I'm 36 years old and was diagnosed yesterday.

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Architect
Regular Member


Date Joined Apr 2011
Total Posts : 43
   Posted 4/27/2011 10:09 AM (GMT -6)   
I'm 36 years old, and was diagnosed with Prostate Cancer yesterday.

In 2009 my father was diagnosed with Prostate Cancer that had already spread into his bones. His oncologist recommended that I get screened at age 34. My Primary Care Physician thought it was a waste of his time, and disregarded my PSA of 2.1.

December 13th, 2010 - I finally broke down and called my PCP because I had been urinating blood for several weeks. I had waited because I've suffered through kidney stones for the past eleven years. My Urologist had just retired, and I was given a referral to a new Urologist.

December 14th, 2010 - I met with the new Urologist (whom I instantly liked). She scheduled me for my eighth round of extracorporeal lithotripsy the very next day.

December 15th, 2010 - extracorporeal lithotripsy surgery.

March 17th, 2011 - My father passed away at age 59.

March 23rd, 2011 - My father's funeral 5 hours from home AND the day I was to have my 3-Month extracorporeal lithotripsy post-op meeting with my urologist.

March 30th, 2011 - Attended my rescheduled extracorporeal lithotripsy post-op, and told my urologist of my father's passing. She seemed concerned when I mentioned that I had a PSA of 2.1 at age 34.

* She performed a DRE and found that my prostate was "hard" and had "nodules".
* She ordered a new PSA test that day.
* She scheduled a TRUSP with Biopsy for April 18th.

March 30th, 2011 - My PSA had increased to 2.5.

April 18th, 2011 - I had the prostate ultra sound and biopsy. I also had a severe allergic reaction to the anesthesia.

Yesterday April 26th, 2011 - My wife and I met with my urologist to discuss the results:

* 3 of the 12 cores were positive for cancer
* Gleason score is 6 (cores from both prostate lobes contained cancer)
* Urologist stated that the best course of action is Robotic Radical Prostatectomy
* Urologist stated that due to my age she does not want the surgery performed locally and recommended IU Medical Center or Vanderbilt University Medical Center (both of which are 2.5 hours from our home)
* Urologist asked if I would be interested in participating in genetic testing because: My dad's dad died from lung cancer at age 40, my dad's brother died from Leukemia at age 50, and my dad died from prostate/bone cancer at age 59.

My urologist said she's only had second hand knowledge of one other person my age with prostate cancer. I trust my urologist completely, and I'm not the sort of person that trusts easily. I am a very good judge of character, and she has been outstanding from the first second I met her.

Since the DRE/PSA results my wife and I have been researching PC as much as possible online. Unfortunately, we haven't been able to find much information about people my age with this disease.

I'm a 36 year old licensed commercial architect who has a very stressful job (managing the "building design department" in an Architectural / Engineering firm). My beautiful wife just turned 31 years old. We couldn't have children (she has severe endometriosis and my tests indicated low s-count and motility). Does anyone here have any advice or "sage words of wisdom"?

Thanks for letting me ramble.

axle
Regular Member


Date Joined Feb 2011
Total Posts : 35
   Posted 4/27/2011 10:23 AM (GMT -6)   
Architect,

I am sorry for your losses. My father also has PC and had radiation therapy about 15 years ago. My first thought about you is that you caught your PC early and that gives you significant advantages and some time to learn and deal with it. Although it is unfortunate to have PC at so young an age, being young does give certain advantages. There are many options available to you for treatment that you will learn about. There are many different reasons and situations that sway a guy to choose his own individual treatment option.

Good luck and best wishes...
Age 58 @ DX; da Vinci on 1/26/2011
PSA History: 10/2005 = 1.7; 10/2007 = 2.8; 10/2009 = 3.6; 10/2010 = 4.9
Abnormal DRE in 2009; Increasingly abnormal DRE in 2010
Thank you POPs!
Biopsy 11/2010: GS = 3+4; 5 of 12 cores pos @ 40%
Post-OP pathology: GS=3+4; tumor = 35%; pT3b; SVI+; EPE+ R. bladder neck; margins neg.
Post-OP PSA 4/13/11 = <0.1

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 4/27/2011 10:23 AM (GMT -6)   
First, a Welcome to a group no one wants to be part of.
 
