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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/2/2011 1:56 PM (GMT -6)   
Got back by noon today from our weekend RV outing.  It was a nice break from everything.  We spent two nights, Saturday and Sunday at a nice campground on  the banks of Lake Keowee here in western SC.  By noon Sunday, the campground was all but deserted, there might have been 5 campers left out of 100 sites.  They have 2 sites with direct lake frontage, and somehow I managed to snag one of them.
 
The water was too cold to swim still, and the swimming pool had just been filled, and was also too cold to use.  We mostly sat around and did nothing, and it was everything we hoped for.  This park had no internet access, did have it on our smart phones but chose not to use the net.  This is why we knew nothing about the Bin Laden event until this morning when we were leaving.
 
Also, we never talked about PC at all, not even once.  Can't say it wasn't in the back of my mind, but my wife works hard and needed some pressure release.  The cancer was still with me, but I put it out of mind to the best of my ability.
 
We ate what we felt like, Italian Sausage with grilled onions/peppers one night, Bacon-Eggs-Pancakes one breakfast, and last night, a decent grilled steak, salad, and baked potatoes.  All approved of course, on my Taste-Good Prostate Cancer diet.
 
The campground was very steep, so taking walks was difficult with my cane and normal fatigue.  Interestingly, the fatigue came in waves, almost set to an alarm clock, as usual, even though I was in a relaxed situation.
 
This Thursday, I start the new oncology re-hab, and hoping it will help, or at least improve some of the issues.
 
We hope to do this weekend RV thing about once a month, weather permitting.

David in SC

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3888
   Posted 5/2/2011 2:03 PM (GMT -6)   
David,

Great to hear that the weekend was enjoyed by both of you. Probably should be doing this more often.

Best wishes with your new start on Thursday.

Jack
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy 12-6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 5/2/2011 2:04 PM (GMT -6)   
Sounds great! This is an off topic post that really is on topic, "How to live well with prostate cancer." You're doing it. Grilled Italian sausage with onions and peppers seems like an essential component of the good life.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 5/2/2011 2:11 PM (GMT -6)   
David -
- glad you and Peggy had a PCa free weekend - or at least an internet-PCa-free weekend.... you deserved a break from all this mess...
-wishing you all the best on your upcoming "start from scratch" non-influence meeting with the oncologist on Thursday....
-have a good week
-gentle hugs,
BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 2 of 12 cancerous, 5% involvement -Gleason 7 (3+4)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/2/2011 2:26 PM (GMT -6)   
Bronson, no oncologist meeting till June, Thursday is start of the Oncology Re-hab program.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7089
   Posted 5/2/2011 2:29 PM (GMT -6)   
David,
 
Glad you had a good trip. Hope the week goes well for you.

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 5/2/2011 2:50 PM (GMT -6)   

David, that sounds like a great weekend getaway.  Beth and I also spent the weekend at our RV which is parked at her family farm in north central Indiana.  No lake, but quiet evenings under the stars with a campfire and beer, and toasted marshmallows, and extended family.  I still thought about the cancer a lot, though.  I seemed to have more aches and pains than in the past, and a lot less stamina for the chores that had to be taken care of.  Yes, I'm a year older, but I think the cancer experience has taken a toll.

Unfortunately, Beth's Mom is 90 years old and at the point where she realistically can't stay on the farm any longer, and now the hard decisions start about what to do with her.  She gets visited regularly, but it's getting to the point where that's not sufficient.

After this bout with cancer, I don't think I'll ever reach that age, so my kids should not have to deal with these kinds of decisions in my case.  Beth, on the other hand, is very healthy and may well live that long.

I hope you'll be able to enjoy these kinds of quet weekends a lot this summer.  They're good for the body and the spirit.

 


DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 5/2/2011 3:08 PM (GMT -6)   
David, I'm glad you were able to get away and relax! The sausage and pepper and onions are part of my taste good diet,but not all the time. Man cannot live on chicken and fish alone! I need some meat,that is why God gave me some sharp teeth!
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Julietinthewoods
Regular Member


Date Joined Sep 2010
Total Posts : 309
   Posted 5/2/2011 3:26 PM (GMT -6)   
So glad you had a fun getaway! We are RVers as well, and there is nothing quite so relaxing as gazing out over a lake after eating at your picnic table!! I always remember why I want to be alive...

Juliet

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4126
   Posted 5/2/2011 3:39 PM (GMT -6)   
Well David, I think the weekend was just what the Dr ordered. Sometimes stepping out of that box for just a bit just gives us enough fresh air to fight for another week. So pleased that you and Peg got a chance to just be yourself without that darn PCa stuff nagging at you. Probably good that you did not have internet as well.

Glad you guys had a great camping trip and I hope you will schedule more of them.

Cajun Jeff

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/2/2011 5:23 PM (GMT -6)   
All our kids were invited to come out, but they were all too busy, and that was fine too.

After dinner, and after watching the sun set over the crystal clear lake (and watching some water skiers making fools out of themselves), each night I set up my laptop on the picnic table with extended speakers, and we had movie night with DVD's, while we leaned back in some comfy camp chairs. There was over 1,200 feet of lake frontage, and yet not a soul in front of us, and by Sunday afternoon, the nearest RV's were a couple of huge motor homes, but at least 500 feet away.

I am fortunate that I live in an area where there are endless possibilities for weekend trips within 60 miles or less.

I am like the rest of you, I wake up thinking about cancer, go to sleep thinking about it, but this time, we spent a "cancer free" weekend between us. And it was nice.

Even if they had the net, wouldn't have wanted it, only took the laptop to watch the movies with.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 5/2/2011 7:08 PM (GMT -6)   
David, congrats on the restful weekend. We all need those from time to time. However, personally, I'm glad to see you back on the forum.

