New Member Lookoing for help

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ik35
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/15/2011 7:24 AM (GMT -6)   
Hi.....

My brother was just diagnosed with prostate cancer and needless to say has turned our world upside down! We live in the Plainfield / Naperville IL area and are looking for advice on specialists in the chicago area. If anyone has feedback on the best doctors in the area, I would greatly appreciate it. Id also like to know and experiences at the Edwards Cancer Center w doctors there. This is so new to us......we are just looking for some info to start with

Thanks to everyone!

Post Edited (ik35) : 4/15/2011 3:02:19 PM (GMT-6)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/15/2011 7:31 AM (GMT -6)   
welcome to you ik35 and your brother -
-this is a great site for research and lots of information at the top of the page website - and lots of patient-to-patient support.
-keep in mind - keep breathing and try not to panic ( not too much) - your brother and you will get through this and your world will get right-sided soon.
-there are members all across the USA who will jump in and answer your "chicago specialist" question.
-wishing all the best.
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 5 of 12 cancerous samples, Gleason 7 (3+4)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 4/15/2011 8:22 AM (GMT -6)   
Hi IK35 and welcome,relax and give us more inf about your brother biopsy.
we are here to help you thrugh this.
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/15/2011 8:30 AM (GMT -6)   
welcome aboard, ik35

some more information on your brother's stats would be helpful.

please keep us posted, and all will be glad to help you along the way.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 4/15/2011 8:41 AM (GMT -6)   
Welcome to HW,

Have him check out the Chicago Prostate Cancer Center in Westmont, IL.

We have a support group meeting that meets there on the first Wed. of the month.
location: Batavia, IL
dx age 57 2/2010 PSA 8.2
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from Johns Hopkins 4+4=8
PSA 15 4/2010
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 palladium 103 seeds 7/2010 at Chicago Prostate Center, Westmont, IL
PSA
Oct 3.97
Dec 2.78
Mar 2.42

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3887
   Posted 4/15/2011 11:48 AM (GMT -6)   
Read a couple of books that will open the entire world of prostate cancer up to you..

Walsh-"Guide to surviving Prostate Cancer"
Chodak- "Winning the battle Against Prostate Cancer"

Post Edited (Fairwind) : 4/15/2011 12:26:22 PM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/15/2011 12:36 PM (GMT -6)   
Fast track cyber learning in PCa in a 101 style laypersons terms:

www.yananow.net  
www.prostate-help.org  

Good hunting.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1100
   Posted 4/15/2011 1:27 PM (GMT -6)   
There are a number of good options in Chicago. Of course, depends on what specialty you are looking for. (Radiation? Surgeon? Medical Oncologist?). William Catalona would be one possible place to start -- he is a well known expert: http://fsmweb.northwestern.edu/faculty/facultyProfile.cfm?xid=18380

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 4/15/2011 1:47 PM (GMT -6)   
Your brother is lucky that he lives close to two of the National Cancer Institute (NCI) recognized Comprehensive Cancer Care Centers: one at Northwestern (University) Memorial Hospital, and another at the University of Chicago.  LINK

I live in a suburb about the same distance from the Loop as Naperville, and I had my prostate cancer (PC) treatment at University of Chicago, and my wife's cancer is being treated at Northwestern.

The NCCN centers provide best-in-the-world type of care for cancers.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3887
   Posted 4/15/2011 1:55 PM (GMT -6)   
Does this mean that everyone being treated outside the NCCN network is receiving sub-standard treatment??

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 4/15/2011 2:12 PM (GMT -6)   
Fairwind said...
Does this mean that everyone being treated outside the NCCN network is receiving sub-standard treatment??
 
That's not a sure thing, but more likely...(nobody said they were "perfect")
 
 
Read this thread, and go to the 12th posting down the page...one that I posted on 9/27/10 for more specific relevant information.  I find the blue text in that posting the be the most interesting differentiating factors, and so I'll copy/paste it here:
The quality-of-care differences found in the study were, interestingly, not related to who has the newest, coolest multi-million dollar machine, in which case one could forgive small community hospitals for lagging behind.  Instead, it comes down to such basics as experience; to getting the correct diagnosis; to whether doctors address holistic aspects of diet, exercise, and psychological health; to whether doctors routinely test tumors for molecular markers that can guide therapy; to whether multi-disciplinary care is coordinated or haphazard; to how well doctors monitor patients (after surgery, radiation, or chemical treatment) in order to minimize the chance that the cancer will recur. 

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 4/15/2011 5:04 PM (GMT -6)   
There was a major study published 2 years ago that showed no difference in outcomes for low risk PC when treated in community centers or in major cancer centers. There was a significant difference in outcomes between the two setting when it came to treating more advanced PC.
JT
66 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, 4 weeks of urinary frequency and urgency; no side affects since then. 2 years of psa's all at 0.1.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1100
   Posted 4/15/2011 7:54 PM (GMT -6)   
One issue is you might not know whether your cancer is low risk or higher risk until after surgery - if that is your treatment.

erbob
Regular Member


Date Joined Jan 2010
Total Posts : 281
   Posted 4/23/2011 10:07 PM (GMT -6)   
ik35, although I live out in Colorado, I'll be up in Naperville visiting with family during the first week in May. I plan on attending the meeting at the Chicago Cancer Prostate Center in Westmont, IL which takes place on Wed 5/4. Maybe see you there if you are considering brachytherapy??

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/24/2011 2:25 AM (GMT -6)   
The University of Chicago through history has had one heck of a program. Here are some names that have been a part of their prostate cancer program ~ Charles Huggins, Nick Vogelzang, David Bostwick. Huggins is the only man to win the Nobel Prize in Medicine for prostate cancer research. He did it while Don Gleason was working on a new system to grade prostate cancer. His discovery was that testosterone was gasoline on the prostate cancer fire. He discovered hormone therapy for prostate cancer.

Northwestern also has a great program. Good options in Chicago.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 5/3/2011 9:47 PM (GMT -6)   
I plan on being at the PC support group meeting tomorrow night
at 7:00 at Chicago Prostate Cancer Center in Westmont, IL.

Hope to see you there.
location: Batavia, IL
dx age 57 2/2010 PSA 8.2
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from Johns Hopkins 4+4=8
PSA 15 4/2010
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 palladium 103 seeds 7/2010 at Chicago Prostate Center, Westmont, IL
PSA
Oct 3.97
Dec 2.78
Mar 2.42

Post Edited (fulltlt) : 5/3/2011 8:59:57 PM (GMT-6)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 5/3/2011 10:26 PM (GMT -6)   
As you can tell already, Ik35, you are surrounded by a hot of supporters, travellers on their own PCa journey, strangers who in a short time can become friends and even extended family....

..you and your brother have found a good place to start - to get grounded and ... do remember to breathe - as you look at all the options - for treatment - for doctor - and for hospital.... whatever is best for YOU is the one to choose.

- wishing you all the best.
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 2 of 12 cancerous, 5% involvement -Gleason 7 (3+4)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA
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