OK what 2 things do you miss the most

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BB_Fan
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Date Joined Jan 2010
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   Posted 4/15/2011 7:39 PM (GMT -6)   
Now that PCa has intruded upon your life. I'll start. I dearly miss a good cigar, and cold cuts. Lets call it a salami and provalone sub. But most cold cuts and cheeses will do it. Grilled cheeses and ham  and cheese sandwiches.

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/15/2011 7:44 PM (GMT -6)   
why can't you have those?

I miss being worry free. I have my 2nd PSA in 20 days time and I already started to worry.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/15/2011 7:53 PM (GMT -6)   
BB, I just had a salami and provalone sub for lunch today, its on my approved Taste-Good Prostate Cancer diet, you should enjoy what you like.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Galileo
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Date Joined Nov 2008
Total Posts : 697
   Posted 4/15/2011 8:19 PM (GMT -6)   
I miss rising to the occasion spontaneously, and I miss not having the sword of Damocles over my head every 6 months, but other than that, not much. I'm relieved to be on the other side of treatment and doing well.

I still eat the kind of stuff you mentioned, even on Weight Watchers. Everything in moderation. I still have a beer most evenings, and sometimes a whiskey before bed. I've never smoked, so that's not a problem.

I start most mornings with a big omelet and about a quart of coffee. The omelets are usually pretty healthy (2% cheese, egg beaters, chicken breast, carmelized onions, shallots, etc.) but sometimes I eat whole eggs, too. Bacon, too. I just keep track of it all, and offset the excess in calories with exercise.


All that said, I do realize there does seem to be a link between excess sugar consumption, insulin, and some cancers (see the recent New York Times magazine for an in-depth look at this), and between obesity and aggressive prostate cancer, so I am mindful when I eat the occasional Krispy Kreme donut that it's a treat, not something I should eat regularly, no matter how easy it is to work it off later.

And even though we have the famous Heart Attack Grill not far away (whose obese spokesman recently died), I'm in no hurry to try the Quadruple Bypass Burger (8,000 calories, 600 grams of fat), Flatliner Fries (cooked in pure lard), Butterfat Shake, or other goodies they sell there. One of my co-workers did successfully eat the Quadruple. Crazy.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) Jan-Mar 2007
PSA 9/2007 and thereafter <0.1
pcabefore50.blogspot.com

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/15/2011 8:28 PM (GMT -6)   
Galileo said...
I miss rising to the occasion spontaneously, and I miss not having the sword of Damocles over my head every 6 months, but other than that, not much. I'm relieved to be on the other side of treatment and doing well.

I still eat the kind of stuff you mentioned, even on Weight Watchers. Everything in moderation. I still have a beer most evenings, and sometimes a whiskey before bed. I've never smoked, so that's not a problem.

I start most mornings with a big omelet and about a quart of coffee. The omelets are usually pretty healthy (2% cheese, egg beaters, chicken breast, carmelized onions, shallots, etc.) but sometimes I eat whole eggs, too. Bacon, too. I just keep track of it all, and offset the excess in calories with exercise.


All that said, I do realize there does seem to be a link between excess sugar consumption, insulin, and some cancers (see the recent New York Times magazine for an in-depth look at this), and between obesity and aggressive prostate cancer, so I am mindful when I eat the occasional Krispy Kreme donut that it's a treat, not something I should eat regularly, no matter how easy it is to work it off later.

And even though we have the famous Heart Attack Grill not far away (whose obese spokesman recently died), I'm in no hurry to try the Quadruple Bypass Burger (8,000 calories, 600 grams of fat), Flatliner Fries (cooked in pure lard), Butterfat Shake, or other goodies they sell there. One of my co-workers did successfully eat the Quadruple. Crazy.


holy crap, i want to try it...

www.youtube.com/watch?v=hqf_SIQ3JAk

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5818
   Posted 4/15/2011 8:37 PM (GMT -6)   
Hey Ed has to be #1 on any of those so affected. Its actually #1, 2, 3...... on mine. BB, A women is a women but a good cigar is...... I mean cigars do not need to be inhaled, better if not. Ok keep it clean all of you out of work comics! btw i do stand up, eh never mind!
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 4/16/2011 4:38 AM (GMT -6)   
I am always missing the bowl in the bathroom upstairs and the bowl in the bathroom downstairs.

