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Oncas
Regular Member


Date Joined Jan 2009
Total Posts : 390
   Posted 4/26/2011 4:55 AM (GMT -6)   
At a confusing point in my journey. Two years after RP. Patology was gloomy. Gleason 9 (5+4) Two positive nodes. Sem Vesc invasion. PSA .6 after surg. Clean prostascint so I did SRT last year. PSA still climbing two years later (2.25) Avoiding ADT because I hate to use the last weapon in my arsenal and commence that horrible countdown. Also avoiding hormones because I am still working and I dread the associated side effects especially loss of cognitive function. I realize that I am running out of options and I would like some really expert advice to help me sort them out. What are some thoughts on high ranked medical oncologists specializing in prostate that may be accessible to me? I reside in Pa. but I will consult with anyone that my insurance will allow. I love this forum. Thanks guys.
 
Jim

Age 61
Northeastern Penna.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in 11/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.

80% involved
4/4/09 Dr. advising wait for significant rise in PSA and start hormonal treatment.

1st post op at 4 weeks PSA .6 urologist concerned

will retest in one month

8/15/09 bone and pelvic scans redone .. clean PSA .65

onc/radiologist recommending starting radiation treatments and 6 month shot of Lupron .. decided against this gameplan

9/11/09 consulting with med/onc today .. not impressed
My urologist now suggesting prostascint scan

Prostascint test done at U of Penna indicates cancer still confined to prostate bed.

PSA at .7
Gonna need a bigger boat .. found a good rad oncologist

10/21/09 Rad onc suggesting clinical trial of samarium 153 followed by IMRT

2/1/10 Samarium trial completed PSA 1.0

2/1/10 began IMRT 39 treatments 70 Gy

3/25/10 finished IMRT

4/28/10 PSA .93

7/23/10 PSA 1.2

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/26/2011 8:00 AM (GMT -6)   
I live in CT and see a local medical oncologist in Boston, but see Dr Myer in Virginia annually. He may not be covered under your insurance plan though and he will not deal with insurance. I have BC/BS and they will re-imburse me for his visits as an "out of network" provider, meaning I have to pay a 20% co-pay and the cost of the airfare.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic RP March 2009
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes - tumor volume 9%, nerves spared, no negitive side effects.
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT .01, < .01

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/26/2011 8:13 AM (GMT -6)   
Oncas, regarding HT. I have been on ADT3 for over 10 months. We all respond differently to HT, but cognitive issues have only been a minor annoyance to me and I have affect my job performance.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic RP March 2009
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes - tumor volume 9%, nerves spared, no negitive side effects.
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT .01, < .01
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