My SRT jouney has begun

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Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 4/28/2011 3:04 PM (GMT -6)   
Today was my first of 38 IMRT treatments.  I thought that I was well prepared, after following Mel's adventure.  I practiced in the morning to see how long 20oz of water would take to go through me, so I could time it right when I went for my treatment.  I had it down at 35 minutes twice gave me a full bladder, but not bursting.  My treatments are scheduled for 2:00, so I chugged most of my water at 1:30, and finished the last 3 oz or so in the parking lot.  When they came to get me in the waiting room right at two, and then set me on the table, I told the tech that I timed it perfectly.  They lined everything up, then went back to their little room, and came back out after five minutes and told me that the computer had to re-boot, and that I could go back to the waiting room.  They had me back in in ten minutes, but after getting re-alligned, I was at the point of being uncomfortably full in the bladder.  When the machine started to buzz, indicating I was getting radiated, I swear I could feel it.  It wasn't painful, but I could feel it.  This seemed to make the treatment feel much longer than it actually was.  Hopefully, tomorrow goes a little smoother.  I think I'll chug my water at 1:35 tomorrow to be safe.  Now, I'm off to do 9 holes and see if it improved my slice at all.
           Cheers,
                     Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 4/28/2011 3:27 PM (GMT -6)   
My first day, I used the "official" 45 minutes before time, and wound up with wet jeans for my dry run.
 
Takes a few days to get settled in.
 
My "journey" through IGRT is in the link in my signature -
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/28/2011 3:34 PM (GMT -6)   
Good luck, Paul, and getting that first one down.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 4/28/2011 3:40 PM (GMT -6)   
One day at a time, Paul. Our thoughts are with you.
Age 65
Dx in June 2010.
PSA gradually rising for 3 years to 6.2
Biopsy confirmed cancer in 6 of 12 cores, all on left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays negative.
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 52-67 ; I'm the only one with PCa
Continence OK after 7 weeks. ED continues.
PSA 1/3/10: 0.01

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5831
   Posted 4/28/2011 3:58 PM (GMT -6)   
Good luck Paul, that must be a funny, as in weird, feeling, just imagine the buzz as the sound of cancer cells being blasted away. The positive margin in this case is your friend. Im believing you know the rational for that , so won't explain. Just had a possible insight, in that the younger you are, your chances may be better in that it takes time for cells to get out of the local area. any studies done on this concept, I dinnah know! At my age even with organ confined I bet I have had pca in some form for 10 to 15 years. I doubt very much you have. I got lucky, I hope, in that from what I was told by uro who biopsied and surgeon who snatched it, thank you Doctor Dalkin, that the main tumor,while being in right apex, was a good distance from the edge. I was multi focal tho, who isn't. Whoever is unifocal is for sure, one of you young bucks, and thats the way it should be. don't let anyone tell you that luck isn't a factor. Ex: I was one who refused to do psa's due to its controversy. heck I was fit, strong, blah,blah. It was my cardiologist, didn't need one but hooked up with mine for future. Any time I did bloodwork he would ck psa box, I would erase it, he was persistent thru 3 cycles, finally, in deference to him, I ran it thru, bingo, 8.1.........
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 4/29/2011 8:42 AM (GMT -6)   
My dad's first couple of appointments took a little longer than normal. They, of course, want to make sure everything is perfect. Wishing you a successful, smooth SRT. My dad became really close with the staff...after all, you spend quite a bit of time together. ;) All the best!

Doting
Father's Age DX 62 (now 65)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 0 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
April 2011 PSA <.02

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 4/29/2011 8:57 AM (GMT -6)   
Paul:
 
It's nice to read that my adventure reports have been helpful.
 
Good luck. Are you doing the Varian Trilogy RapidArc machine?
 
I think you are smart getting the water in you well in advance of the tx. That was my mistake early on. The RO and staff never did specify a quantity and timing.
 
Keep us posted. I will certainly be reading your thread with interest!
 
Mel

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 4/29/2011 9:25 AM (GMT -6)   
Good luck Paul -

I started ART on April 6th and today is my 18th treatment out of 37 - almost at the mid point. In the second week, I felt a little tired on the late afternoon - nothing a nap wouldn't take care of. Week three and having some minor issues. All in all, I feel great.

Tips - Keep that water timing up - it does make a difference. I told the girls that do my treatment that they are trying to see how far they can push me until I become a sprinkler on the table.....but I have no incontinence issues, so their daily test is appreciated.

Tip 2 - Stay positive. A good outlook is key to a successful treatment plan.

Tip 3 - Suck up to the people that do your treatment - a little chocolate on occassion goes a long way to building a great relationship. LOL I am all for bribing. =)

Best of luck to you.......