K
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
Biopsy, 7 of 18+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg, Ves neg
tumor contained, still 4+5=9
pni ext.
9/3, 2010 PSA - 0.04
9/3/2010, I'm 99% continent
10/14/10, PSA still 0.04, and lupron #1, now 99.9% continent
Total ED, 3 caverject failed
10/20/10 OD'd .5cc trimix, after 3hrs, neo synephrine shot
tried .15 & .17 cc neg, next .2

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 5/2/2011 7:19 PM (GMT -6)   
David,
I'm happy that you had a nice quiet and enjoyable weekend. You and you wonderful wife needed a break from the whole PCa journey. Best wishes.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21, 2 years <.008? ) undetectable
27 months: .005

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 5/2/2011 7:23 PM (GMT -6)   
David,
Glad that you and your wife had a relaxing getaway. I have heard good things about that Lake but have never been there. Love watching the campers pull into our local state park with a nice lodge and lake. The smell of a campfire breakfast in the morning is as good as any perfume that I have smelled. Welcome home.
Michael

lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 5/2/2011 8:20 PM (GMT -6)   
David,
Glad you were able to get away and have some fun. There's just something about a camp fire tha's good for the soul. I am fresh off a trout fishing trip in the mountains of north Georgia. We camped in tents and ate like kings, one of our fishing buddies is actually a four star chef. Needless to say we took full advantage of his cooking skills.
Keep the faith,
Lynn
Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is showing improvement.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/2/2011 8:53 PM (GMT -6)   
thanks kbota, glad to be back

EdC, thanks

You are exactly right, Michael, lots of good smells from all the different campers in the air.

Lynn, I used to fly-fish for years on the Chattoga River in GA/SC, great trout river, I was the only left-handed fly fisher on that river, and I looked just like I stepped out of the Orvis catalog, lol

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/2/2011 8:54 PM (GMT -6)   
David, sounds like a great time. Really glad you took the chance to get away. Won't be long until you guys are once again hooked on the relaxing carefree days of being out on the road. Next time Lynn and I are up that way we can do a double at some park nearby and enjoy those great evenings out under the stars together. Look forward to it.

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09 Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
PSA .6 IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9
3/7/11 PSA 4.2
4/10/11 PSA 3.8

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/2/2011 9:45 PM (GMT -6)   
Sonny, thanks.

We were already talking about if you and Lynn moseyed up this way, so many nice campgrounds on both Lake Keowee and Lake Hartwell. Tell you one thing, sure sold on the Gulfstream quality, even with our used unit.

Now back to reality, thinking about the old PC hiding in me somewhere, but I refuse to get caught up in it. Only x amount I can do at this point, and I refuse to be ruled by anymore PSA tests. My test is May 31st, and then I meet with my Uro. Then sometime in mid-June, I will meet with the folks at the Gibbs Cancer Center. Aside from that, not going to let it ruin my other interests in life, as you practice yourself.

The physical limitations I continue to have, I will just keep working around them. And for me, I will eat whatever I feel like eating, period. Refuse to get OCD about the food part. We eat healthy when we can, and other times not, so be it.

Just another way of letting cancer rule you life. Not going to happen with this guy anymore.

Hope Lynn is doing better, give her a hug from me.

Later brother,

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/3/2011 2:45 PM (GMT -6)   
David, your weekend sounds wonderful ---- especially as in Winnipeg, where I live, we had a late snow storm with an inch or two of snow and 30mph winds.

Love your idea of getting out every few weekends. Here where I live cottages are about as cheap as a good RV --- I paid $10,000 for ours albeit a number of years ago --- and so we tend to be cottage people, but I've always wanted to roll the road in an RV. And, I'd love a Gulfstream like yours to pull up the Alaska Highway. Someday!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 5/3/2011 7:34 PM (GMT -6)   
Sheldon,

My wife is way more into the outdoor part and the whole RV thing. I would love to have a cabin here either on one of the lakes, or in the mountains nearby, but even for a shack, you would start above 200K USD and quickly climb. At least with the RV, we had a million dollar view for 36 USD a night, that's where the bargain is.

The best result, was that I thought about PC for the least amount of time in the 48 plus hours of the weekend. It was a good distraction. As much as I love and use the Internet, it can almost be mental and emotional overload at times. Like many here, I research things to death. Sometimes I wish I were just some simple minded sap, I envy them. I tend by nature to make everything complicated and in vivid detail to the ninth degree. I never seem to do things the easy way.

Looking forward to having some more nice weekends, last year in particular, I was in too much constant pain to even think about doing something enjoyable.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

wigged-out
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 5/3/2011 8:35 PM (GMT -6)   
David,

Glad you had great weather, time, and no bugs!

We are going to take our 19 foot Airstream out for the first time this season in a week or two. We don't care for crowds, so we try and camp Sunday thru Thursday.

I think I am in good enough shape to lift the 30# hitch.

In June, we are Planning a trip to Daniel Boone Forest in Indiana. For that trip we will take and camp in a VW camper van.

Happy camping one and all.

W-O
Age: 55- good health. Exercise regularly, 200#.
Needle Biopsy 11/09- 12 samples. 11 OK. Right Lateral Mid- Adenocarcinoma Gleason score 3+3=6 9 involving 5% of specimen.
PSA risingto 8.0 thru 2010.
2nd biopsy- 2 positive cores, one a 3+3=6, 3% and the other a 3+4=7, 20%
Very last PSA- 12
DaVinci 2/14/11 Cath out 2/21/11 Path=10%, Gleason6+7 No lymph, pca contained to organ. Lots of pads.
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