but seriously:
main thing is probably that I miss being able to do anything very spontaneously: I have to plan most of my day around what my bladder will do and when and how often.
I miss being able to travel. I haven't had a holiday as such nor a single night away from home since surgery. (Which kind of makes be think my recovery still has a long way to go)

Alf
Age dx 48
Apr 09 PSA 8.6
DRE neg
Biop 2/12 pos
Gleason 3+3
Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
Nov 09 PSA 0.1
Mar 10 PSA 0.4 sent to RT
13 Apr CT
RT 66Gy ends 11 Jun 10
Tired + weird BMs
Sep 10 PSA <0.1
Jan 11 PSA <0.1
Apr 11 PSA <0.1
Erection OK

Post Edited (English Alf) : 4/16/2011 4:44:39 AM (GMT-6)


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 4/16/2011 5:45 AM (GMT -6)   
You may think this is weird, but I really miss my ejaculate- somehow an orgasm is just not the same anymore.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
Brachytherapy- May 19, 2009 -so far, so good.
 
  "There may come a day when the courage of men will fail, but it will not be this day."

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/16/2011 6:09 AM (GMT -6)   
Still mjuke. I got use to it pretty quick. I cigar was a once a month thing for me in the winter and a twice a week thing in the summer. As time passes I seem to miss it more and more. With my Italian heritage, cold cuts were almost a daily event.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic RP March 2009
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes - tumor volume 9%, nerves spared, no negitive side effects.
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT .01, < .01

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/16/2011 6:45 AM (GMT -6)   
I have a what I don't miss list (LOL):

I don't miss my uro-doc and his loving DRE's and Lupron shots
I don't miss the nasty side effects, quarterly visits to the uro-docs office
I don't miss alot of chic flicks anymore (LOL)- side effects?
I don't miss shopping sales anymore (LOL)- just kidding
I don't miss hot flashes, sweats, muscle fatigue, weight gain
I don't miss gossip anymore (LOL)- just kidding
I don't miss getting my 8 opinions and DRE's so often, bending over like Gumby
I don't miss my prostate...cause the drugs helped me forget I had one (-:

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/16/2011 7:29 AM (GMT -6)   
BB,

Then way keep missing what you obvioulsy enjoy? Sounds like the casual smoking is in moderation, and you can still eat your beloved italian cold cuts with a reduced frequency and in moderation. You still have to live, if you can't enjoy the few thinkgs you like, then what's the point?
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 4/16/2011 7:46 AM (GMT -6)   
I miss my old life, where PC was an academic issue, not an intrusive life force.
 
Mel

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 4/16/2011 8:00 AM (GMT -6)   
I'm with mjluke, I miss the ejaculate.
That and spontaneous erections.
 
That's my top 2.  I guess if that's the worst of it I got off light.
Only time will tell.

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/16/2011 8:23 AM (GMT -6)   
do your wives miss the ejaculate? Mine sure doesn't.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/16/2011 8:31 AM (GMT -6)   
I don't miss the ejaculate part at all, and haven't from the start. I get so much pre-semen from the cowpen's gland, that it almost simutlates a regular ejaculation. The intensity and lenght of the big "O" is so good, there's no time to think about the missing part. I have my own unproven theory, in our post surgery climaxes, you are getting the maximun effect of strong contractions at the point of no return, the power from them is not being absorbed by the liquid (ejaculate) that we formerly had. It reminds me when I was a young man, and could do it 3 or 4 times in a night. You know that feeling, perhaps after the 3rd or 4th time, hardly any ejacluate left in the systems, and you would say, it hurt good. That's the feeling I generally have with sex now. And as far as length of the big "O", would easily say the whole experience last 3-4 times longer. No complaints in that department, and hey, without the mess factor, you can do things in more creative places and ways.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 4/16/2011 9:37 AM (GMT -6)   
davidg-no, my wife doesn't miss it.  At all.

cantexplain
Regular Member


Date Joined Jun 2010
Total Posts : 74
   Posted 4/16/2011 10:03 AM (GMT -6)   
#1 an erection
#2 an erection
#3 refer to #1 and #2 above.
 
