, Hu this, and all of those aces I missed, but we all make our decisions based on our circumstances, locale, and, yes, recommendations by friends and statements on listservs. Believe me, before I made my decision, I Googled "who is the best prostate surgeon in the world." Or, "who's done the most robotic RP in the world." It doesn't take a rocket scientist to figure out what makes people choose or at least interview docs.



I make no bones about posting a particular doc's interview on TV. We're all grown ups and to think that one person's kudos is going to make someone decide to us the doctor demeans the intelligence of those who are here looking for information and by now know that even the best surgeon can't dictate the outcome of this strange disease. So, closing the dialogue by a "shut down" (with people asking it be done), while a threat, should be tempered by an admonishment that "to each his own" and "educate yourselfs."


This wasn't about Samadi. Like you said, any simple query will return results for "elite" surgeons and he's up there. This was about the importance of PSA screenings and how the landscape has changed because of them and early testing. Something I am grateful for. Would have hated to find out at 50 what I found out at 40 if I indeed had it for 10 years already.

The PR issue related to this field ( and all other medical fields for that matter) is a topic which I find tobe very interesting. For some reason it doesn't take off as a topic of discussion however.

These guys have already made enough money to live multiple lives as millionaires. I do not believe it is about the money for any of them. I know that in Samadi's case the guy had a tremendous amount of compassion and empathy for me and other patients of his I have talked with .I was warned by some urologists that choosing a surgeon and not a urologist would mean being forgotten about once the surgery was completed. That was hardly the case for me and I doubt it's the case for any of you that have also chosen surgery.

I'd also guess that the PR and advertising are not driven by the surgeon per se but by the hospitals and centers of excellence they work for. And let's face it, they might be making a profit, but they're saving lives and educating people in the process.

PR is a part of it. There's no way around it anymore. It's a sign of the times and I understand it rubs some the wrong way. I personally think it's great. Here are some examples of PR in this field alone:

www.slideshare.net/floridahospital/marketing-your-robotic-surgery-program-on-the-web

Below is a very interesting article

rccancercenters.com/archives/2402

Drive down a highway in Floria and you'll see dozens of billboards advertising services for prostate cancer.

I turn on CBS radio every morning to hear the traffic report and I always catch a few commercials advertising services for various pc related services.

Even my local urologists who don't have enough traffic too specialize only in one field (prostate cancer) have all kinds of literature in the form of brochures and pamphlets selling their services. They also have websites advertising their services but don't have top notch social media monitoring and registration services behind them. They will soon, however.

By the way, mine wasn't an intake form from a website. I called up directly and spoke to the office manager because I wanted him, and my insurance didn't cover him. I was told that he doesn't turn people away just because of that and that he would never turn away someone with cancer. I ended up paying a fraction of the cost. That was really telling for me. I hope you can appreciate that. I've experienced that a few other times with medical professionals, but it didn't involve surgery. I've also been sent packing a bunch of times because my insurance didn't cover them. In fact, my children lost their doctors when the practice dropped our insurance.

I don't think anyone is trying to convince anyone to use a particular doctor. I think as someone who has experienced the process I would tell anyone to get their PSA screened f they're over 40, have a biopsy if it's high and they don't have an existing baseline to compare it to, and when they choose treatment, whether surgery or radiation, to pick someone who is really really good because experience does matter.

You chose Menon, didn't some of these reasons help you make your choice?

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 4/12/2011 7:14 PM (GMT -6)   
davidg said...










I was warned by some urologists that choosing a surgeon and not a urologist would mean being forgotten about once the surgery was completed. That was hardly the case for me and I doubt it's the case for any of you that have also chosen surgery.



I'm not even going to comment on the above quote. I'm just pointing it out.

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 7:18 PM (GMT -6)   
questionaboutit said...
what is the big deal? it is a clearly identified link; don't click on it if you don't care to see it. No one seems to call for censorship of any of the multiple links that promote AS so why the urge to quash this?

We are all dealing with cancer and I would think we can all survive a posted link or a difference of opinion on here.


exactly, we are all dealing with cancer and any of our success stories, no matter what level of success, should be reason to celebrate and share.

I know that one day I might need radiation. I read the stories here of people who have had luck with radiation and they reassure me. Likewise someone looking for any info on surgery probably appreciates the many success stories they get to read here on the procedure.

clocknut
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Date Joined Sep 2010
Total Posts : 2667
   Posted 4/12/2011 7:36 PM (GMT -6)   

At the 2:20 mark, he's asked what happens if the cancer is advanced...particularly bad....can the surgery still be limited to the robot?  He answers that the way he uses radiation is always after surgery.  The best thing, he says, is to get the cancer out.  Then you'll know how much cancer you have and the margins.

