Four Year Radiation Results

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jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 4/30/2011 6:47 PM (GMT -6)   
I finished 86gy of radiation treatments on March 23, 2007.  My latest PSA results have arrived and they are excellent.  I'm not posting numbers because us rad guys don't go to zero.  We go to a low level and then wander around there for years if we are lucky.
 
I had some loose bowel issues for a couple of years, but they seem to have mostly gone away.  No ED issues which is a pleasant surprise.  No urinary issues, of course.  I suffered not at all during my treatment, unlike purgatory who had bad problems.  I mean that if I hadn't known that I was being treated - I wouldn't have known that I was being treated.  Zero problems.  Well, it was boring.
 
The 800 pound gorilla, of course is the death of my wife of 41 years.  I continue to struggle, but I do so with purpose and hope and support from fine humans like yourselves.  I am surrounded by high quality people.  I thank all of you for your kind words and thoughts and the prayers from you prayerful types. 
 
I sometimes wonder how anyone could ever laugh, or feel happy knowing that it all ends in death and sorrow.  In spite of that I continue to experience joy and happiness in my grandson and in the love and compassion that is in our sometimes miserable world.
 
One of the guys I fly with asked if the sorrow and misery I was experiencing was worth it.  He meant was the 41 years I got with my beloved worth the heartache.  You bet it was!
 
My best to all of you in your continuing struggles and joys.  I wish you the best.
 
Regards,
 
Bill
 
 

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/30/2011 6:54 PM (GMT -6)   
It's good to see you, Bill.

Good report too. I think about my buddy a lot since Jan passed away. We all love you and are hoping that you get good days more and more.

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 4/30/2011 7:12 PM (GMT -6)   
Bill, I struggle with the issues as you most of the time. Not much really matters anymore. It does not matter if life was good or horrible to me. In the end it will be over and you wont be conscious of anything that ever happened to you. I have young kids and I try to live for them only.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 4/30/2011 7:16 PM (GMT -6)   
Bill:
there are elements in life that are sweet, bitter and bittersweet...

-congrats on the good results for your PSA - I am glad you are pleased with the numbers.

-so sorry and once again, my condolences on the passing of your wife in January.
-it is still so fresh to you and I know the hurt you are feeling.

-I lost my companion, John, 15 years ago, (we had been a "couple" for 15 years -long before it was legalized in Canada) and he is still with me in my heart and spirit today.
-the ache is bittersweet when you want to reach out and share those special moments together - like your "I got good results on my PSA today..." -and they are not there to share the joy you feel...

-as time progresses, the hurt will not fade but change, it will still be there, but like waves at the shoreline, bubbling up, receding, the ebb and flow of our thoughts and our existence....

-thank you for sharing with us here at HW and letting us celebrate your joy for your good PSA and accept our condolences on your loss of your wife of 41 years.

-wishing you peace and contentment,
BRONSON

Post Edited (tatt2man) : 4/30/2011 7:32:32 PM (GMT-6)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 4/30/2011 7:30 PM (GMT -6)   
 
Jet,
 
Good to see you moving in an oh, so, important forward direction. You've had some great family support along the way and some good friends and forum comapnions. It is said that the happier a relationship, the more clearly we see its value even when one is gone. Hang in there and keep looking toward the sky :-) You are not alone in here.....we'll be here anytime ya need a friend.
 
Swim

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/1/2011 7:20 AM (GMT -6)   
jetguy, first glad to hear of the good results post-radiation. That's wonderful. Losing your wife of 41 years is and will be rough, but remember to take each breath one at a time, one step forward. there's better days ahead, even if it doesn't seem possible now. The shared life and memories of your marriage is a strong bond to keep you going. I wish you well... :-)
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 5/2/2011 5:33 AM (GMT -6)   
Hey Jetguy Bill,
We send you our love and best wishes across that sky of yours (& ours).  Enjoy that delightful grandson. I remember reading all your posts from the beginning. Thank you so much for continuing to share your journey. Take care. Lana & CJ  xxoo
Creed_three (Lana) - with husband "CJ" now aged 53 yrs (49 years at diagnosis). PSA (2006) 3.5. 1 x 5% core of 12 positive at biopsy (Gleeson 7). open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. Small multifocal lesions contained within prostate. Current PSA February 2011 = 0.03 (unchanged in 3 years)

Julietinthewoods
Regular Member


Date Joined Sep 2010
Total Posts : 309
   Posted 5/2/2011 8:17 AM (GMT -6)   
Bill, glad for your good news (esp. as the wife of a radiation survivor), and sorry about your sad news. I don't have grandchildren yet, but everyone I know who does has said they just make life worth living again. I hope so much that that continues for you.

Juliet

Gleason 6
Veteran Member


Date Joined Mar 2011
Total Posts : 876
   Posted 5/2/2011 8:47 AM (GMT -6)   
Thanks for your reporting your results and the fact that you experienced very little problems from the radiation. I'm interested in hearing from people who had radiation more than 3 years ago, as I am going to have to make a decision very soon and don't really know which way to go, although I am leaning towards radiation if it available to me.

