Bye bye incontinence

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EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 4/17/2011 5:22 PM (GMT -6)   
Hi guys,

Here is my latest update on the determined fight back to full recovery. I had an open radical prostatecomy on 13th Dec 2010 after my keyhole surgery did not go as planned and i was determined to fight back, let me expain a little about me. I am long term disabled with mobility problems and had 13 rounds of surgery prior to PCa and my past experiences make a person that refuses to give in.

I set myself a goal of being dry by the time i went back to work and i went back at 15 weeks post op, well i was not dry but was only using 1 or 2 pads a day and i considered that was no worse than a woman of my age who had given birth to children so i thought that was ok and i could live with that. I have now been back at work for two and half weeks and decided to push myself harder. Well 48 hours ago i thought that i can beat this so i have been pad free for two days now and have been doing some heavy gardening and shifting some heavy rubbish and i have had no leaks. I think the big thing for me was having the confidence to just go and do it and i have to say that i am wearing a big smile right now :)))

Life is good, so go live it and never say never, Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 4/17/2011 5:37 PM (GMT -6)   
so Bob...what action did you use? mind over matter and wore no pad? I'm 10 months out and use 1 light pad a day and can't seem to get past this stage. Please give me a hint.
 
thanks
 
r

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 4/17/2011 5:43 PM (GMT -6)   
Hi Arch,
I just decided to get stubborn with myself same as i did when i had to get up out of a wheelchair the first time, its my body and i decided to make it do what i wanted it to do. The only time i have had to concentrate this last couple of days is when i cough, thats when i squeeze the kegels and i have stayed dry. So for now it is a concious effort to stop any leaks but i know it will become automatic as i do it more.
Take care, Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03
Pad free from 16th April 2011 :))

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/17/2011 6:49 PM (GMT -6)   
Excellent news, Bob, congratulations, sounds like you been a long time fighter. My best to you.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 4/17/2011 11:00 PM (GMT -6)   
Bob,
Great to hear that you are "drying up". Let us know how it goes.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2217
   Posted 4/18/2011 2:52 AM (GMT -6)   
Well done. Sounds like you qualify for membership of the "Dry Guys" club.

Alf

cubswin
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 4/19/2011 12:11 AM (GMT -6)   
hEY bOB
dID U GIVE UP COFFEE OR o.k. WITH IT TO BE DRY???

lowandslow
Regular Member


Date Joined Jan 2011
Total Posts : 122
   Posted 4/19/2011 7:29 AM (GMT -6)   
Awesome.
Age 48
PSA 4.1 No symptoms
Diagnosis 1/12/11
RRP 3/14/11
Gleason 7 (3+4)
T2c
Margins clear
Seminal Vesicles clear
Lymph nodes clear
Prostate 69.5 grams
Organ confined
9% involvement

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 4/19/2011 10:36 AM (GMT -6)   
Nicely done! I am now down to 1,yes 1 pad per day!!!! Whoooo-Hooooo!
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 4/19/2011 12:43 PM (GMT -6)   
cubswin said...
hEY bOB
dID U GIVE UP COFFEE OR o.k. WITH IT TO BE DRY???


Hiya, i have not given up coffee but i have turned to decaff and experimented with how much i can drink in a day, my limit is two mugs at work and a third later on the day. Anymore than that and i will leak so its not worth the hassle.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03
Pad free from 16th April 2011 :))

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 4/23/2011 3:13 PM (GMT -6)   
Update on my situation 8 days after deciding to bin the pads, 4 days after stopping using pads i came home from work and was thirsty so i made a long cold soft drnk and sat outside in the sun. After about 30 minutes i went to get up to go indoors and struggled because the bench was so low, so as i pushed to get up i sprung a leak, serves me right for not going to the loo sooner instead of thinking "i'll go in a minute"
Apart from that one leak it has been good, i have found that i need to concentrate on my bladder signals more and at the first hint of wanting to pee, i go and pee. A small price to pay for being dry is just going to pee more often, but the benifits in the boost it has given my self confidence is huge :)))
Take care, Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September, biopsy again
October 7th diagnosed prostate cancer, Gleason grade 6 at 10% mass
December 13th 2010 open Radical Proctatectomy (non nerve sparing)
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011
Caverject for penile therapy 22nd Jan 2011
Dry at night since 1st Feb 2011
Psa at 3 months post op is now 0.03
Pad free from 16th April 2011 :))
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