You are one of the youngest patients I know of (I was diagnosed at 56, and also have a family history of cancers). There are several folks here in their 40's or who were diagnosed at that age who may be able to offer a better perspective.
 
We will all suggest that you start reading up - the classic books are Dr. Walsh's Guide to Surviving Prostate Cancer (2nd Ed.) and Dr. Peter Scardino's Prostate Book (2nd Ed). There are a lot of others.
 
I'll have to find a link to our common questions thread (it is temporarily "broken"). I'll come back and add that to this post on a few minutes.
 
 
 
 
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

Post Edited (142) : 4/27/2011 10:42:04 AM (GMT-6)


Newporter
Regular Member


Date Joined Sep 2010
Total Posts : 225
   Posted 4/27/2011 10:26 AM (GMT -6)   
Sorry you have to join us but welcome. I am sure others will provide you with some good recommendations. The good news is that it looks like you detected your cancer early and the chance of a "cure" is very good. At your age and family history, surgery is probably the best treatment option but you do have time to research all the options and consult with oncologists that specialize in prostate cancer. I suspect in your case, genetic plays a major role so consultation with an oncologist that specializes in that type of prostate cancer might be helpful.

From what I read, you indeed have an excellent urologist. Follow her recommendation.

Good luck and best wishes.
65 Dx June-2010 PSA: 10.7, biopsy: Adenocarcinoma, 1 core Gleason 6, 3 cores atypia; Clinical stage T2; CT, Bone Scan, MRI all negative

8-23-10 Robotic RP; Pathology: Organ confined, negative margins, Lymph nodes, Seminal Vesicle clear; PNI present; multiple Adenocarcinoma sites Gleason 3+3 with tertiary Gleason 4+. Stage: pT2,N0,Mx,R0

Catheter out 8-30-10 no incontinence, no ED. 3/2011 PSA: <.1

Architect
Regular Member


Date Joined Apr 2011
Total Posts : 43
   Posted 4/27/2011 10:29 AM (GMT -6)   
Thanks for the responses.

I forgot to mention that my urologist has scheduled a CT and Complete Bone Scan for Tuesday 5 May.

She doesn't think there is a "significant chance" of the cancer having spread, but based upon my family history and the chronic lower back pain I've been suffering through for the past 12 months she wants to be sure.

I'll stop by our local Barnes and Nobel tonight to look for the suggested reading. My urologist gave me a copy of "100 Q&A about prostate cancer (2nd Ed)" which we started reading last night. She also gave me the business card for a local PC support group - but mentioned that she doubts anyone there will be near my age.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/27/2011 10:56 AM (GMT -6)   
Hello Architect --- I am sorry to read of your dad's death, and your diagnosis so soon afterwards, and at such a young age. That's a lot to deal with. I know how upset/frightened/scared I was when I learned I had PCa and it must be far worse for you, and your wife.

Others here are far better informed than I to help you as you set out to conquer this cancer --- and you have lots going for you in the conquer department. Your Gleason 6 is a great place to start from. As you know six is 3 + 3 and if the cells were abnormal but 2 + 2 it wouldn't be called cancer.

The good news is that you appear to have caught your cancer early. And I think it reasonable to look forward to a cure --- meaning you'll die at a ripe old age from something else. The bad news is after losing your dad so recently this has to be terrifying and you have ahead of you decisions that are difficult IF you want to get involved. I say "if" because you may be totally comfortable going with your urologist's recommendation. I don't think anyone here would object to you doing so ---- although almost by definition this forum tends to attract people such as myself who want to be involved. I dug into PCa and talked to a number of different doctors before deciding what to do (da Vinci robotic surgery.) I was, and am, very comfortable with my decision, but I have to admit had I just gone along with my urologist's first recommendation (open surgery) and not bothered learning about all the other possible treatments I'd probably be just as well off today.

One thing I'd urge you to do is to get your slides read by a second pathologist who has lots of experience reading prostate tissue. Pathology is both an art and a science and this is a place where a second opinion is good to have.

Again, I am sorry you have to face this news, especially at your age. My mother had cancer, and surgery, when she was about your age and we're headed out to dinner with her tonight ---- she's 97 now and just "did" Easter dinner for 30 family at her house last Sunday. I expect you too will be raking the yard when you're 97.