As far as you wife's passing, I know that it is very difficult. I have only been married for 21 years, but my Dad (who is 91) was married for over 61 years when my Mom and his wife died. That was three years ago. When you ask him how he is doing he always says "I'm doing the best that I can do.". And that is what he does. He appreciates the time with family, reading and eating. Time does help a bit. Best wishes to you.
Age 61
PSA 4.3 9/10
PSA 5.5 2/11
PSA 7.1 3/11
Template Biopsy 6 pos out of 40 3/25/11 GS 6 (3+3)
CT bone scan neg
6/18 areas positive - 2 in left base, 4 left apex. 6/40 cores pos. 33cc.
Stage T1C
Uro said 2 in left base, 4 left apex, but looking at the path report, I see:
L apex anterior, L apex mid, L apex posterior, L apex lateral, L base mid, L base lateral

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 5/2/2011 9:06 AM (GMT -6)   

Jet, thanks for sharing your very inspiring message.  As I grow older, I find so much joy in our 7 grandchildren...it's as if the joy of having two wonderful kids of our own has now been multiplied in our old(er) age.

It's my personal belief that when death brings separation from our loved ones, the separation is only temporary and that our spirits will somehow be reunited in the afterlife.  For those who have passed on, beyond this temporal life iinto eternity, where time no longer exists, that may seem like an instant, while we who are left behind experience it as days, months, and years.  I hope and trust this is the way things work, and I choose to believe it. 

Congratulations to you on your wonderful marriage of 41 years and on your successful struggle with prostate cancer.   Your positive attitude is a testament to those 41 years.  Bill

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/2/2011 9:16 AM (GMT -6)   
Bill,

You already know how I feel about your PC journey, and the loss of your beloved wife. I continue to be happy for you, and sad at the same time. I am sure you have 41 years of wonderful memories that will last throughout your life. Hope your grandson is adjusting, it's tough on the little ones too.

Your friend,

David in SC

"Where we share, our need for speed!"
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 5/2/2011 12:35 PM (GMT -6)   
Jetguy,
 
Thanks for the 4 year update....very encouraging for us BT/Rad guys.
 
I can relate to your losing your wife. We have been married for 45 years and I would be lost without her. It's OK to mourn the loss...but spend most of your time celebrating her life. And hanging out with your grandson.
 
Regards,
 
Joe

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/2/2011 1:03 PM (GMT -6)   
Bill-
I always get so excited when I see a post from you. I'm so happy that your PSA has stayed in check, but am so terribly sorry for your loss. I know how much your family means to you and can't imagine the pain you are going through. I will pray for strength and peace for you and your family. May God Bless you and Keep you during this difficult time! Give your grandson an extra squeeze from Seattle.
Father's Age DX 62 (now 65)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 0 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
April 2011 PSA <.02

Architect
Regular Member


Date Joined Apr 2011
Total Posts : 43
   Posted 5/2/2011 3:01 PM (GMT -6)   
jetguy,

I'm new here and just learned of the passing of your wife from reading this post. I offer my most sincere condolences, and prayers for you.
DX 4/26/11 (Age 36)

6/15/09 PSA 2.1
3/17/11 Lost Father to Complications of PC and Bone Cancer (Age 59)
3/30/11 PSA 2.5 & Abnormal DRE (Nodules felt) found during post-op for extracorporeal lithotripsy procedure
4/18/11 Biopsy
4/26/11 Biopsy Results = 3 of 12 Cores Positive (both lobes) with Gleason 6 (3+3)

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 5/2/2011 6:38 PM (GMT -6)   
HI, Bill. Glad to hear that you're doing well physically. I'm so sorry that you lost your wife...you miss the loved ones terribly. My dad lost mom 2 1/2 years ago after 64 yrs. of marriage and he still talks of her daily. And that's OK. Take strength from the grandchildren for they are extensions of you and your bride. Besides, the little rascals have more energy than anyone. Bless your heart.

Bob
AGE:59

Dx: October,27, 2008(the day after my birthday)
Psa 14.5,Gleason (4+3), all scans negative. Biopsy, 4 of 12 positive. DaVinci, 1/19/09. Confined to prostate? No lymph node involvement, all margins clear. 8 wk. Psa<.01,6mon .1,9 mon. .2. Began IGRT 10/09, finished.12/09. Since then,.1.12/22/10. <0.10, trending down. See you in one year, Doc.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/2/2011 6:39 PM (GMT -6)   
Bill, Congratulations and the good result and sorry about losing your wife. I have traveled that road when my wife died at the age of 28 from Lukemia. I was 29 years old at the time with two young boys. I didn't want to live but I had to because of my sons. Time is a healer and you will find peace again.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21, 2 years <.008? ) undetectable
27 months: .005
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