Is Burning Feeling Normal at 3 Weeks PostOp Divinci?

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bryanesp
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 4/19/2011 7:38 AM (GMT -6)   
Guys,

I'm 3 weeks PostOp today and feeling great! Went back to work (from home) 1 week after surgery and have felt very little fatigue... Walking 4 miles 3x weeks at a very brisk pace, so I am thankful so far.

My Incontinence is getting better, but it still frustrates me... but has others have said, "roll with it, time will help heal things".

ED is also something I'm just now starting to address with meds and pump..

My new frustration is an intense burning sensation towards the end of the penis.. At first I thought perhaps it's the pad I'm using... I switched pads to a smaller/lighter pad on Saturday and the burning starting showing up about then... Is it possible the material of a pad could cause irritation and burning? I switched back during the night (last night) due to the uncomfortable burning sensation "just in case".

Is this normal to experience this burning sensation both while urinating and not urinating? Is is the nerves healing perhaps or is this something I should be concerned about an infection of sorts?

Thanks!

-b
= = =

Age 50
Nov 2010 = Odd Bladder/Prostate Symptom - Blood in Urine,
Dec 2010 = Cytoscopy Rules out Bladder... Blood appears benign from cyst
Dec 2010 = PSA 2.5 *Note: My Dad dead at 59 from PCA, so PSA is alarming
Jan 2011 = MRI at Duke - Small Suspicious Lesions in Prostate
Feb 2011 = 12 Core Biopsy, 3 Postive GS (3+3)=6
Apr 2011 = Select Dr. Daniel Watson - Charlotte Private Practice - Divinci
Apr 2011 = Divinici Procedure at Presbyterian in Charlotte
Apr 2011 = Good Pathology Report! Negative Margins, Clean Lymph, 3+3=6, Confined to Prostate

Post Edited (bryanesp) : 4/19/2011 6:42:15 AM (GMT-6)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 4/19/2011 7:48 AM (GMT -6)   

You could have a urinary track infection. Sure wouldn't hurt to call your doc.

And or, I used to sleep in the buff on top of a bath towel to get some fresh air to the area....

 


davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/19/2011 8:01 AM (GMT -6)   
I would definitely call your urologist or your surgeon's nurse. Didn't happen to me, but that hardly means it doesn't happen often.

Congratulations on avoiding fatigue. That's the one thing I couldn't avoid. Agree that we are good to go for work after a week if necessary ( unless we're in construction ). Recovery from this type of surgery is amazing. Every day we make gigantic steps towards full recovery.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/19/2011 8:17 AM (GMT -6)   
I can't comment about the burning, but I am in awe of your walking! And being back at work. It took me about six weeks until I was happy to go to the office --- but, it was summer and I had a lovely time doing the GFMPH thing and lying in a zero gravity chair on the back verhanda while reading, dozing, and sipping a medicinal rum and coke. I was delighted with my rate of recovery --- your's seems to me to be amazing.

Please, let us know what you find out when you talk to your doctor about this burning.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 4/19/2011 8:34 AM (GMT -6)   
B, I too had this symptom. I asked my GP about it (not my URO), as I was in for yet another UTI at 6 weeks post RaRP. His answer was interesting. There frequently are fibers in the urethra going from side to side. It is not always a perfectly empty, round tube. The insertion of the catheter would rupture these fibers and can cause a burning sensation. Mine disappeared after a few weeks.

He had a great story to go along with the diagnosis. He was treating a young man (27) for an STD (the clap) and the diagnosis involves inserting a q-tip into the penis for a swab and culture. The q-tip ruptured one of these fibers and blood started shooting out the poor ******s penis. The guy, 6'2" and 250lbs, passes out and begins to fall to the floor. My GP grabs the guy, gets him on the chair, yells for a nurse, who rushes in to find the MD with an unconscious patient and the doc holding his bloody penis.

