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bluefin
New Member


Date Joined Apr 2011
Total Posts : 7
   Posted 4/21/2011 6:54 AM (GMT -6)   
Well group.  I started here about two weeks ago and I found a lot of support from EVERYBODY. I want to thank you all.......
Well, I just had a second opinion on my biopsy.. 12 cores  11 negative  1 positive with 5% cancer... That was 2% better then the original report. I figured if I get 2 more opinions I will have 0% cancer......  Think this will work???? LOL.
I am doing my research and reading. I have read two books on PC..... I don't think I read that many books in four years of college... LOL 
I talked with my urologist and he is setting up a medical conference with 3 doctors, surgeon, radiologist/oncologist, and a wait and see doctor..... I know that is not the proper labels for these doctors but hey  I still have my sense of humor... I think....
I am hoping that this meeting goes well so I can make a decision on my procedure..
I will be getting my stats on a signature soon but here there are.
 
I would love to hear from anybody who is doing the wait and see approach.. I understand there is a lot of monitoring to do... PSA test every 6 months..... Biopsy every year  etc..... 
 
Thanks again for all the support..... TUNA fishing is on me!!!!!
 
Stage T1c
Gleason 6
12 core  11 negative   1 positive  5-7 %
PSA 4.4

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 4/21/2011 7:30 AM (GMT -6)   
Bluefin,
 
Sounds like a reasonable approach to start with, and speaks well for your Uro that he is organizing it with all sides represented.
 
 
 
 
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 4/21/2011 7:57 AM (GMT -6)   
I expect to get flamed by the AS and radiation advocates.....but here goes.

Several facts to consider. The younger you are, the faster you will recuperate from surgery, with the great likelihood that you will suffer fewer post-op issues (ED and incontinence).

As well, about 40% of the biopsies performed understate the actual extent of the tumor. The only exact biopsy comes when they have the whole thing sliced up on a petri dish.

I know I probably could have waited a few more years for my op, but am glad I forged ahead. 7 weeks post-op, I feel fine. I am also now a proud new member in the ZERO club!

Good luck!

Dave
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

First post-op PSA <.00! 7 weeks after

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/21/2011 8:06 AM (GMT -6)   
bluefin,

don't let the prospect of monitoring cloud your thinking.

whether you do AS, have surgery, or go through Radiation, regardless you will be monitoring your PSA for the rest of your life, so i don't see that as being a factor in your decision process.

good luck

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/21/2011 8:40 AM (GMT -6)   
bluefin, the good news is the world of treatments is your oyster, (just to keep up the oceanic metaphor for you.) The bad news is the world of treatments is your oyster. And all are likely valid choices. Doctors will be fighting to get their hands on you. You'll make their stats look good! A lot of good choices makes it complicated when there are no clear right answers.

My decision to have surgery was driven in a large part by my head space make-up. I wanted the rotter sucker OUT and I wanted to know what the pathology was. I came to understand that other valid treatments weren't for me.

I suspect when you've met with all these doctors and have listened to all the advice you'll get here, from your barber, and your cousin's third cousin who just happens to know a guy who was "cured" by smearing his chest with hot Yak poop, in the end it will come down to your head space --- that which you're most comfortable living with.

As for 'comfortable living with' let me warn you about the hot Yak poop program. A) it can really mess up your micowave if you accidently overheat it, and B) your wife may learn to live with the stench, but I guarantee you she'll not be happy about the laundry issue. However, I do acknowledge the two year survival rate for hot Yak poop treatments is as good as any other treatment, and one of the best when it comes to incontinence. I'll let others comment on the ED issues which are somewhat unique.

In the hope the above is helpful, and suits your intact sense of humor, I remain,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 4/21/2011 10:18 AM (GMT -6)   
Where and when does the Tuna fishing start? I've never caught one of those smhair
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 4/21/2011 11:08 AM (GMT -6)   
Bluefin,

Sheldon is right...after all the due diligence is done, your head space is going to make the right call for you.

And if DaSlink is right, I added 90 hours to my life this morning. Caught 4 little whiting in the surf.

Joe
Age 68 PSA 4.5 Biopsy 9/4/09 Bostwick Labs 5 of 8 sections (5 of 11 cores) positive-Gleason 3+3=6 Stage T1
BT on 12/11/09 (84 seeds of Palladium 103) Home same day/no catheter. Some burning, frequency, urgency for 6 weeks. No incontinence, mild ED. 25 IGRT sessions ending 3/22/10 - some fatigue until 30 days after last treatment. PSA as of 4/14/11 - 0.1

njbmwgs
Regular Member


Date Joined Apr 2011
Total Posts : 47
   Posted 4/21/2011 1:53 PM (GMT -6)   
Bluefin,

sounds like they found your PCa very early, which is certainly a good thing!

Best of luck as you work towards a treatment decision. I don't have anything to offer as far as advice yet, as I'm in a similar situation, but just wanted to say hello.

hello

Ok, now where is this fishing?? smilewinkgrin

in good health,

Brian

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 4/21/2011 2:40 PM (GMT -6)   
Joe,my theory is true.I have a checkered past and I figure those are 2 of the reasons I'm alive today. That and the love of a good woman,who changed my life smilewinkgrin
Plus I have to wait for Grand kids to show up,so I'm in no hurry scool
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 4/21/2011 3:41 PM (GMT -6)   
Jim,

Sounds like you've got everything under control. Isn't it amazing how much the anxiety diminishes with knowledge.

My oncologist, radiologist and several other doctors had a similar conference concerning my case before I started IMRT treatments. They were all affiliated with Miriam.

Ken
Age 54 (2006) PSA: 2005 - 3.2, 2006 - 3.7
Biopsy 8/06, Gleason 6 (3+3), T1c
RRP 11/3/06 Post-Op Biopsy, Gleason 6 (3+3), T2c, right apical margin positive
IMRT (37 Treatments) 4/23/07 - 6/14/07
PSA: 7/10 - 0.02

bluefin
New Member


Date Joined Apr 2011
Total Posts : 7
   Posted 4/21/2011 5:42 PM (GMT -6)   
Thanks all..
Fishing is on the east coast off RI or MA
800 LBS TUNA

njbmwgs
Regular Member


Date Joined Apr 2011
Total Posts : 47
   Posted 4/21/2011 9:29 PM (GMT -6)   
bluefin said...
Thanks all..
Fishing is on the east coast off RI or MA[/quote

let's both get cured and go fishing. THAT would be fun!

best wishes,

-b
Age 42
PSA 2/11 of 4.6
Biopsy 3/11 5 pos out of 12 Gleason 6's (3+3) and one 7 (3+4)
Full bone scan 4/11 - neg
Pelvic CT 4/11 - neg
exploring options and getting blurry eyed reading everything I can
staying positive
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