Since my da Vinci and my SRT I have posted some numbers here a few times about how often I have to go to the bathroom in order to be able to quanitfy my level of continence.
As I have recently been feeling like I have been needing to pee all the time I did another day of taking notes yesterday and here are the times for all bathroom visits for the 24 hours between getting up on Monday and getting up on Tuesday:
Fluid intake was at 07.30, 10.00, 12.15, 15.00, 18.00, 19.00 and 20.00
A few observations:
The 10.50 visit was the only one where I did not actually feel the need to go: I was expecting an important phonecall; I knew I had had a drink within the previous hour and that it had been 45 minutes since I had been and did not want to have a bursting bladder while I was on the phone. (It was a good idea too, as the call came through just after 11.00)
After a BM the muscles in me where it matters don't seem'to shut tight and I always need to have a small pee five minutes later.
I need to get up twice a night, prior to surgery it was once or twice a night, so I feel I can regard that as almost being the same and thus no bother (especially as I find I can go back to sleep quite easily too)
I need to pee more frequently in the mornings than in the afternoon, hence I plan my day around this and schedule things in the afternoon when there may be a risk of not having bathroom facilities readily available.
So yes my underwear stays dry, but I real feel like I am going to leak witin secondfs if I do not head straigjht for a bathroom as soon as I get the "tingle" and thus going to the bathroom 16 times during the day is the price I pay to stay dry, along with not doing many things at the time I want to but doing them immediately after i have a pee and if I am heading into a bathroom-free zone than I have to plan for whatecver it is not to take longer than a maximum of an hour.
And so long and the pattern stays fairly conctant and thus predicatable I can cope.
Age dx 48
Apr 09 PSA 8.6
Biop 2/12 pos
Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
Nov 09 PSA 0.1
Mar 10 PSA 0.4 sent to RT
13 Apr CT
RT 66Gy ends 11 Jun 10
Tired + weird BMs
Sep 10 PSA <0.1
Jan 11 PSA <0.1
Apr 11 PSA <0.1