OMG I found you guy's

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New Member

Date Joined Apr 2011
Total Posts : 1
   Posted 4/20/2011 5:36 AM (GMT -6)   
I'm 47 and have batteling prostate Cancer for 5 years. I have has a prostatectemy and was told "we got it before the cancer left the prostate capsule" and was told I had less than a 5% chance of reoccurence. It came back within a year. I had radiation in my prostate bed, and my PSA went down to non detectable levels. I'm thinking I got it this time. Soon after my PSA starting going up. It was doubling almost every 3 months and I was told that is was aggressive, and Gleason SUM? score was high. I have been taking Lupron for 3 years now with undetectable levels of PSA showing. All is good except the Lupron effects my life 365 days a year. My PSA is starting to go up again. I really had no one to talk to. I'm at work but I would like to talk to others in my position, but I have to log off now. More to come later.

Veteran Member

Date Joined May 2009
Total Posts : 725
   Posted 4/20/2011 6:28 AM (GMT -6)   
Welcome to the board. I'm sorry you've gone through surgical and SRT failure. I'm sure many here who are on ADT will respond. I'm older (66) but was also told not to worry, that I had a 95% chance of reoccurence. It's been 18 months now but am seeing early signs that my PSA is increasing.

My thinking is that you either have aggressive cancer or you don't. If it's aggressive, you can throw out most of the statistics. They only apply to the non-agressive kind. However, even with the aggressive kind there are therapies that can slow it down.

Best of luck, and glad you're here.
Age: 66
PSA: 7 tests over 2 years bounced around from 2.6 to 5.6
Biopsy 8 of 12 positive, Gleason 3+4, T2a
DaVinci August 2009, pathology Gleason 4+3, neg margins, T2c
Continent right away, ED
Viagra, Cialis did't work, Trimix works well
Post-surgery PSA:
3, month: undetectable <.1; 6 month: undetectable <.014 (ultrasensitive); 9, 12, 15 month: undetectable <.1; 18 month detectable .05

Veteran Member

Date Joined Jan 2009
Total Posts : 2211
   Posted 4/20/2011 6:29 AM (GMT -6)   
Welcome Seguin,
Glad you found us as well. When you have the time you might include your stats in your signature and you can go to profile to do that. Keep us posted and our best to you.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA.27

Veteran Member

Date Joined Jun 2008
Total Posts : 1804
   Posted 4/20/2011 6:36 AM (GMT -6)   
ddd, hope you come back soon. And yes, this forum (and those who frequent it) are the best!

Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 4/20/2011 10:09 AM (GMT -6)   
Wander over and look at:   (proven treatments section)...clues about various protocols...these are some of the choices patients actually have in protocols.
Dx-2002 total urinary blockage from PCa emergency room, bPsa 46.6,
12/12 biopsies all 80-95% vol., Gleasons found 7,8,9's, scans appeared clear, ADT3 prior to Neutron & Photon radiations, DES since 2004-5.

Post Edited (zufus) : 4/20/2011 10:13:25 AM (GMT-6)

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