Please do keep posting and reporting to us on your journey.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 4/27/2011 10:56 AM (GMT -6)   
If you are purchasing the books, the Scardino book (2nd Ed.) is the most recent (cost on both is ~$20 each).  You might also check your local library.
 
I would suggest that you go to the support group meeting to check them out. Some groups such as my USToo group have copies of books/material that may be helpful and can be borrowed. Others actually have donors who help provide information kits to new patients. I'll agree you won't likely find 30 something ages represented (my group had a 40 year old, but as soon as his surgery was done and continence regained, he forgot about us, as most younger men do - they want to get it behind them).
 
Also check USToo.org to see if they have groups in your area.
 
Some will tell you that the bone and CT scans are a waste of money and extra exposure to radiation. To a degree this is true, but they do give you a baseline for the future. I had them, they were negative, but I felt better about it afterwards, and my ultra-high deductible and out of pocket were soon to be blown out, so the cost was later irrelevant.
 
 

clocknut
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Date Joined Sep 2010
Total Posts : 2666
   Posted 4/27/2011 10:57 AM (GMT -6)   
Hello, Architect. I'm very sorry to read that you're confronted with all this at such a young age.  The more I learn about this disease, the more it seems that it just refuses to play by any rules.  My impression is that you're getting excellent care and advice from your urologist.  Given your family history, I'm not sure anyone will be recommending "Active Surveillance," though even that option might still be available to you.  Learn all you can, and ask every question that comes to mind.  Keep a log of everything that's discussed, or you may forget important information.  If your wife accompanies you during your doctor visits, she will undoubtedly remember points that you forget.
 
This is also a good time to begin working yourself into the best possible physical condition.  No matter which treatment option you choose, physical condition is important for recovery.  If you choose surgery, it can be a fairly long procedure, and you want to be in the best possible physical shape.
 
Welcome to HealingWell.  There are members here who have experienced it all, and though you're at the bottom of the spectrum when it comes to age, we have some guys who are 40 or so, and who seem to have tolerated surgery very well, indeed.  Keep a positive attitude.  We're all here to help or advise in any way we can.
 
 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/27/2011 11:15 AM (GMT -6)   
Welcome to HW, sorry you have to be here.....I can't add much to what the others have said, except to touch on one point you mentioned. Children- as you know or will find out, RRP will render you sterile. Even with your wife's reproductive health issues and yours, you may want to consider sperm banking before surgery or radiation or whatever you ultimately decide to do. Us older guys don't think of this aspect, but younger ones need reminding that this is an issue for them. In any case, sounds like you have a good doc, so I'd get a second opinion on the biopsy slides.

I can tell you that I would have gone to Vanderbilt and Dr. Joseph Smith for a RRP, if I had been eligible. He was highly recommended by my Uro's, and the surgeon who did my open. Just sayin........
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 4/27/2011 11:24 AM (GMT -6)   
Architect,
Your not alone!! I was diagnosed at 36 right before my 37th birthday. Keep your head up, there is Hope!!! I had surgery close to 3 years ago and my psa has been undetectable ever since. (Keep praying it stays that way!!) Dont get me wrong it was a large mountain to climb with the pretests, surgery and recovery but I got throught it!!!

Take one step at a time, and one hurdle at a time!!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
7 Post Op PSA’s from 9/2008 to 11/2010: <0.1

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7201
   Posted 4/27/2011 11:38 AM (GMT -6)   
Sorry to read this. Looks like you've gotten some good advice.
 
I have nothing to add, but it is so nice to read a post from someone who clearly has an excellent, competent urologist. She has saved your life!
 
Mel

Architect
Regular Member


Date Joined Apr 2011
Total Posts : 43
   Posted 4/27/2011 11:49 AM (GMT -6)   
I appreciate everything that has been said so far. This is a lot to deal with, and the support here is very helpful.

My instinctual reaction to this ordeal is to get the cancer out of my body as quickly as possible. I've read online that this is a common reaction, but I'm having a hard time rationalizing why I would want to take the "wait and monitor" route.

My online research has shown Dr. Smith at Vanderbilt to be a great option (and was recommended by my urologist). I have the other recommendations written down, but they aren't coming to mind without my notes.

