Curtis Sliwa has prostate cancer

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davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/20/2011 7:32 PM (GMT -6)   
not sure if people outside the NY/NJ area know him. He has a radio show here, got involved in a trial testifying against the Gambino family, and was a NYC vigilante.

He's taken an interesting approach, couldn't opt for radiation or seeds because of being shot in the past. Tried a holistic approach which failed. Is having surgery tomorrow with my surgeon bu a stand by second surgeon will be there in case the scar tissue from shooting make it impossible to have robotic surgery.

Sliwa says he'll be back to work monday morning, we'll see. Also surprised he's going to finish his radio show live tomorrow morning at 8AM and then hop in a cab to go uptown for a 10am surgery. Not exactly how I prepared for mine, I was in a different state of mind. Then again, going up against bullets and mafia and NYC gangs in the 70s probably prepared him for this differently.

Why am I fascinated when celebrities get our disease? I'd love to know what Robert De Niro has to say about his experience with it but unlike Sliwa he's very private about it.

www.nydailynews.com/blogs/dailypolitics/2011/04/curtis-sliwa-diagnosed-with-prostate-cancer-updated?obref=obinsite

Post Edited (davidg) : 4/20/2011 6:36:44 PM (GMT-6)


60Michael
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Date Joined Jan 2009
Total Posts : 2229
   Posted 4/20/2011 8:31 PM (GMT -6)   
Yes I remember the guy. Not sure about the attitiude of getting back to work so quickly. Surgery humbled the warrior in me, but hey, if he can do it that is great.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA.27

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5884
   Posted 4/20/2011 8:48 PM (GMT -6)   
Yes, He was the original founder the Guardian Angels, back in the 70 maybe 80s
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 4/21/2011 6:32 AM (GMT -6)   
WOW, and Samadi is performing the surgery. Who would have thought my fellow Dave would bring this up?
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

First post-op PSA <.00! 7 weeks after

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/21/2011 8:09 AM (GMT -6)   
Stick to the topic, no doctor bashing please.
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/21/2011 10:32 AM (GMT -6)   
GTO - I posted this because it's a celebrity ( here at least ) getting our disease. When celebrities get it the media discusses it. That brings awareness and is a good thing for all of us and our male children.

On another note, Sliwa is a pretty hardcore "tough" guy. Takes on the mafia, gangs, bullets. Yet he gets our disease. It shows once again what we in this community already know but what many don't know. PCa does not discriminate.

One of the best testimonials I saw prior to my surgery was that of a retired NFL player who was operated in Detroit ( probably by Menon ). He was tough and looked invincible. He joked about suffering from incontinence early on, ED and how he quickly recovered both and went on with his life. Stuff like that helps others, specially 40 year olds like me.

Finally - I did not mention my doctor by name here as there was no need. I posted a link from a very widely circulated NYC daily tabloid. I guess I should disclose that I do follow my surgeons blog, as I follow other PCa blogs and that I will be posting links from any of these when I think they can contribute to the forum. No harm is intended. If however these offend you in any way, you may want to put me on ignore.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 4/21/2011 11:36 AM (GMT -6)   
I remember Sliwa when he made the rounds on talk shows many years ago.

I hope Sliwa didn't wait too long for treatment. The article said he had 'symptoms' over the weekend and will be operated on today (Thursday). I have never heard of this urgency for prostate surgery before.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/21/2011 11:39 AM (GMT -6)   
I know, wish they had elaborated on the "symptoms". Probably urinary stuff.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 4/21/2011 12:50 PM (GMT -6)   
I found this on his quick decision for surgery. Seems like unusual and severe symptoms for PCa. I hope there is not a correlation between the severity of the symptoms and the severity of the cancer. Dan

Sliwa says he hit a wall last weekend.

“I was in Morris Plains [N.J.] to speak at a Tea Party rally,” he says. “And it just slammed me. I went into a restaurant, asked if I could use their facilities, and just collapsed on the floor. I could barely get up.”

He went back to Underberg and Samadi, he said, “and they told me if I didn’t have surgery, I was playing Russian Roulette. Sometimes it just has to come out.”

He says he hopes his case, like Imus’s, can raise public awareness on the need for regular PSA tests.

Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2670
   Posted 4/21/2011 1:07 PM (GMT -6)   
Wow!  That sounds more like a kidney stone than prostate cancer.

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/21/2011 1:14 PM (GMT -6)   
Imus had PCa? What did he do about it?

I had kidney stones 7 years ago and it did knock me down. Does sound like that.

I doubt they'd take his prostate out for kidney stones though :) They might do that sort of stuff in Italy, not here.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/21/2011 1:20 PM (GMT -6)   
davidg,
Imus was a conversation here a couple years ago. He went on the air (www.youtube.com/watch?v=uyolndJT_pg) and discussed it.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/21/2011 1:27 PM (GMT -6)   
Thanks. I'll look it up with the search function. Used to listen to him all the time up until 2004. Then he got on my nerves with some stuff he said.

I'll check out the video at home tonight. Thank you.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/22/2011 5:23 PM (GMT -6)   
Yeah PCa doesn't discriminate and is actually very common, alot of people don't even know they have it.  If you live to be 80 you might have an 80% chance of being found with, likely it would be indolent PCa...and wiser to look at all options. 
 