Seriously, did I mention an erection?
Age at Dx: 56
DaVinci Prostatectomy: 10/28/09

Stage: T2C

Gleason - 3+4 = 7

Prosate: 52 grams

Incontinence - absolutely at first, better with time and kegels

ED - Indeed

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 4/16/2011 10:27 AM (GMT -6)   

I've never heard of anyone dying from a salami and provolone sandwich (except maybe Mama Cass, and I think that's turned out to be false).  That sounds really tasty.  I say, go for it.

I miss a lot of the stuff that's been mentioned, but I think most of all I miss the feeling I had prior to last June's diagnosis that I was a strong, healthy 65-year-old with many years of good health in front of me.  That self image has been adjusted and brought into focus a bit.  On the other hand, it's forced me to examine my life more carefully, and that's not all bad.


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 4/16/2011 10:29 AM (GMT -6)   
Semen contains 150 mg of protein, 11 mg of carbohydrates, 6 mg fat, 3 mg cholesterol, 7% US RDA potassium and 3% US RDA copper and zinc.
There are trace amounts of several vitamins in a regular, healthy, ejaculation-full of semen. In fact, the amount of vitamin C is about the same as in an orange. It also has an active anti-depressant ingredient.

So we are both a bit depressed about it all.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
Brachytherapy- May 19, 2009 -so far, so good.
 
  "There may come a day when the courage of men will fail, but it will not be this day."

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/16/2011 10:29 AM (GMT -6)   
Organic applegae salami from whole foods. darn good! Upstate NY organic stuff which is even better or equal too salami i had growing up in Italy. Not so crazy about provolone, rather bland for me.

Clocknut, imagine going through that same exact thing at 40.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 4/16/2011 10:54 AM (GMT -6)   
Yes, someone else mentioned this, but I also miss that long range view of life. Before PC, I fully expected to retire when I get tired of working, on my own terms. I expected to travel and do a lot of things and to live forever (or at least over 80).
 
All of that stuff becomes more questionable these days.
 
Mel

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 4/16/2011 11:09 AM (GMT -6)   
I miss my youth that even though I am 63, I could pass for and felt, behaved and lived like I was 45.  I feel that the last three years (with surgery, then RT and now HT) or more have aged me.  I now feel 63.  When this HT gives me a vacation in 6 months I plan on capturing that youth once again!
 
Jack
 
Age 59 at Dx / 63 now
01/08 PSA 4.17 DRE showed node
03/08 RP - pT3a 10% ca , 2 of 12 / 3+4
Nerve Sparing, Margins clear, no SV invasion
Continent 3 weeks post surgery / ED
06/08 until 08/09 PSA 0.01
08/09 PSA .14
09/09 SRT / 36 treatments
01/10 PSA .13
08/11/10 PSA 3.44 / T = 25.0 nmol/L
30/11/10 Zoladex ADT
24/02/11 PSA <.04 / T = 1.0 nmol/L

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/16/2011 11:46 AM (GMT -6)   
and to think, i thought the anti-depressent ingridient was that aaaaaaaaaaaaaaaaahhh sound at the end, lol
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 4/16/2011 12:05 PM (GMT -6)   
My wife misses the semen, the only things I miss are the spontaneity and sadly my old size and shape as I've developed a case of peyronies which may or may not be surgery related.

Oh yea, and the worry free life I had. Up 'till Nov, '09 my biggest worry was planning my next trip and what to do on the property next. This part is getting better however.

BTW, I started out with a whole new diet, now foods I like are creeping back in along with some new foods that I've discovered I like, such as salmon. Heck I'm even taking a couple of packages of Jerkey on the trip I'm leaving on tomorrow.
Dave in Durango CO

07-06 PSA 2.5
01-08 PSA 5.5 (Dr never told me)
09-09 PSA 6.5 (age 55)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5
03-01-10 Age 55 RRP in Durango CO by Dr Sejal Quale and Dr Shandra Wilson
03-16-10 Path' G-8 (4+4+5) Bilateral involving 21% of left lobe, 3% of right lobe, SVI, Focal positive margin, pT3b NO MX

All PSA as of 1-25-11 <0.04

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3056
   Posted 4/16/2011 1:46 PM (GMT -6)   
I only have one.

I miss being a normal guy in his forties.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05
March, 2011 .09
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