That seemed like a strange answer to me.  Wouldn't a more proper answer have been to say that if the cancer seems to be advanced (based on biopsy and imaging), the appropriate thing to do would be to refer the patient to a radiation oncologist for external beam radiation followed possibly by seed implantation?  I wouldn't think he would proceed with surgery on a patient with advanced, very bad, prostate cancer.  What would be the point of that?


davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 7:40 PM (GMT -6)   
don't they mean if they discover that it's escaped the capsule? don't they find that out after surgery?

I know I was a wreck for a week waiting to hear my pathology and wondering if I would need radiation.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/12/2011 7:45 PM (GMT -6)   
I can't belive this Miracle Man Doctor has to keep getting plugged here. Geez. I love my uro/surgeon too, but I have never mentioned his name or his practice in nearly 2 1/2 years on the forum. Enough is enough.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 4/12/2011 8:44 PM (GMT -6)   
Now, David, calm down.
 
We have not had a Samadi plug for at least a few weeks.
 
Mel

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 9:04 PM (GMT -6)   
bad doctor? why would you say that? he's known to be one of the best robotic surgeons. Look it up. But this thread isn't about him, it's about checking PSA and quality of life stuff that goes with surgery.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/12/2011 9:36 PM (GMT -6)   
question: no one has ever said or hinted that he is a bad doctor, that's not the issue.

mel, unfortunately, i don't think it has been weeks, drats.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5831
   Posted 4/12/2011 10:17 PM (GMT -6)   
Hey I don't like censorship of any kind. Don't see the big guy in the sky censoring anything. Its all out there. But the moderators have a job to do, and should be supported.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/12/2011 10:19 PM (GMT -6)   
I only saw one post here to delete it. Anyway, he's a fantastic surgeon who is world known for his skill and a wonderful man who really takes care of all his patients.

Pointing out why some would want to delete it would be too obvious and takes away from the only purpose of threads like this which is to help others.

In the video he advocates PSA screening. I know that PSA screening might have made it possible for me to live longer. In the video he discusses quality of life issues which he delivers on, he discusses role of spouses, he discusses the changing landscape in this field. All very important and valid points which make it possible for most of us to catch this early and beat it so that we can hopefully avoid getting advanced prostate cancer. All of us with this disease know that we might pass it down to our children so these new ways of approaching this disease are not only in our own interest.

1 in 6 men get this disease. Why not test them early, keep them informed and give them the opportunity to make a personal and educated decision on how to best handle it for themselves?

Samadi has a great blog that discusses these issues. I certainly won't let one or two people stop me from sharing the information. That's what it is, information.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/13/2011 1:07 AM (GMT -6)   
First I am commenting on those who think the thread should be deleted.
I am glad that some of my threads were not deleted. And I can think of a few that could have been. The fact is that we can hear even what we don't want to hear to learn all aspects of the feelings of this poster. Please try to be more tolerant.

Next on Samadi,
I get irritated by his advertising campaigns just like everybody else. But he is a well known surgeon that prefers to advertise. He is armed with experience and I have not heard of a lot of unhappy campers from his camp. I think that David should recognize Samadi's ability to get under peoples skin using more than a robot, but I also think we shouldn't let David get under our skin without one. It seems like there are folks in the wrong on both sides of this fence.

Please try to find supportive comments. If there aren't any then move on. We saw what we felt was a terrible travesty with the HIFU posters but then we see that they were legitimate, too. I was pushing them away and I was wrong for doing it.

C'mon. We can all do better.

Tony

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 4/13/2011 3:15 AM (GMT -6)   
please specify for HW readers which DAVID this is directed to -Davidg or David (Purgatory) -

I think some of the knee-jerk negative reaction to this posting is in part with the inclusion of Dr. Samadi's name in the topic line - if it had read - "video interview of the importance of PSA screening and quality of life issues." I feel there would be a more civil response - you can chose to look at the clip or not.

thank you
BRONSON

Post Edited (tatt2man) : 4/13/2011 6:44:11 AM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/13/2011 5:22 AM (GMT -6)   
I agree with you Tony- I don't mind Dave posting it, just be prepared for whatever comments appear...it is a risk you take here and elsewhere for posting anything...very familar with that after 9 years on forums (lol). I have had my fill of Dr. Samadi and probably now engraved in my brain for life...as the Messiah and Ayotallah of Robotola and I will probably be recommending him as the 'only' treatment possible for PCa (LOL). Can anyone now cure me of that...........LOL-LOL!

But, I defend your right to post such....just be prepared for discussions and they can be civil...sometimes alittle extra light on the subject makes it more transparent to others whom can use their own assessments and glean what they might wish to on something.
Dx-2002 total urinary blockage from PCa emergency room, bPsa 46.6,
12/12 biopsies all 80-95% vol., Gleasons found 7,8,9's, scans appeared clear, ADT3 prior to Neutron & Photon radiations, DES since 2004-5.
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