The nurse suggested, as a member here did, that I start a notebook to keep track of all of the information that will be forthcoming. We started a 3-Ring binder last night.

The sperm bank comment is relevant, because we discussed that very issue last night. Currently, we've been told my wife couldn't bear a child through to birth - HOWEVER - she's only 31 and medicine might catch up with her issues prior to growing out of her child-bearing-window.

Thanks for the tips on the books. At this point, I'm very concerned about the financial ramifications (along with everything else) so the possibility of borrowing the books will help.



SHU93,

What type of side effects did you have after surgery?

Architect
Regular Member


Date Joined Apr 2011
Total Posts : 43
   Posted 4/27/2011 11:50 AM (GMT -6)   
Mel,

My urologist has made this experience much easier for me. I honestly feel like I'm receiving the best possible care from her.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3738
   Posted 4/27/2011 11:53 AM (GMT -6)   
Welcome Architect...36...This must be quite a jolt...Read the books..You can get copies on eBay for a few bucks.."Winning the battle Against Prostate Cancer" by Gerald Chodak is another good one..

Take heart that 97% of the Gleason 6 guys live to die from something other than prostate cancer..

I agree, surgery is probably your best bet, all things considered..So talk to two or three surgeons and choose the one you feel is the best for YOU.. You should at least TALK to a Radiation Oncologist that does the combined seeds and beam radiation treatment..The negative here will probably be the long-term side effects of the radiation, not so much a factor with men 50-60-70 years old...And you can always do radiation later if you need to...

Best of luck to you on your journey..
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

Susan R
Veteran Member


Date Joined Dec 2010
Total Posts : 511
   Posted 4/27/2011 12:30 PM (GMT -6)   
My husband was diagnosed at 39. he chose a Robotic in Feb 2011, so still recovering, but doing well. We chose that route, based on the fact that "we wanted it gone" and also that it is VERY difficult to have surgery after choosing radiation, but if you have surgery and then need radiation, you leave further treatment open as possibilities. Read, read, read, and talk, talk talk to everyone, get all info and opinions, learn.....but then make the decision based on what you feel is best for you and your life. Each disease is different and each treatment is different, it will work best if you weigh the options based on your life, beliefs, thoughts. It is a disease that will effect your partner as well, if you have one, so include her in on the discussion, but ultimately it is your body and your decision.

You have found a fantastic group of men here, lean on them.
Husband 39 at diagnosis 12/2010.
No symptoms, PSA 18 in 10/2010
one month antibiotic then PSA 12.6 in 11/2010
biopsy end of 11/2010 Gleason 6
Da Vinci prostatectomy 2/2/2011
1-2 pads per day
nocturnal erections within a month, and able to have sex with Levitra.
1st post-op PSA less than .05

staging: pT2aNo, Gleason 6

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 4/27/2011 12:42 PM (GMT -6)   
Welcome
Sorry you're here.
I think your age makes you a special case and difficult to advise (my PCP said she had never had a patient as young as me with PCa - and I was 48.) I hope there is therefore a uro out there who will take extra interest in getting you all the best help, advice and treatment.
All the best
Alf
Age dx 48
Apr 09 PSA 8.6
DRE neg
Biop 2/12 pos
Gleason 3+3
Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
Nov 09 PSA 0.1
Mar 10 PSA 0.4 sent to RT
13 Apr CT
RT 66Gy ends 11 Jun 10
Tired + weird BMs
Sep 10 PSA <0.1
Jan 11 PSA <0.1
Apr 11 PSA <0.1
Erection OK

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 4/27/2011 12:59 PM (GMT -6)   
Architect, as others have said....welcome.

Myself and many others will offer that surgery (mine was robotic nearly 8 weeks ago) can be gotten over quickly and without substantial side effects. I'm 16 years older than you and have a post-op psa of 0 and no incontinence or ED issues. The younger you are, the more likely you are to have a better outcome IF YOU FIND AN EXPERIENCED, CAPABLE SURGEON.

If you've listened to this board for 6 months, the term "experienced" means different things, to both members and surgeons. Talk to you MD about his/her success with nerve sparing techniques and ask him to relate successes with patients as young as you. My .02.....at least 400 DaVinci robotic procedures under his belt.

