At a confusing point in my journey. Two years after RP. Patology was gloomy. Gleason 9 (5+4) Two positive nodes. Sem Vesc invasion. PSA .6 after surg. Clean prostascint so I did SRT last year. PSA still climbing two years later (2.25) Avoiding ADT because I hate to use the last weapon in my arsenal and commence that horrible countdown. Also avoiding hormones because I am still working and I dread the associated side effects especially loss of cognitive function. I realize that I am running out of options and I would like some really expert advice to help me sort them out. What are some thoughts on high ranked medical oncologists specializing in prostate that may be accessible to me? I reside in Pa. but I will consult with anyone that my insurance will allow. I love this forum. Thanks guys.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in 11/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.
4/4/09 Dr. advising wait for significant rise in PSA and start hormonal treatment.
1st post op at 4 weeks PSA .6 urologist concerned
will retest in one month
8/15/09 bone and pelvic scans redone .. clean PSA .65
onc/radiologist recommending starting radiation treatments and 6 month shot of Lupron .. decided against this gameplan
9/11/09 consulting with med/onc today .. not impressed
My urologist now suggesting prostascint scan
Prostascint test done at U of Penna indicates cancer still confined to prostate bed.
PSA at .7
Gonna need a bigger boat .. found a good rad oncologist
10/21/09 Rad onc suggesting clinical trial of samarium 153 followed by IMRT
2/1/10 Samarium trial completed PSA 1.0
2/1/10 began IMRT 39 treatments 70 Gy
3/25/10 finished IMRT
4/28/10 PSA .93
7/23/10 PSA 1.2