My doc, a former USMC physician, said it was the funniest experience he's ever had a s an MD.
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 4/19/2011 11:36 AM (GMT -6)   
I had quite a stubborn uti approx 2 to 3 weeks out from surgery, and had 3 lots of antibiotics to clear it. I notice that you guys in the States are given antibiotics when the catheter is withdrawn, but i had nothing when mine came out, so I put the uti down to that. The urine sample I gave for the test was full of junk from the op, bits and pieces of, I assume, scar tissue.
 
All the best from England.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 4/19/2011 11:38 AM (GMT -6)   
Burning for me was always associated to a urinary tract infection (had three of those).
 
I also had irritation as the scab tissue came off where the urethra sutures were healing. That fresh tissue was real sensitive.
 
I did see, in my 8+ pads a day period, that the materials and anti-odor treatments in the pads are very different. There could be an issue there.
 
But the first step is always to discuss with your uro/surgeon.
 
 
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

bryanesp
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 4/21/2011 7:54 PM (GMT -6)   
Guys,

I did call the Uro and he had a PA prescribe both an Antibiotic for possible urinary tract infection and an analgesic for the pain. I started both prescriptions for 24 hours, but THEN, I discovered something VERY IMPORTANT for anyone suffering from a urinary tract infection.

Turns out a naturally occurring sugar called D-Mannose is a totally natural way to flush out the E-Coli bacteria that is the root cause of urinary tract infections. OMG... in 24 hours I felt like a new man... 48 hours later, symptom free from simply drinking a powdery mix in water every 3-4 hours... btw, I quit the meds from the doc as soon as I discovered this more natural way to rid a urinary tract infection.

BTW, thanks for the encouragement on my physical progress... I feel very blessed... My wife pushed for fast surgery against my wishes, we interviewed 7 docs and the one we settled on is amazing, and for a guy my age, I was in very good physical health prior to the surgery... add spiritual faith to the mix and I have a lot of mojo going for me :-)

-b

= = =

Age 50

Nov 2010 = Odd Bladder/Prostate Symptom - Blood in Urine,
Dec 2010 = Cytoscopy Rules out Bladder... Blood appears benign from cyst
Dec 2010 = PSA 2.5 *Note: My Dad dead at 59 from PCA, so PSA is alarming
Jan 2011 = MRI at Duke - Small Suspicious Lesions in Prostate
Feb 2011 = 12 Core Biopsy, 3 Postive GS (3+3)=6
Mar 2011 = Select Dr. Daniel Watson - Charlotte Private Practice - Divinci
Apr 2011 = Divinci at Presbyterian in Charlotte

Pathology:

Gleason 3+3=6 (same as pre-op biopsy)
Stage T2C
Size 1.8 Cm Largest.. Some in Both Lobes

ECE Negative
Seminal Negative
lympahtic Negative
Venous Negative
Bladder Neck Negative
APICAL Negative
Perineural Postive

Prostate 62 Grams

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 4/22/2011 8:38 PM (GMT -6)   
Just a suggestion - all my medical profs. say that you must always complete any antibiotic, lest you contribute to creating a resistant bacteria. You should verify any treatment with your physician, whether he approves or not - be sure they are aware.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/22/2011 9:31 PM (GMT -6)   
142 is dead right, its essential to finish a full run when on any antibiotics, even if the symptons clear up earlier.

It's interesting when I read a thread like this, having been on 21 various catheters for a total cath time of 1 1/2 years, I never ever had a UTI, never used ointments on the tip like I read men here do (nor was it ever reccomended). But, after my urostomy surgery in September, I have already had 3 bad UTI's, the first, almost put me back in the hospital. Once your bladder is by-passed, you no longer have the protective space the bladder provides, and a UTI can quickly back up your ureters and bee-line straight to the kidneys.

This is why I take Cranberry Juices Extract in capsule form every morning, to help neutralize the urine that passes through my conduit/stoma. It's the only supplement my uro has ever reccomended to me. My GP agreed with this as well.

Unfortunately, I am now high risk forever from this point for dangerous UTI's, but that came with the need of a urostomy.


David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10
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