You've had one hell of a 2011 so far. It will get better....it has to!

I have every confidence that you will be fine by the time football starts back up.

Dave
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

First post-op PSA <.00! 7 weeks after

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 4/27/2011 2:27 PM (GMT -6)   
Architect,
Welcome to Healing well. You are already getting great advice and probably feel like you're drinking from a fire-hose so I won't give you any more PCa info. However, I will add a couple of related things.

1) Start getting in shape. Now! Exercise, run, do kegels, Train like you're Rocky preparing for the big fight. Being in shape will make recovery easier - no matter which treatment you decide.
2) That WWII expression, "Smoke 'em if you got 'em", can be applied to prostates as well as cigarettes. Use it.
3) Life is not over. This experience will make you a better person. Honest.

Good Luck to you.
Now, "Drop and give me 20!" (push-ups not $)

Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 4/27/2011 3:47 PM (GMT -6)   
It can be overwhelming, all the options, decisions, tests, dr. appointments.
 
Your urologist sounds great. 
IMO, educate yourself, then follow your urologists advice. 
I think it's good advice.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/27/2011 4:48 PM (GMT -6)   
Welcome to our corner of the world. Wow, 36, that is amazing. You have been given such good introductury advice, I can't think of anything else to add at this time.

There are no stupid questions dealing with PC, its treatments, or side effects and complications. So ask freely, as new questions come to your mind.

I was 56 at diagnosis, and my uro said I was one of his youngest PC patients, so just can't imagine being your age. Sorry about the loss of your dad.

Please stay in touch closely with us, we are here to help, and here to support you.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

jacknoon
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 4/27/2011 5:06 PM (GMT -6)   
You are very lucky to have this at an early age... Your recovery will be what others here would only dream of...You can look towards complete ED recovery..Just make sure that you have a surgeon that will make your future erectile funtion a priority...

eggbe
Regular Member


Date Joined Feb 2010
Total Posts : 33
   Posted 4/27/2011 5:24 PM (GMT -6)   
Architect be sure to check the treatment experiences on yananow.org.  At your young age you might want to consider something besides surgery.  At 59 I chose HIFU and am very glad I did.  There are also other options and the stories there can be very helpful.  
 
age 59 psa 5.0 nov 09
psa 6.3 Dec 09
Dec 09 4+3 gleason 7
HIFU 1/17/10
psa .2 3/1/10
psa .1 4/14/10
psa .3 7/14/10
psa .3 10/14/10
psa .3 1/14/11
psa .2 3/14/11
psa .2 4/18/11
trimix .03 for ED

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/27/2011 6:22 PM (GMT -6)   
Architect,
Welcome and thanks for posting as it was an interesting read. Quite a history to look at. Glad they did find it and it looks like your doing your homework. You will make the best choice that you can for you and dont look back. Sometimes we have to doubt our doubts and move on. Keep us posted and my best to you and your family.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA.27

North49
Regular Member


Date Joined Feb 2011
Total Posts : 83
   Posted 4/27/2011 6:59 PM (GMT -6)   
The CT and bone scan are the usual diagnostics once PCa is discovered. You may even get a chest xray and ultra sound of the kidneys.

As others have mentioned, you are young and hopefully healthy and not overweight so your recovery is going to be better than if you were 20 - 30 years older.

Read as much as you can, ask questions and I'm sure someone here can offer suggestions, we've all been through various levels of treatment.
Age 54
PSA 5.6
Diagnosed Sept. 2010
Biopsy T2b/c Gleason 7, 4+3
RRP Dec. 2010
Pathology pT3a, Gleason 7, 3+4, 20% PCa Negative margins, lymph nodes and seminal vesicles
No further treatment recommended.
3 month post-op PSA 03/2011 <0.01

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/27/2011 7:27 PM (GMT -6)   
You are very young. I am 40.

I can tell you that recovery is very quick and in many cases complete. I think it's safe to say that by the time you're 37-38 you will be back to your old self with an added perspective on life.

My advice, if you indeed select surgery, is to find a surgeon who is not good at this, but great. You have one shot at this and you want the best there is taking care of you.

Good luck and remember that this is a process to take one step at a time and before you know it it will be a memory.

David
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX
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