 
 

Post Edited (zufus) : 4/23/2011 10:35:31 AM (GMT-6)


davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/25/2011 6:44 PM (GMT -6)   
Sliwa was back on air tonight at 6.30PM. He was going to discuss PCa and his surgery. I missed it.

His cancer was contained and he went back to work 3 days after surgery as he had predicted. Pretty wild. But I guess talking into a microphone isn't that taxing post op.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/26/2011 6:50 AM (GMT -6)   
Note: we have patients even on this forum with 'contained'...we got it all...and clear margins and found with BCR...failure of Psa and sometimes within 1-2 years. So do you think the experts should use terminology like that?????? How about looks like maybe contained, appears contained, we are uncertain but thinking positively about your outcome. You should flavor your comments accordingly if you wish to be totally correct in all cases! How much to you understand PNI and other variables, that can trump 'contained' post surgery pathology??
I would hate to be the guy leading a patient to believe all good (likely cured) and confront that person soon afterwards with a BCR failure scenario.

I hope you know how definitive the various scanning methods are, so as to advise others about.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6983
   Posted 4/26/2011 8:21 AM (GMT -6)   
I agree with Zufus on this one - I went back to the tapes - he told me up front that the only measure of success was to die of something else first.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2011 8:43 AM (GMT -6)   
I think using terms like "we got it all", "it's contained", etc, is nothing but blowing smoke up the patient's arse, and with doctors wanting to toot their own horn. So glad my uro/surgeon never did or said foolish remarks like that. He already knew we had a problem when my first post surgery PSA came back at .05 after 3 months.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/26/2011 8:50 AM (GMT -6)   
unfortunately some have it far worse than others. As screening improves and the disease is caught earlier more and more people manage to contain the disease within the organ prior to removal. I think it's pretty standard to classify these as organ confined. You can certainly see it on the signatures of many here. In fact, the signatures of those that didn't have it confined state as much.

I believe statistics and all that other rubbish are also determined by staging which in turn is determined by disease spread outside the capsule.

So much negativity. Everyone should be rooting for everyone.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6983
   Posted 4/26/2011 9:54 AM (GMT -6)   
Davidg,
 
I hope that we are all hoping for the best for all PCa patients. It is a disease that groups us into a brotherhood that might never exist otherwise.
 
It is not negativity, just the realistic expectations that are needed to build and live in the new normal.
 
And yes, if PCa is caught soon enough and treated, the odds are very high that you will die of something else first - that being positive - you beat it.
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2011 12:08 PM (GMT -6)   
For those of us that are in the "Non-curative Club", through failed primary and secondary treatments, its not negativity at all, its reality, and learning how to cope and deal with the cards we have been dealt.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/26/2011 2:44 PM (GMT -6)   
But it's not reality for someone like Sliwa, right?

At least not yet.

I think that everyone who has surgery goes in hoping for as good a pathology report as is possible. But I'm pretty sure that all of them realize that this disease is a determined one and that no matter how good the pathology is, that thing might pop up again one day. That said, I believe they are right to be relieved that the disease was organ confined and I do believe that statistically it provides promising chances of doing pretty good.

142 - I don't know what % of people who have it organ confined end up having it again within 10 years. Thought the % of those that don't is was very high according to MSK.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5884
   Posted 4/28/2011 11:38 AM (GMT -6)   
DavidG, I have been one of your biggest supporters here and trust me your " age " is working against you here. Your tone is subtle, yet annoying. There are others who are older here where this is also true. But in your case, I think you are an intelligent and savvy young man. Don't understand why you work against yourself like that, so I figure its just age and you don't know what you don't know. I don't think you are malicious yet, but use caution....

If I am on your ignore list then you can ignore this post. Again tho, the word ignorance has the word ignore in there for a reason. I have no hidden agenda, just trying to help YOU.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5884
   Posted 4/28/2011 11:49 AM (GMT -6)   
Davidg One other point, Curtis Sliwa is not know or as he ever been a vigilante. The Guardian angels, which He founded years ago works entirely within the law and has been " copied by other organizations in many cities and are arguably well liked and appreciated by the law enforcement communities, they work in tandem with. Bernard Goetz is a vigilante, Curtis Sliwa is not. Of course If I am on ignore, this will be an instant where you will not know what you do not know.....
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/28/2011 3:00 PM (GMT -6)   
I have no idea what you're talking about or what you're posts have to do with this thread. I think you might be a little confused by what was written. Don't know what "age" and "support" have to do with here.

As for Sliwa, the internet is plastered with references to him being a vigilante. Here is just one of them:

"Curtis Sliwa founded his controversial vigilante group, the Guardian Angels, in 1979"

www.people.com/people/archive/article/0,,20081394,00.html

I know it's not the Atlantic Monthly, but People is about as mainstream as they come.

Doesn't matter if he is technically a vigilante or not. What matters is that he put the spotlight on our disease, had successful surgery which in his own words he describes as having worked because it confirmed that the cancer was contained within the organ. I don't know how old Sliwa is, but he, like many here, is certainly allowed to feel that it was contained.

I went on that MSK calculator last night and one of the criteria asked was if it was contained. There's probably a reason they ask and that reason is probably why we all sweat bullets before hearing the post op pathology. Some of us don't here "contained" and have to work on an alternative, some of us do but only for a short while, some of us never have to think of an alternative again. Regardless, we're all in the same boat together to a great degree.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX
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