Mark
Age 45
Jul 2010 - PSA 10.1
Aug 2010 - Biopsy - 12 of 12 cores positive - Gleason 7 (3+4 on the right, 4+3 on the left)
Sept 2010 - CAT and Bone scans negative.
Nov 2010 - da vinci RP with negative margins. nerve bundles were not spared. negative lymph nodes. Pathology Stage pT3c.
Jan 2011 - PSA undetectable
Apr 2011 - Started ART - 37 sessions
Apr 2011 - PSA undetectable

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 4/29/2011 10:34 AM (GMT -6)   
Paul, I will be reading each of your threads as I do Mel's. This gives me quite an insight into what could be my next adventure. I will know more May 9th,next PSA test.
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 4/29/2011 2:41 PM (GMT -6)   
Today was a breeze. I chugged the water at 1:35, and I felt that I had to go when they called me in. By the time they got everything lined up, I was feeling pretty full, and by the end of the treatment, I really had to go. Also, I found out today that I am only getting 37 treatments instead of 38. My golf slice did not improve with the first treatment. I think I need to go to a swing doctor.
Have a great weekend,
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/3/2011 3:42 PM (GMT -6)   
4 down, 33 to go.  After the first day, I have had no issues.  Timing the water intake right for a full bladder made a world of difference.  I have awaken in the middle of the night very thirsty, but I don't know that I can attribute that to the radiation.  I have gotten used to the routine of the treatment.  The first day, I was a little intimidated, and, although I knew what to expect, I really didn't.  I think lying on the table the first time as the machine was doing its thing, I realized the gravity of the situation that I am in.  It's almost like the surgery was strike one, and I'm taking my cut at the next pitch, but with a blindfold on.  Yes, the decision to do SRT was mine, but the results are out of my control.  I dislike not being in control of my destiny.   Anyhow, number 5 tomorrow.
                         Paul

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 5/3/2011 4:31 PM (GMT -6)   
Sorry to tell you this Paul, but destiny is always out of your control. Out come is what you are in control of.........mostly!
Good luck and keep up the fight.
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/3/2011 4:48 PM (GMT -6)   
Good luck, Paul.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/3/2011 7:06 PM (GMT -6)   
Paul:
 
Keep up the daily reports. I hope every day is UNEVENTFUL!!
 
Also, are you using the Varian Trilogy RapidArc Machine. Just curious.
 
Mel

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/4/2011 4:24 PM (GMT -6)   
Mel,
Yes, I am using the Varian Trilogy RapidArc Machine. I believe they are hitting me from 9 different positions. When coming from the side, I estimate it is about a 40 second zap. From straight above me, it seems more like a 20 second zap, and in between at the angles, between 25 and 35 seconds. I don't think that they have come from straight below my spine. Today was another uneventful day. 32 more to go.

Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/4/2011 10:07 PM (GMT -6)   
Paul:
 
That's the same equipment I used.
 
But I think it is basically two passes, each about 80 seconds (with about a 1-minute pause between passes). Each pass is continuous (it doesn't stop)
 
Glad everything is uneventful.
 
Mel

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/5/2011 4:36 PM (GMT -6)   
Mel,
I thought maybe I was wrong about the equipment they are using with me, but I double checked today and asked the techs why mine goes in 9 diferent stations, and yours is a continuous pass. They said that my machine does do the continuous pass, but their physicists have not authorized that use yet at my facility. They said the biggest difference is the speed of the treatment using the continuous pass.
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/5/2011 4:42 PM (GMT -6)   
I gather the continuous is faster??
 
Are you set for 38 sessions with 68.4 total GY???
 
So far, no effects?
 
Mel

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/5/2011 5:15 PM (GMT -6)   
37 sessions with 66 total GY. No side effects so far. 30 more to go.
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/8/2011 8:40 PM (GMT -6)   
I have finished 7 of 37 treatments. The techs are really nice, and I have now met all of them. I have had no side-effects from the radiation thus far, but I have had some issues with my cessation of supplements while I am undergoing treatment. I have diverticulosis, which is one or more small pouches in my colon, almost like a hernia. When stuff like seeds get caught in these pouches, they get infected and they are very painful. This is called diverticulitis. When I started taking cayenne (100,000 scoville units 3 time/day), which I actually took for the PC, my divertculitis went away. Two weeks after I stopped the cayenne, the pain returned. I meet with the RO tomorrow, and I will ask if I can take the cayenne again. Other than that, it the radiation has been relatively uneventful.
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/8/2011 8:45 PM (GMT -6)   
Uneventful is exactly what I want to hear!!!
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2011 8:59 PM (GMT -6)   
Paul,

Like Mel, I hope you stay uneventful on the SRT. I have heard of your other ailment, but you are the first person I have ever known that has had it. Hope that resolves for you.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Grinnell86
Regular Member


Date Joined Feb 2010
Total Posts : 265
   Posted 5/9/2011 8:15 PM (GMT -6)   
Well, my RO is going to allow me to goback on the cayenne pepper and return to a more normal diet, which, for me, means salads for lunch. He said the complications from diverticulitis are much worse than potential diarrhea from the radiation. Today's treatment was uneventful again. Now, I need to get the diverticulitis under control.
Paul
Age 47
PSA 10/09=4.60
Biopsy 12/09
Left side benign
Rt side 3of 4 cores positive, 70%
Initial Gleason 3+4
2nd Opinion Gleason 3+3
DaVinci surgery 2/16/10
Catheter removed 2/27/10
Gleason 4+3
Tumor quantitation=10%
Positive margins right side
Staging T2C PNX PMX
Post surgery PSA 5/10 <.05, 8/10 .12, 9/10 .12, 12/3/10 .16, 1/27/11 .15,
02/28/11 .17
03/28/11 .19

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 5/9/2011 9:13 PM (GMT -6)   
Paul; Nice going,uneventful is great! Her's to ya!!!!
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11
2nd PSA-05/09/11-0.08

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/9/2011 9:35 PM (GMT -6)   
Great news.
 
Mel
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