When doctors get cancer....Interesting read....

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ChrisR
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   Posted 4/18/2011 6:08 PM (GMT -6)   

60Michael
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Date Joined Jan 2009
Total Posts : 2222
   Posted 4/18/2011 6:56 PM (GMT -6)   
Thanks Chris, it is a good read.
Michael

Purgatory
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Date Joined Oct 2008
Total Posts : 25380
   Posted 4/18/2011 7:00 PM (GMT -6)   
Very good read.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/18/2011 7:01 PM (GMT -6)   
thanks for that link, very interesting.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 4/18/2011 8:57 PM (GMT -6)   
Chris how do you find all that stuff,very nice I like.
yeah
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 4/18/2011 9:12 PM (GMT -6)   
I was struck by the following comment.

"In 1990, when PSA testing was new, a 50-year-old Dr. Schellhammer had a reading of 3.0 ng/mL. "At that time 3 was well within the limits, but we now know it is very inappropriate for someone that age,” he points out. “Our knowledge of PSA testing was so crude back then, but I was happy with a 3 because all we knew then was that 4 was this magical number. Four is still a reasonably good cut-off point, but not for someone who's 50.”

I had my first PSA test when I was 49 or 50, and it was 3.2. That raised some eyebrows, but when I was re-tested it was 2.8 and I am assured there was no problem. And the PSA stayed at around 3, slightly over or under for the next fifteen years, and I also had a DRE most of these years.

So I wonder if a biopsy would not have found PCa when I was 50? Or 55, or 60? Guess I just never realized that a PSA of 3 at age 50 was that much out of the ordinary.

Sancarlos
Age 66, PC diagnosed 7/2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11/2009 + IMRT on Novalis, 45 gy, 3/2010 + ADT3 (Lupron + Casodex+Avodart)

PSA: 7/2009, At time of diagnosis -- 11.9
10/2009 -- 5.0 ; 12/2009 -- 0.56 ; 5/2010 -- 0.15
8/9/2010 -- 0.06 ; 11/2010 -- 0.013; 3/25/2011-- 0.005

Tony Crispino
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Date Joined Dec 2006
Total Posts : 8128
   Posted 4/18/2011 9:18 PM (GMT -6)   
I heard Paul Schellhammer's story before ~ from him personally. Three years ago i attended the Prostate Cancer International open Conversation on Prostate Cancer Paul was there, too. So was Gerry Chodak, Mike Scott, Arnon krongrad, Gary Deng, and more. I was there with one other young survivor and the very sweet wife of a man that recently died of PCa.

This is a very nice man. At this point he was just leaving his post as President of the AUA. This was an interview of him at that event. I was standing in line behind him. I was also interviewed next.

www.youtube.com/watch?v=sykTMncJW1Y

Tony

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/18/2011 9:23 PM (GMT -6)   
TC-LasVegas said...
I heard Paul Schellhammer's story before ~ from him personally. Three years ago i attended the Prostate Cancer International open Conversation on Prostate Cancer Paul was there, too. So was Gerry Chodak, Mike Scott, Arnon krongrad, Gary Deng, and more. I was there with one other young survivor and the very sweet wife of a man that recently died of PCa.

This is a very nice man. At this point he was just leaving his post as President of the AUA. This was an interview of him at that event. I was standing in line behind him. I was also interviewed next.

www.youtube.com/watch?v=sykTMncJW1Y

Tony


yes you were...

www.youtube.com/watch?v=jqukLEyEI3s&feature=related

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 4/19/2011 5:01 AM (GMT -6)   
 
They way I see it Paul Schellhammer's has had prostate cancer for 20 years and Gleason 9 to boot.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/19/2011 7:50 AM (GMT -6)   
I think he was diagnosed in 1999, Chris.

Still that's 12 years now. He has a very strong background in prostate cancer. Not sure if that is helping or not but it can't hurt.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 4/19/2011 8:32 AM (GMT -6)   
When he was 50 he states he had a PSA of 3. I believe judging by the timelines in the article he is 70 now. I bet he had PCa when he was 50 with a PSA of 3.
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins Dr. Partin
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
02/11/2011 (2.3 Year) <0.03 (Impromptu done by GP at a physical)
10/15/2011 (3 Year) -

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/19/2011 12:32 PM (GMT -6)   
A high PSA does not necessarily mean prostate cancer. Until he was diagnosed he didn't have it. It is possible to suggest it but that is a very flawed system of determining when it started. He could also of just had a high PSA from BPH that wasn't bothering him, too.

But I won't take your bet. Even if we could go back and verify it so you or I could get paid, it's pointless. LOL.

Still, Schellhammer is a great guy and a great speaker. It was nice to meet him over that weekend. It was my first major PCa event. I was still rampaging about the young guys and the lack of data.

Oh wait a minute ~ I still am...

Interestingly, he was out in front with suggesting guidelines for screening to begin in the 30's. He made it clear it was not always that way when he was the Prez of the AUA. He feels that way as a patient. I think it shows how the points of the controversy change with perspective...

Tony

ChrisR
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Date Joined Apr 2008
Total Posts : 825
   Posted 4/19/2011 2:32 PM (GMT -6)   
Sure, at his age it was not likely he had PCa. Thats what they told me at 42 with a PSA of 2.76. And it really wasnt likely, honestly.
Dx @ 42 years old on 4/2008
Gleason 6 (50 Point Biopsy) (6 Cores positive - Small Focus Each)
open RP 10/08 Johns Hopkins Dr. Partin
pT2 Organ Confined Gleason 6 (tertiary score 0)
PSA Since Surgery
1/15/2009 (3 Month) <.1
10/15/2009 (1 Year) <.1
10/15/2010 (2 Year) <0.03
02/11/2011 (2.3 Year) <0.03 (Impromptu done by GP at a physical)
10/15/2011 (3 Year) -
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